Interview 39  

Interview 39

Age at Interview: 52
Sex: Female
Age at Diagnosis: 46
Background: Wife with 2 young children caring for her husband who developed frontal lobe dementia while in his forties. Diagnosed in 1994. Occupation of patient: Ammunition Specialist in the Army.

Brief outline:Dismissed unexpectedly from the Army where he worked on chemical defence. Unable to get a new job. Diagnosis took about 3 years. Wife worked 1 day a week, and cared for him and children. Difficult finding appropriate care. Died while in residential care.


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Her husbands eccentric approach to washing was upsetting for all the family.

 



He would quite often be wandering around with nothing on. He got to the stage where he didn't really register, although he was never incontinent at home, he was quite happy to go and stand out of the door and urinate outside. He couldn't see why he shouldn't.

He used to shave, he was very much into hygiene and keeping clean, he used to have a bath three or four times a day. He had a fairly fixed routine. He used to get up about half past five, cycle down to the swimming pool, swim, cycle back, have a bath; have breakfast and go for a walk, come home have a bath. Maybe mow the lawn and gradually, although he continued to mow the lawn until quite late, he, he mowed everything in the garden. He would lift the mower up and put it down on top of bushes. And then he'd go and have a bath.

And it got to the stage that I kept the hot water running all the time because you couldn't persuade [my husband], if [my husband] wanted to have a bath five times a day then you couldn't persuade him that he'd just had one and he didn't need one. And if the water wasn't hot then he would run a cold one and say 'I can't get in that it's cold, what's wrong with the hot water?'

So, although all of it sounds quite funny, at the time it was soul destroying, watching [my husband] go down hill, trying to keep the family together, trying to keep the children on, learning to read, learning to write, in tune with the world, having some friends. [My husband] used to shave and he shaved the back of his neck because he had a very hairy neck and gradually the amount that he shaved crept up so that at the end he just had a little bit of hair on the top of his head and he'd shaved all the rest.  And people used to think that was very eccentric, the children got teased at school because of [my husband]'s hair.

Jonathan Miller - Dementia
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