Interview 38  

Interview 38

Age at Interview: 52
Sex: Male
Age at Diagnosis: 53
Background: Same sex couple together 34 years. Carers occupation: Medical Laboratory Manager. Patients occupation: Industrial Components, own business.

Brief outline:Cared for at home with help of friends, relatives and neighbours while carer worked part time. Treated with Aricept and Rivastigmine. Admitted for respite care in 2000 and never returned home after that.


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Male
Thinks that too much profit is being made by the private agencies, who do not train or pay their staff well.

 



Carers who used to come in weren't really trained, they were thrown in almost immediately you said. Do you think this reflects society's attitude towards people with dementia?

No. I think it's, it's not just dementia, to any disability. I just, it's to do with putting out care in the community, physical care to, these small companies rather, rather than the council, the council. It used to be a council responsibility didn't it? And they don't seem to have the necessary training, and not necessarily the right sort of people because the pay levels are so abysmal. 

When you think how much our, one is paying or social services are paying for these, for these people and how much the, the, and how much the individual's getting as an employee the profit margin strikes one as pretty exorbitant. But what struck me as odd is, perhaps naïve, why social services weren't taking that cut and training the people themselves. 

Surely, there's such a big profit margin there must be room, you know, to do that. And it's only, no, no, it's something like £10 an hour they were paying, I can't remember, I really can't remember but I know that the people actually doing the work were getting £3.80, the government minimum. And that seemed pretty poor.  

Jonathan Miller - Dementia
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