National Health Information and Support Sources
Please click on the link below for our list of national health information and support sources.
www.healthtalkonline.org/Page/National_Health_Information
The National Council for Palliative Care
www.ncpc.org.uk
enquiries@ncpc.org.uk
Tel Normal: 020 7697 1520
The Fitzpatrick Building, 188-194, York Way, London N7 9AS
Is the umbrella organisation for all those who are involved in providing, commissioning and using hospice and palliative care services in England, Wales & Northern Ireland. It promotes the extension and improvement of palliative care services regardless of diagnosis in all health and social care settings and across all sectors to government, national and local policy makers.
BBC- bereavement
www.bbc.co.uk/health/emotional_health/bereavement/
Provides information on the experience of bereavement and advice on ways to come to terms with loss.
Hospice Information
www.hospiceinformation.info
info@helpthehospices.org.uk
Tel: 020 7520 8222
Hospice Information is a joint venture between Help the Hospices and St Christopher's Hospice. It claims to provide a comprehensive information service for everyone interested in and connected with hospice and palliative care in the UK and overseas. It produces a range of leaflets available to the public, reports, factsheets, newsletters and a magazine.
Scottish Partnership for Palliative Care
www.palliativecarescotland.org.uk
office@palliatvecarescotland.org.uk
Tel: 0131 229 0538
1a Cambridge Street, Edinburgh EH1 2DY
The Scottish Partnership for Palliative Care is the national umbrella body for palliative care in Scotland. It brings together NHS bodies and voluntary and professional organisations to promote better understanding of palliative care, to make it available to all those who need it, and to improve standards of care for patients and families.
National Association of Complementary Therapists in Hospice and Palliative Care
www.nacthpc.org.uk
nacthpc@hotmail.com
Tel: 01895 464824
Aims to promote a greater understanding of the use of complementary therapies to enhance the quality of life of people living with progressive illness, and to support complementary therapists in their care.
Get Palliative Care (US)
www.getpalliativecare.org
An American site that provides Information for patients and families coping with serious, complex illness including a palliative care Provider Directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organisations in the USA.
Growth House
www.growthhouse.org
info@growthhouse.org
A US site based in San Francisco which can refer users to other resources for people living with life-threatening illness and end of life care. Runs an on-line bookshop and research library.
British Heart Foundation
www.bhf.org.uk
Tel: 0300 330 3311 Mon-Fri 9am-5pm.
The British Heart Foundation (BHF) is the leading national charity fighting heart and circulatory disease - the UK's biggest killer. The BHF funds research, education, life-saving equipment and helps heart patients return to a full and active way of life.
British Holistic Medical Association
www.bhma.org
admin@bhma.org
Tel: 0)1278 722 000
An organisation that aims to link holistic and medical practitioners so they can discuss their work and improve practice on holistic lines. Produces self-help tapes about relaxation, breathing, meditation imagery and coping with pain.
Buddhist Hospice Trust
www.buddhisthospice.org.uk
help@buddhisthospice.org.uk
Phone/text 07951 869265
Provides emotional support and spiritual care from a Buddhist perspective, for those who are dying or bereaved. Offers seminars and study weekends. Runs a national network of Buddhist volunteers, the Ananda Network, who will visit the dying and bereaved.
Cancerhelp UK
www.cancerhelp.org.uk
Tel: 0808 800 4040 9am until 5pm Monday to Friday
Cancer Help UK is a free information service about cancer and cancer care, for people with cancer and their families provided by Cancer Research UK. A very thorough site that covers all the major cancers with lots of medical information. It includes information about different cancers, diagnosis, treatment, living with it, as well as publications, help organisations and other websites. Its information is informative and easy to read.
Child Bereavement Charity
www.childbereavement.org.uk
enquiries@childbereavement.org.uk
Tel: 01494 446648
The Child Bereavement Charity provides specialised training and support for professionals to improve their response to the needs of bereaved families and produces resources and information for children and families and all the professionals who come into contact with them in the course of their work.
Childhood Bereavement Network
www.ncb.org.uk/cbn
cbn@ncb.org.uk
Tel: 020 7843 6309
Part of the National Children's Bureau. Among other things it provides lists of local support groups for children and families facing bereavement. (Local bereavement groups for children include: SeeSaw, Bush House, 2 Merewood Avenue, Headington, Oxford OX3 8EF. Telephone 01865 744768; Noah's Ark (Worcestershire), tel: 01905 745735: Daisy's Dream (Berkshire) tel: 0118 934 2604.)
