Subject index 

Diagnosed with epilepsy in 1966, and had an epileptic stroke in 1986. Has tried various drugs over the years and is currently on lamotrigine (Lamictal), which has not controlled the epilepsy but has led to an improvement in quality of life between seizures. Current medication: lamotrigine (Lamictal).
Carer (aged 44), of her son aged 22, who was diagnosed with epilepsy in 1982, at 16 months of age. Severe uncontrolled epilepsy and autism, symptoms of Lennox-Gastaut Syndrome, diagnosed in 1997. Has tried several different drugs, and ketogenic diet as a child. Currently on a gluten free and dairy free diet. Current medication: levetiracetam (Keppra) and carbamazepine (Tegretol).
Diagnosed with epilepsy in 2001. Has tried various drug treatments though seizures have not been controlled. Current medication: levetiracetam (Keppra) and clobazam (Frisium).
Diagnosed with epilepsy in 2001. Was put on gabapentin straight away and epilepsy has been well controlled since then. Current medication: gabapentin (Neurontin).
Diagnosed with epilepsy in 1993. Has tried various different drug treatments, and has been seizure free for a year. Current medication: vigabatrin (Sabril), lamotrigine (Lamictal) and levetiracetam (Keppra).
Diagnosed with epilepsy in 1985. Seizures have been controlled since 1992. Current drug treatment is carbamazepine retard (Tegretol Retard) and sodium valproate (Epilim).
Diagnosed with epilepsy in 1989, which was caused by a brain tumour. Had radiotherapy and chemotherapy to treat the tumour, and seizures were reduced considerably. Felt better without medication and decided to stop taking anti-epileptic drugs. Current medication: none.
Diagnosed with epilepsy in 2000. Tried various drugs which did not control seizures and caused severe side effects. At the time of interview, participant had stopped taking all medication. Current medication: none.
Diagnosed with epilepsy in 1995. Tried a number of different drug treatments, and on average has about one seizure per year. Current medication: lamotrigine (Lamictal).
Had seizures since 1986. In 2002 these were diagnosed as non-epileptic seizures. Had been taking carbamazepine (Tegretol). Is currently being weaned off medication. Seizures have now stopped.
Diagnosed with epilepsy in 1981. Tried various drugs and, in 1999, had neurosurgery which reduced the frequency and intensity of seizures. Current medication: gabapentin (Neurontin) and carbamazepine retard (Tegretol Retard) daily, and clobazam (Frisium) around the time of menstruation.
Diagnosed with epilepsy in 1984, although had the condition throughout childhood as well. Has been seizure free since 1986, though had a status epilepticus episode in 1999 when medication was missed. Current medication: carbamazepine retard (Tegretol Retard) and clobazam (Frisium).
Diagnosed with epilepsy in 1998. Has tried sodium valproate (Epilim) and is currently taking lamotrigine (Lamictal), which has reduced the frequency and intensity of seizures but epilepsy is not controlled. Current medication: lamotrigine (Lamictal).
Diagnosed with non-epileptic seizures in 1998, which were triggered by manic depression. Current drug treatment is for depression and seizures, and includes carbamazepine (Tegretol) and sodium valproate (Epilim).
Diagnosed with non-epileptic seizures in 1998, which were triggered by manic depression. Current drug treatment is for depression and seizures, and includes carbamazepine (Tegretol) and sodium valproate (Epilim).
Diagnosed with epilepsy in 1982. Tried various drugs which did not control seizures. Had neurosurgery in 1984 at the age of 13 and in 1998 at the age of 28. Although there was some improvement in the seizures, epilepsy is poorly controlled. Current medication: carbamazepine retard (Tegretol Retard), vigabatrin (Sabril) and lamotrigine (Lamictal) daily, and clobazam (Frisium) when needed.
Diagnosed with epilepsy in 1988. Tried various drugs, and had neurosurgery in 2000. Has been seizure free since surgery, and stopped taking medications (lamotrigine and carbamazepine) a few months after neurosurgery.
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