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Aged 30-49
Interview EP10  

Interview EP10

Age at Interview: 31
Sex: Male
Age at Diagnosis: 12
Background: Civil servant; single, no children.
Brief outline:Diagnosed with epilepsy in 1982. Tried various drugs which did not control seizures. Had neurosurgery in 1984 at the age of 13 and in 1998 at the age of 28. Although there was some improvement in the seizures, epilepsy is poorly controlled. Current medication: carbamazepine retard (Tegretol Retard), vigabatrin (Sabril) and lamotrigine (Lamictal) daily, and clobazam (Frisium) when needed.


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Explains that his consultant plans to slowly reduce drug dosages.

 



No, I mean he [the consultant] plans to reduce it, the vigabatrin by 250 mil a month so you know I'll see how that pans out. If that's, you know and see if I can, you know see if reducing it in a much more gradual way will have a better effect. I mean last time I tried to reduce them I don't think it was having a very uh, it wasn't a particularly good time seizure-wise. And it tended to bring them on. And consequently as soon as I took them off, I started to have more seizures quite quickly. Whereas initially the first time I tried to reduce my medication it worked really well until I got down to 1000 milligrams a day, and then when I tried to go down to, this is just with the vigabatrin, when I went down to 500 a day then I started to have seizures. So I pushed it back up again. And they didn't sort of stop until I went up to 2000 so that's what its at the moment. 
Jonathan Miller - Epilepsy
Epilepsy
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