• Clip
• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 46 >> Describes the chaotic and difficult process of claiming the funding to which his wife was entitled.

When brain scan was found to be normal was admitted for a week's assessment. Diagnosed as having Pick's disease (fronto-temporal dementia) Cared for at home, with day care and regular residential respite, finally in residential care.

• Topic
• Nerves & brain >> Carers of people with dementia >> Sources of support >> Sources of support

Sources of support

• Nerves & brain >> Carers of people with dementia >> Caring for parents >> Interview 15 >> Alzheimer's Society gave advice about how to inspect residential care homes.

Her mother had been an independent widowed woman. They had hoped when they were able to move her nearby that this arrangement would be adequate for several years but before long she had to go into residential care.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 07 >> Initially they found a fair amount of information themselves. Looking back he thinks they should have joined the Alzheimer's Society earlier.

Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.

• Nerves & brain >> Carers of people with dementia >> Women caring for partners >> Interview 16 >> Describes feeling dropped into thin air after the diagnosis - hospital test results were provided by letter but seemed irrelevant to her most pressing

He was cared for at home for 7 years. When things got really difficult he spent 18 months in residential care after which his wife was able to bring him home again with the additional support of either a live-in carer, or two live-in carers in rotation - working alternate weeks.

• Nerves & brain >> Carers of people with dementia >> Caring for parents >> Interview 11 >> Suggests that other carers should get in touch with their local support groups.

She managed for a time to care for her mother in her own home which was nearby but eventually had to agree to her going into a nursing home.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 31 >> Has learnt a lot about how to cope through other carers and a helpful CPN.

He gave up work to be a full time carer but when she took to her bed for several months it was decided that she needed residential care. As she refused, it was necessary to section her to make the transfer possible.

• Nerves & brain >> Carers of people with dementia >> Caring for parents >> Interview 04 >> The advantage of talking to other carers.

Distance care difficult as mother refused to accept help. Difficulty communicating with social services. Had to apply for a Court of Protection order to control her finances. Problems finding a suitable nursing home. She twice escaped.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 07 >> Making the first move resulted in restoring friendships and discovered why people had been reluctant to get in touch.

Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.

• Nerves & brain >> Carers of people with dementia >> Women caring for partners >> Interview 25 >> Being a carer affected her perception of relationships with others.

Cared for by his wife at home. Was terrified when left in respite care so wife removed him within hours. Developed Parkinsons disease. Was admitted to hospital for assessment and subsequently transferred to residential care.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 50 >> Explains that he has picked up most practical information from other carers.

Developed symptoms in her sixties and guessed herself what it was. Dementia progressed but Alzheimers was never actually confirmed. Separation difficulties with day care but easy transfer to residential care. Was treated with tegretol because she developed epilepsy.

• Nerves & brain >> Carers of people with dementia >> Women caring for partners >> Interview 16 >> Explains the value of the practical information and support from other carers in the Alzheimer's Society.

He was cared for at home for 7 years. When things got really difficult he spent 18 months in residential care after which his wife was able to bring him home again with the additional support of either a live-in carer, or two live-in carers in rotation - working alternate weeks.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 33 >> Explains that he felt that the people from the Alzheimer's Society were helpful because they understood more about dementia, and were more friendly, t

His wife developed multi-infarct dementia. He cared for her at home for about 6 years. When she went into residential care it took a long time for her to settle. She died in the nursing home.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 46 >> Did not at first want to ask for help, but finds that other carers can understand each others problems.

When brain scan was found to be normal was admitted for a week's assessment. Diagnosed as having Pick's disease (fronto-temporal dementia) Cared for at home, with day care and regular residential respite, finally in residential care.

• Nerves & brain >> Carers of people with dementia >> Caring for parents >> Interview 11 >> Thinks the advice and support from good friends and the Alzheimer's Society have been invaluable.

She managed for a time to care for her mother in her own home which was nearby but eventually had to agree to her going into a nursing home.

• Nerves & brain >> Carers of people with dementia >> Caring with young children >> Interview 39 >> Wonders if perhaps she had more information than she wanted from the Alzheimer's Society.

Dismissed unexpectedly from the Army where he worked on chemical defence. Unable to get a new job. Diagnosis took about 3 years. Wife worked 1 day a week, and cared for him and children. Difficult finding appropriate care. Died while in residential care.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 07 >> Has found the Alzheimer's Society a great support, although he and his wife are usually fairly insular people.

Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 07 >> Regrets not having joined the Alzheimer's Society earlier.

Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.

• Nerves & brain >> Carers of people with dementia >> Caring with young children >> Interview 21 >> Explains how her religious belief is a comfort and helps her to decide what to do.

Her husband developed Picks' disease when he was 57. The patchy nature of his dementia made it difficult to convince people that his problems were real. Delay in getting the diagnosis meant they experienced extreme difficulties in accessing his health insurance.

• Nerves & brain >> Carers of people with dementia >> Caring for parents >> Interview 13 >> Describes how she was able to care for her mother who was in Paris through frequent telephone calls.

Her mother developed Lewy Body Dementia while living alone in Paris. After many crises her mother has accepted that she cannot return to her flat and that she move to England to live with her daughter. Treated with Exelon then Aricept.

• Nerves & brain >> Carers of people with dementia >> Men caring for partners >> Interview 50 >> Was open about the problem with all their friends and found himself with 16 regular volunteer helpers.

Developed symptoms in her sixties and guessed herself what it was. Dementia progressed but Alzheimers was never actually confirmed. Separation difficulties with day care but easy transfer to residential care. Was treated with tegretol because she developed epilepsy.