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Living with Dying
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Discovery :
How bad news was broken
Own reaction to hearing that life would be shorter
Finding information
Roller coaster feelings
Talking to children
Medical, Nursing & Social Care :
Hospital care
Pain and pain control
Care at home: social services
Care at home: nursing
The needs of carers
Hospice in-patient care
Hospice day care
Insufficient hospice care
Complementary and alternative approaches
Living with dying :
Positive aspects of life threatening illness
Religion, faith and philosophy
Financial help
Support and counselling
Where people want to die
Message to health,social care workers and government
Message to others
Advance decision ("living wills")
Thoughts about suicide, assisted dying and euthanasia
Practical matters
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Living with Dying
Subject index
Clip
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 09
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Describes how he came to terms with death, dying and talking about death.
Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 22
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When her husband was dying she was given a bed in the same room so she could be with him when he died.
Had two sub-arachnoid haemorrhages in 1993 and then developed hydrocephalus. Had a shunt inserted in 1994, which was "revised" (removed and replaced) in 2000.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 08
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She found the staff very supportive and enjoyed the activities but found it hard watching others deteriorate.
Diagnosed with breast cancer in 2001, with secondary tumours in the brain, liver and hip. Treated with steroids, radiotherapy and tamoxifen.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 23
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Staff and patients have helped her to come to terms with illness and with death.
Breast cancer diagnosed in 2001, followed by a mastectomy, radiotherapy and chemotherapy
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 25
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Suggests that hospice care would allow her to die with dignity.
Diagnosed with end stage Chronic Obstructive Pulmonary Disease in 1986. Also has early heart failure and severe osteoporosis, and is treated with medication, a nebuliser and oxygen.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 25
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She would like access to a hospice to receive good pastoral care.
Diagnosed with end stage Chronic Obstructive Pulmonary Disease in 1986. Also has early heart failure and severe osteoporosis, and is treated with medication, a nebuliser and oxygen.
Dying & bereavement
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Living with Dying
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Age 81-90
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Interview 38
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Says that death is part of life and that we should accept death without fear.
Diagnosed with bladder cancer in 2001, and unsuccessfully treated with a bladder infusion of BCG. Offered radiotherapy but declined because it was thought that treatment might affect mobility (due to polyneuropathy diagnosed in 1994).
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 21
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He doesn't believe in life after death and feels at peace with the idea that his body will decay and contribute to new life as part of a natural proce
Developed symptoms in December 2001, diagnosed with oesophageal cancer in December 2002, treated with chemotherapy to shrink the tumour, followed by surgery in May 2003.
Dying & bereavement
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Living with Dying
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Carers
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Interview 40
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Her father was afraid of dying and she found it hard to comfort him because he didn't have faith in any religion.
Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 25
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Counselling helped her to talk about her fear of death and dying.
Diagnosed with end stage Chronic Obstructive Pulmonary Disease in 1986. Also has early heart failure and severe osteoporosis, and is treated with medication, a nebuliser and oxygen.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 15
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She likes the idea of a pill she could take to end her life if she were in pain and clearly dying.
Breast cancer diagnosed in 1992, followed by a lumpectomy and radiotherapy. Sarcoma diagnosed in 2000, followed by double mastectomy.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 09
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If he loses his ability to communicate he does not want to be revived and he wants a peaceful death.
Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 31
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Thinks that euthanasia is a very complex issue and that every case should be judged on its own merit.
Diagnosed with non-Hodgkin's lymphoma in January 2003, (particularly affecting the right lung), followed by chemotherapy.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 09
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He has put together a bottle of pills so that he can end his life if it becomes unbearable.
Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 17
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Describes her mother's final illness and hopes that the law will change to allow euthanasia so that she can die with dignity.
Diagnosed with cancer of the kidney in 2001, with metastases in the lung and bone. Treated with surgery, Interferon, and radiotherapy (to bone), and also complementary therapy.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 21
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Discusses the complex moral issues involved in euthanasia.
Developed symptoms in December 2001, diagnosed with oesophageal cancer in December 2002, treated with chemotherapy to shrink the tumour, followed by surgery in May 2003.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 02
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Having seen others die she hopes that when she nears death she will be able to end her life with someone else's help.
Diagnosed with breast cancer in 2001, lumpectomy, followed by radiotherapy and chemotherapy
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 16
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He believes that pain can be controlled and that euthanasia is the “next stop to murder”.
Diagnosed with prostate cancer in 2001, followed by surgery, radiotherapy and hormone treatment.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 06
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He would like to believe that there is something after death but wonders if he is 'clutching at straws'.
Diagnosed with Multiple System Atrophy in 2000.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 11
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She is a Christian and looks forward to life after death.
Diagnosed in 1993 with lymphoma, treated with chemotherapy, and then developed heart failure.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 22
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She is a Christian and believes that at death the spirit leaves the body.
Had two sub-arachnoid haemorrhages in 1993 and then developed hydrocephalus. Had a shunt inserted in 1994, which was "revised" (removed and replaced) in 2000.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 18
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He believes in life after death and thinks that we should pray for the grace to have no fear.
Diagnosed with bladder cancer and prostate cancer in 2001, followed by transurethral resections in 2001 and 2002, and then a prostatectomy and cystectomy (removal of bladder) and urostomy in 2002.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 32
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Thinks that great comfort can be drawn from other religions even if you are not religious.
Diagnosed with colorectal cancer in 2001, followed by anterior resection of the colon and chemotherapy In 2003 secondary tumour found in the liver, followed by a liver section. Has also used complementary therapies.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 31
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Says that people live after death through their genes and because they influence the way others live their lives.
Diagnosed with non-Hodgkin's lymphoma in January 2003, (particularly affecting the right lung), followed by chemotherapy.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 31
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He would prefer to die at home but wouldn't like to be a burden on the family and would consider a hospice.
Diagnosed with non-Hodgkin's lymphoma in January 2003, (particularly affecting the right lung), followed by chemotherapy.
Dying & bereavement
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Living with Dying
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Age 81-90
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Interview 07
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She decided to stay at home as long as possible.
Breast cancer diagnosed in 1985 followed by lumpectomy and then mastectomy. In 1987 cancer was diagnosed in other breast, followed by lumpectomy. In 2002 metastases were found in liver, lungs and bones.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 01
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He wants to die at home because it will be easier for family and friends to visit.
Diagnosed with a brain tumour and epilepsy in 2002. Had a craniotomy, followed by radiotherapy.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 23
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She would prefer to die in the hospice, where she had experienced good care, love, and laughter.
Breast cancer diagnosed in 2001, followed by a mastectomy, radiotherapy and chemotherapy
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 32
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She would not want to be a burden on the family if she were desperately ill.
Diagnosed with colorectal cancer in 2001, followed by anterior resection of the colon and chemotherapy In 2003 secondary tumour found in the liver, followed by a liver section. Has also used complementary therapies.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 15
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She would prefer to die in a hospice for a number of reasons.
Breast cancer diagnosed in 1992, followed by a lumpectomy and radiotherapy. Sarcoma diagnosed in 2000, followed by double mastectomy.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 14
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He wants to die at home in the peace and comfort of his own surroundings.
Diagnosed with prostate cancer with metastases in 2001. Treated with hormone treatment, and radiotherapy and is about to start a clinical trial.
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