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Nerves & brain
Carers of people with dementia
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Diagnosis :
Suspicions - early signs of dementia
Signs of dementia
Deterioration, severe dementia
Making the diagnosis
Tests
Getting the diagnosis
Genetic testing
Ideas about causes of dementia
Treatment :
Treatment for Alzheimer's disease
Relieving symptoms
Strategies- some suggestions from carers
Becoming a carer :
Becoming a carer
Caring from a distance
Friends and family
Sources of support
Assessments and care plans
Home carers
Day care and respite
Problems with provision
Looking for information
Residential care :
Arranging residential care
Becoming a resident
Difficult decisions :
Wandering
Driving
Money
Self care
Respect
Living with change
Complicated emotions
End of life
Advice to other carers :
Advice to other carers
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Carers of people with dementia
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Nerves & brain
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Carers of people with dementia
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Caring with young children
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Interview 21
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Benefited from being open with her children about how their father's dementia affected all of them.
Her husband developed Picks' disease when he was 57. The patchy nature of his dementia made it difficult to convince people that his problems were real. Delay in getting the diagnosis meant they experienced extreme difficulties in accessing his health insurance.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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The specialist informed both him and his wife of her diagnosis. Over time he came to believe this had been appropriate.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
Nerves & brain
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Carers of people with dementia
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Women caring for partners
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Interview 42
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Describes the difficulty persuading doctors to give her a diagnosis and the relief when someone levelled with her.
Became ill in his 50's. Suspected his own diagnosis but was told it was depression. Lived alone and attended day hospital for a year. Then in sheltered accommodation. Finally had to be sectioned and was in psychiatric hospital. Transferred to EMI home, still on Section 3, died 18 months later.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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Describes his reluctance to be underhand with his wife.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
Nerves & brain
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Carers of people with dementia
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Women caring for partners
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Interview 22
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Describes the problems arising from allowing her husband to manage his own medication.
Was cared for at home until very recently when he was admitted to residential care. Before this he attended a day centre with residential respite every 6 weeks. Later was on Exelon but taken off when he developed side-effects.
Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 15
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Realised that though she tried to be totally honest with her mother it was not always appropriate.
Her mother had been an independent widowed woman. They had hoped when they were able to move her nearby that this arrangement would be adequate for several years but before long she had to go into residential care.
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