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Nerves & brain
Carers of people with dementia
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Diagnosis :
Suspicions - early signs of dementia
Signs of dementia
Deterioration, severe dementia
Making the diagnosis
Tests
Getting the diagnosis
Genetic testing
Ideas about causes of dementia
Treatment :
Treatment for Alzheimer's disease
Relieving symptoms
Strategies- some suggestions from carers
Becoming a carer :
Becoming a carer
Caring from a distance
Friends and family
Sources of support
Assessments and care plans
Home carers
Day care and respite
Problems with provision
Looking for information
Residential care :
Arranging residential care
Becoming a resident
Difficult decisions :
Wandering
Driving
Money
Self care
Respect
Living with change
Complicated emotions
End of life
Advice to other carers :
Advice to other carers
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Carers of people with dementia
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Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 09
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It would have been hard to predict how dementia would affect her mother. Wishes she could have alleviated her agitation.
Her mother, a strong minded widow, bitterly resisted surrendering her freedom and finally had to be sectioned before being transferred to residential care. She died recently twenty years after the first signs of her dementia, in a nursing home.
Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 09
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Her mothers care plan did not work when the day centre, and eventually the home carers, said they could not cope with her.
Her mother, a strong minded widow, bitterly resisted surrendering her freedom and finally had to be sectioned before being transferred to residential care. She died recently twenty years after the first signs of her dementia, in a nursing home.
Nerves & brain
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Carers of people with dementia
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Caring for parents
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Interview 09
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Feels her mother's restlessness and agitation was caused by her attempt to bring order to the chaos in her mind.
Her mother, a strong minded widow, bitterly resisted surrendering her freedom and finally had to be sectioned before being transferred to residential care. She died recently twenty years after the first signs of her dementia, in a nursing home.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 38
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Found a home which suited his partner who had had to be sectioned because of his agitated behaviour.
Cared for at home with help of friends, relatives and neighbours while carer worked part time. Treated with Aricept and Rivastigmine. Admitted for respite care in 2000 and never returned home after that.
Nerves & brain
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Carers of people with dementia
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Women caring for partners
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Interview 23
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Describes how she came to accept that her partner needed some sedation.
Has been able to cope with caring for him at home. He attends a day centre and he has regular respite care. Doesn't feel ready to consider full time residential care for him but has felt it necessary to look out for homes which might be suitable.
Nerves & brain
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Carers of people with dementia
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Men caring for partners
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Interview 07
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Describes how he tailors his wife's sedation according to her condition at the time.
Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benifited from sedatives and sleeping tablets.
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