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Finding Information

• Dying & bereavement >> Living with Dying >> Finding information >> Finding information

Finding Information

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• Dying & bereavement >> Living with Dying >> Age 51-60 >> Interview 37 >> She was glad to be alone when given the bad news.

Ovarian cancer diagnosed in 1998 following breathing and bladder problems, weight gain and bloating, and changed bowel habits. Treated by surgical removal of both ovaries and abdominal fluid, chemotherapy, then hysterectomy and further chemotherapy.

• Dying & bereavement >> Living with Dying >> Age 61-70 >> Interview 21 >> He doesn't want to know exactly how many years he has left to live.

Developed symptoms in December 2001, diagnosed with oesophageal cancer in December 2002, treated with chemotherapy to shrink the tumour, followed by surgery in May 2003.

• Dying & bereavement >> Living with Dying >> Age 51-60 >> Interview 08 >> John Diamond's book 'Because Cowards get cancer too' helped and inspired her.

Diagnosed with breast cancer in 2001, with secondary tumours in the brain, liver and hip. Treated with steroids, radiotherapy and tamoxifen.

• Dying & bereavement >> Living with Dying >> Age 30-50 >> Interview 13 >> She questions health professionals and patients about their opinions on treatments.

Diagnosed with breast cancer in 1995, followed by lumpectomy, chemotherapy and radiotherapy. Secondary tumours (metastases) diagnosed in 2000.

• Dying & bereavement >> Living with Dying >> Age 61-70 >> Interview 27 >> He and his doctor learnt a lot from information from the national association for multiple sclerosis.

Diagnosed with secondary progressive multiple sclerosis, which has been treated with pain relief and other symptom control.

• Dying & bereavement >> Living with Dying >> Age 30-50 >> Interview 01 >> He wishes the doctors had spent more time explaining what was wrong.

Diagnosed with a brain tumour and epilepsy in 2002. Had a craniotomy, followed by radiotherapy.

• Dying & bereavement >> Living with Dying >> Age 30-50 >> Interview 01 >> He thinks that the best source of information is the internet.

Diagnosed with a brain tumour and epilepsy in 2002. Had a craniotomy, followed by radiotherapy.

• Dying & bereavement >> Living with Dying >> Age 51-60 >> Interview 19 >> His wife recalls how she learnt about the symptoms of mesothelioma on the internet.

Diagnosed with mesothelioma in April 2003, followed by left extra-pleural pneumonectomy (left lung removed, together with chest lining, diaphragm, and lining round the heart, and replaced with Gore-Tex).

• Dying & bereavement >> Living with Dying >> Age 51-60 >> Interview 09 >> He uses the internet to find information, especially hospital sites, where he found a video of a surgical procedure he was to have.

Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.

• Dying & bereavement >> Living with Dying >> Age 61-70 >> Interview 21 >> He suggests that doctors and nurses are now more willing to explain things than they were in the past.

Developed symptoms in December 2001, diagnosed with oesophageal cancer in December 2002, treated with chemotherapy to shrink the tumour, followed by surgery in May 2003.

• Dying & bereavement >> Living with Dying >> Age 61-70 >> Interview 21 >> Suggests that there should be a named person who could help obtain information.

Developed symptoms in December 2001, diagnosed with oesophageal cancer in December 2002, treated with chemotherapy to shrink the tumour, followed by surgery in May 2003.

• Dying & bereavement >> Living with Dying >> Age 30-50 >> Interview 32 >> She says that information is important because it allows her to work with her medical team.

Diagnosed with colorectal cancer in 2001, followed by anterior resection of the colon and chemotherapy In 2003 secondary tumour found in the liver, followed by a liver section. Has also used complementary therapies.