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Nerves & brain
Carers of people with dementia
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Diagnosis :
Suspicions - early signs of dementia
Signs of dementia
Deterioration, severe dementia
Making the diagnosis
Tests
Getting the diagnosis
Genetic testing
Ideas about causes of dementia
Treatment :
Treatment for Alzheimer's disease
Relieving symptoms
Strategies- some suggestions from carers
Becoming a carer :
Becoming a carer
Caring from a distance
Friends and family
Sources of support
Assessments and care plans
Home carers
Day care and respite
Problems with provision
Looking for information
Residential care :
Arranging residential care
Becoming a resident
Difficult decisions :
Wandering
Driving
Money
Self care
Respect
Living with change
Complicated emotions
End of life
Advice to other carers :
Advice to other carers
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Carers of people with dementia
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Nerves & brain
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Carers of people with dementia
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Women caring for partners
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Interview 16
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Carer was upset to find that once her husband left the trial he no longer received the attention he had been getting while he was on it.
He was cared for at home for 7 years. When things got really difficult he spent 18 months in residential care after which his wife was able to bring him home again with the additional support of either a live-in carer, or two live-in carers in rotation - working alternate weeks.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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Describes how he tailors his wife's sedation according to her condition at the time.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 11
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Describes how it was impossible to expect her mother to manage her own medication.
She managed for a time to care for her mother in her own home which was nearby but eventually had to agree to her going into a nursing home.
Nerves & brain
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Carers of people with dementia
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Women caring for partners
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Interview 22
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Exelon made her husband ill and was expensive.
Was cared for at home until very recently when he was admitted to residential care. Before this he attended a day centre with residential respite every 6 weeks. Later was on Exelon but taken off when he developed side-effects.
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