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Nerves & brain
Carers of people with dementia
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Diagnosis :
Suspicions - early signs of dementia
Signs of dementia
Deterioration, severe dementia
Making the diagnosis
Tests
Getting the diagnosis
Genetic testing
Ideas about causes of dementia
Treatment :
Treatment for Alzheimer's disease
Relieving symptoms
Strategies- some suggestions from carers
Difficulties in taking medication and overcoming them
Becoming a carer :
Becoming a carer
Caring from a distance
Friends and family
Sources of support
Assessments and care plans
Home carers
Day care and respite
Problems with provision
Looking for information
Residential care :
Arranging residential care
Becoming a resident
Difficult decisions :
Wandering
Driving
Money
Self care
Respect
Living with change
Complicated emotions
End of life
Advice to other carers :
Advice to other carers
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Carers of people with dementia
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Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 11
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Thinks the advice and support from good friends and the Alzheimer's Society have been invaluable.
She managed for a time to care for her mother in her own home which was nearby but eventually had to agree to her going into a nursing home.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 50
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Explains that he has picked up most practical information from other carers.
Developed symptoms in her sixties and guessed herself what it was. Dementia progressed but Alzheimers was never actually confirmed. Separation difficulties with day care but easy transfer to residential care. Was treated with tegretol because she developed epilepsy.
Nerves & brain
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Carers of people with dementia
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Women caring for partners
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Interview 16
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Explains the value of the practical information and support from other carers in the Alzheimer's Society.
He was cared for at home for 7 years. When things got really difficult he spent 18 months in residential care after which his wife was able to bring him home again with the additional support of either a live-in carer, or two live-in carers in rotation - working alternate weeks.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 31
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Denying carers important support by not giving them any information about for example the Alzheimer's Society.
He gave up work to be a full time carer but when she took to her bed for several months it was decided that she needed residential care. As she refused, it was necessary to section her to make the transfer possible.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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Has found the Alzheimer's Society a great support, although he and his wife are usually fairly insular people.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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Regrets not having joined the Alzheimer's Society earlier.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 33
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Explains that he felt that the people from the Alzheimer's Society were helpful because they understood more about dementia, and were more friendly, t
His wife developed multi-infarct dementia. He cared for her at home for about 6 years. When she went into residential care it took a long time for her to settle. She died in the nursing home.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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Initially they found a fair amount of information themselves. Looking back he thinks they should have joined the Alzheimer's Society earlier.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 15
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Alzheimer's Society gave advice about how to inspect residential care homes.
Her mother had been an independent widowed woman. They had hoped when they were able to move her nearby that this arrangement would be adequate for several years but before long she had to go into residential care.
Nerves & brain
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Carers of people with dementia
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Women caring for partners
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Interview 25
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Found an Alzheimer's Society booklet on caring for someone with dementia very useful.
Cared for by his wife at home. Was terrified when left in respite care so wife removed him within hours. Developed Parkinsons disease. Was admitted to hospital for assessment and subsequently transferred to residential care.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 46
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Did not at first want to ask for help, but finds that other carers can understand each others problems.
When brain scan was found to be normal was admitted for a week's assessment. Diagnosed as having Pick's disease (fronto-temporal dementia) Cared for at home, with day care and regular residential respite, finally in residential care.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 08
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Advises others to get information as soon as possible after the diagnosis.
He felt he had to fight to get the care she needed when she needed it. Indignant that medication was refused on grounds of cost but did persuade GP to give Aricept though he admits it didn't do her any good. Life is very lonely since she died.
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