Subject index 

Carer (aged 44), of her son aged 22, who was diagnosed with epilepsy in 1982, at 16 months of age. Severe uncontrolled epilepsy and autism, symptoms of Lennox-Gastaut Syndrome, diagnosed in 1997. Has tried several different drugs, and ketogenic diet as a child. Currently on a gluten free and dairy free diet. Current medication: levetiracetam (Keppra) and carbamazepine (Tegretol).
Carer (aged 48), for her husband (aged 54), who was diagnosed with epilepsy in 1989, aged 42. Tried several different drug treatments. Epilepsy is poorly controlled. Current medication: carbamazepine (Tegretol), sodium valproate (Epilim) and levetiracetam (Keppra).
Diagnosed with epilepsy in 1982. Tried various drugs which did not control seizures. Had neurosurgery in 1984 at the age of 13 and in 1998 at the age of 28. Although there was some improvement in the seizures, epilepsy is poorly controlled. Current medication: carbamazepine retard (Tegretol Retard), vigabatrin (Sabril) and lamotrigine (Lamictal) daily, and clobazam (Frisium) when needed.
Diagnosed with epilepsy in 1995. Tried a number of different drug treatments, and on average has about one seizure per year. Current medication: lamotrigine (Lamictal).
Diagnosed with epilepsy in 1992. Has tried sodium valproate (Epilim), lamotrigine (Lamictal) and topirimate (Topamax), though epilepsy is not controlled. Current medication: sodium valproate (Epilim) and topirimate (Topamax).
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