I've had to tell various people that she's got dementia in order to for instance to sort out her financial affairs. And it's not something that's unknown in society and most of these places it's simply an operational reason for them to change things and so that's it. I've never felt unwilling to explain to other people that my mum's got dementia. I think at work I've told some people and I haven't told others.
So I try and respect her privacy in that sense, I'll only tell somebody if I feel it's necessary for them to know in order to explain for instance why I'm not there or can't do something. I suppose I use it as a justification in those terms which might be slightly wrong. But no I've not really felt that it was a, it was a problem.
Because looking after somebody with dementia is a team based activity and that requires a lot of people with a lot of different skills and I think then, it's, it's often means that you know the details of the illness and problems are more widely known maybe than another disease. But then you can argue that the person, the patient themselves doesn't mind. Now that's difficult because obviously ethically it doesn't matter what they think, it's a bit like psychiatric illnesses and just because a patient doesn't appreciate there's an ethical issue involved doesn't absolve us from taking responsibility for that. I think again I've been so sort of wrapped up in the emotional caring and financial and organisational issues that it's not been at the top of my list of priorities I have to say. But it's an interesting question now you've raised it. I would also feel that that looking after came first, and I'd worry about the ethical issues afterwards. But that's, that is a pragmatic view which might be mine rather than other people's.