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Aged 30-49
Interview EP01  

Interview EP01

Age at Interview: 48
Sex: Female
Age at Diagnosis: 10
Background: Voluntary work, including running Oxfordshire Epilepsy Support Group; married, 1 adult child.
Brief outline:Diagnosed with epilepsy in 1964. Tried various drugs but these did not control seizures. In an attempt to have an acceptable quality of life, decided to stop taking anti-epileptic drugs in 2001 and is on a Chinese/macrobiotic diet. Current medication: diazepam (Valium) when needed.


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Describes her feelings of depression and failure.

 



Yeah, it's true I've had a fair amount of depression over the years. I think probably beginning after the death of our baby, again. I was helped considerably by the people in the church that I belong to, they were absolutely marvellous. There was always somebody who was willing to listen and to pray for me if that's what I wanted to do. And that has been a terrific support. In fact I'm not sure where I would be without the support of my faith and the people, the family of the church. I've had, I've been up to the Hospital, I've had group therapy, I've had individual therapy. I find it really, really difficult being depressed. 

Can you tell me a bit about how you feel? Do you feel isolated or you know, is it difficult to do anything? 

I feel a failure, I feel a failure because it's such a disappointment every time I have a seizure. I get things going again afterwards, but it takes about a week now to get the courage and the confidence to get back out again and doing things. I know that its not good to stay in the house, I know that from somebody who is suffering from depression that that is the last thing really you want to do and yet I don't feel able to go out and to chat happily with people, just in the street or at the local shop, because I don't feel able to go out.
Jonathan Miller - Epilepsy
Epilepsy
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