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EpilepsyArrow
Aged 30-49
Interview EP10  

Interview EP10

Age at Interview: 31
Sex: Male
Age at Diagnosis: 12
Background: Civil servant; single, no children.
Brief outline:Diagnosed with epilepsy in 1982. Tried various drugs which did not control seizures. Had neurosurgery in 1984 at the age of 13 and in 1998 at the age of 28. Although there was some improvement in the seizures, epilepsy is poorly controlled. Current medication: carbamazepine retard (Tegretol Retard), vigabatrin (Sabril) and lamotrigine (Lamictal) daily, and clobazam (Frisium) when needed.


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Explains that a positive attitude has helped.

 



But you tend to sort of feel really poor about, feel really low about yourself and sort of think oh you know, I've sort of been dumped on in life you know. 

But when I was in hospital, a couple of beds along was a kid who had been, he was left, he was about 14 or 15 and had been doing a paper round on his bike and got hit by a car. Well obviously in the days when hardly anybody wore a cycle helmet, and he was being sort of fed through a tube and he's sort of since died. Well it slightly puts things into perspective.

...I'd say look at the positive side of it. Don't let it drag you down because it will. If you let it drag you down, it really will drag you down. Like from the times it does, I do find that it just sort of boils over and then I do get a little bit depressed. It can, if you don't look on the positive side, and get on with life and try and get as much out of life, then it really will get you down.  Don't think oh my God I can't drive; oh my God I've got to take all this medication; oh my God I can't do this, I can't do that. And really try and look on the positive side. Don't let it beat you because if, you know, if you just loaf about and be depressed about it then it really will be, you know. You really only have to take a look around you and see that there are people who are in far worse situations. 
Jonathan Miller - Epilepsy
Epilepsy
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