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Living with Dying
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Full list of topics
Discovery :
How bad news was broken
Own reaction to hearing that life would be shorter
Finding information
Roller coaster feelings
Talking to children
Medical, Nursing and Social Care :
Hospital care
Complementary and alternative approaches
Pain and pain control
Care at home
Care at home: social services
Care at home: nursing
The needs of carers
Hospice care
Hospice in-patient care
Hospice day care
Insufficient hospice care
Living with dying :
Positive aspects of life threatening illness
Religion, faith and philosophy
Financial help
Support and counselling
Where people want to die
Message to health,social care workers and government
Message to others
Advance directives ("living wills")
Thoughts about suicide, assisted dying and euthanasia
Practical matters
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Living with Dying
Subject index
Clip
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 09
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A man was open about his poor prognosis and that seemed to help his doctors.
Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 27
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He was given the diagnosis very brusquely but felt better when another doctor explained exactly what was wrong.
Diagnosed with secondary progressive multiple sclerosis, which has been treated with pain relief and other symptom control.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 19
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He was shocked to hear that major surgery might prolong his life but would not provide a cure.
Diagnosed with mesothelioma in April 2003, followed by left extra-pleural pneumonectomy (left lung removed, together with chest lining, diaphragm, and lining round the heart, and replaced with Gore-Tex).
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 28
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Her teenage children knew she was ill but not about all the implications.
Diagnosed with breast cancer in left breast in 1998, followed by lumpectomy, then mastectomy and reconstructive surgery. In 2000 secondary tumours found in other breast, liver, bones and lung, treated with chemotherapy, radiotherapy and hormone treatment.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 01
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Suggests that young children don't need too much information at a time.
Diagnosed with a brain tumour and epilepsy in 2002. Had a craniotomy, followed by radiotherapy.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 37
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She was glad to be alone when given the bad news.
Ovarian cancer diagnosed in 1998 following breathing and bladder problems, weight gain and bloating, and changed bowel habits. Treated by surgical removal of both ovaries and abdominal fluid, chemotherapy, then hysterectomy and further chemotherapy.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 35
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She was angry and upset that she was told the diagnosis when alone in hospital.
Diagnosed with multiple myeloma and AL amyloidosis in 2002, treated with chemotherapy
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 13
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She worries that she has painted a picture of the situation for her children that is too positive.
Diagnosed with breast cancer in 1995, followed by lumpectomy, chemotherapy and radiotherapy. Secondary tumours (metastases) diagnosed in 2000.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 15
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With hindsight she thinks she could have explained the situation better.
Breast cancer diagnosed in 1992, followed by a lumpectomy and radiotherapy. Sarcoma diagnosed in 2000, followed by double mastectomy.
Dying & bereavement
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Living with Dying
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Carers
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Interview 40
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It is very difficult if other family members are told the diagnosis before the patient.
Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 31
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He suggests factors that should be considered when talking to children about serious illness.
Diagnosed with non-Hodgkin's lymphoma in January 2003, (particularly affecting the right lung), followed by chemotherapy.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 09
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Suggests that school teachers can use books and videos to help children to understand and deal with bad news.
Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 13
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The breast care nurse helped to explain things to the children.
Diagnosed with breast cancer in 1995, followed by lumpectomy, chemotherapy and radiotherapy. Secondary tumours (metastases) diagnosed in 2000.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 02
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Before explaining the situation to her sons she decided to get advice from a counsellor at the local hospice.
Diagnosed with breast cancer in 2001, lumpectomy, followed by radiotherapy and chemotherapy
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 41
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She was very upset when the Macmillan nurse was called into the room.
Ovarian cancer diagnosed in 1993 after requesting a health check (no symptoms experienced). Treated with hysterectomy then chemotherapy. Recurrence after 10 years treated with chemotherapy.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 17
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She was glad to have honest answers to her questions but would have liked to have some positive suggestions.
Diagnosed with cancer of the kidney in 2001, with metastases in the lung and bone. Treated with surgery, Interferon, and radiotherapy (to bone), and also complementary therapy.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 20
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By the time he was told that he had a terminal illness he was ready to accept it.
Diagnosed with cancer of the pancreas in 2001, followed by surgery and chemotherapy. After having had some chemotherapy he decided to try an alternative therapy, apricot seeds.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 32
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She was shocked when the consultant gave her bad news and then said that he had the wrong notes by mistake.
Diagnosed with colorectal cancer in 2001, followed by anterior resection of the colon and chemotherapy In 2003 secondary tumour found in the liver, followed by a liver section. Has also used complementary therapies.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 26
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She found it hard to tell her children about her illness.
Diagnosed with colorectal cancer in 2002, followed by surgery and chemotherapy.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 32
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Says it was important to keep her teenage daughter informed all the way through her illness.
Diagnosed with colorectal cancer in 2001, followed by anterior resection of the colon and chemotherapy In 2003 secondary tumour found in the liver, followed by a liver section. Has also used complementary therapies.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 32
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Explains that children need time to adjust to serious illness in the family.
Diagnosed with colorectal cancer in 2001, followed by anterior resection of the colon and chemotherapy In 2003 secondary tumour found in the liver, followed by a liver section. Has also used complementary therapies.
Topic
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Living with Dying
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How bad news was broken
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How bad news was broken
How bad news was broken
Dying & bereavement
>>
Living with Dying
>>
How bad news was broken
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How bad news was broken
How bad news was broken
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