Counsel and Care
www.counselandcare.org.uk
advice@counselandcare.org.uk
Tel: 0845 300 7585
A national charity offering free and confidential advice to older people, their relatives and professionals about community care, hospital discharge procedures, funding for suitable accommodation.
Cruse Bereavement Care
www.crusebereavementcare.org.uk
Tel: 0844 4779400
Offers bereavement support, advice and information to anyone bereaved by death. Many publications and useful leaflets. Offers social contact as well as support services to bereavement groups.
Leonard Cheshire
www.leonard-cheshire.org
info@LCDisability.org
Tel: 020 3242 0200
Leonard Cheshire is the leading provider of care and support for disabled people and people with learning difficulties. It provides care at home, independent living units, day care, respite care and residential homes.
Macmillan Cancer Support
www.macmillan.org.uk
cancerline@macmillan.org.uk
Tel: 0808 808 0000
National charity offering specialist treatment information and care, to people with cancer and their families, including grants for cancer patients in financial need and specialist cancer nurse. Macmillan merged with Cancerbackup in 2008. Together they provide quality assured, up-to-date cancer information, written by specialists for patients, relatives and carers.
Motor Neurone Disease Association
www.mndassociation.org
helpline@mndassociation.org
Tel: 08457 626262
The Motor Neurone Disease Association is an independent charity, with a national office in Northampton and over 80 local branches nationwide. It is a founder member of the International Alliance of ALS/MND Associations which provides a forum for support and the exchange of information between the worldwide associations.
Multiple Sclerosis Society
www.mssociety.org.uk
info@mssociety.org.uk
Tel: 0808 800 8000
The Society funds MS research, runs respite care centres, provides grants, education and training on MS. It produces numerous publications on MS and runs a freephone specialist helpline. .
Natural Death Centre
www.naturaldeath.org.uk
NDC@AlberyFoundation.org
Tel: 0871 288 2098
Natural Death Centre provides some information on the website about preparing for death and organising funerals (including info about woodland burials, biodegradable coffins and family-organised funerals). It produces a Good Funeral Guide which gives the names of the best undertakers, cemeteries, crematoria and coffin suppliers.
Parkinson's Disease Society
www.parkinsons.org.uk
enquiries@parkinsons.org.uk
Tel: 0808 800 0303
Provides support, advice and information to people with Parkinson's, their carers, families and friends, and to health and social services professionals involved in management and care.
Penny Brohn Cancer Care (was Bristol Cancer Help Centre)
www.bristolcancerhelp.org
info@bristolcancerhelp.org
Tel: 0845 123 2310
Specialist organisation providing information about the Bristol Approach to cancer care for those with cancer and their carers. The Bristol Approach works hand-in-hand with medical treatment, using complementary therapies and self-help techniques to support people physically, emotionally and spiritually. Runs courses for people with cancer.
RD4U means the 'road for you'
www.rd4u.org.uk
info@rd4u.org.uk
Tel Free: 0808 808 1677 Monday - Friday, 9:30 am - 5:00 pm
Cruse has also developed a special website -RD4U -for young people who are/have experienced bereavement. RD4U is designed for young people by young people. It is part of Cruse Bereavement Care's Youth Involvement Project and aims to provide support after the death of someone close and to let young people find their own way of dealing with bereavement.
RipRap
www.riprap.org.uk
Riprap is a website project based at the Department of Palliative Medicine, University of Sheffield. it enables children and young people to share their experiences and thoughts about living with a parent with cancer.
Roy Castle Lung Cancer Foundation
www.roycastle.org
Tel: 0151 254 7200
Provides information about lung cancer and organises patient support groups throughout the UK.
Sue Ryder Care
www.suerydercare.org
Tel: 0845 050 1953
The Sue Ryder organisation runs 18 care centres in Britain for patients with different disabilities and diseases. Care of those with cancer, HIV, Parkinson's Disease, Motor Neurone Disease, MS, Huntington's Disease and people with Acquired Brain Injury may be eligible for Sue Ryder care.
Terrence Higgins Trust
www.tht.org.uk
infor@tht.org.uk
Tel: 0845 122 1200
THT is the leading HIV & AIDS charity in the UK and the largest in Europe. It was one of the first charities to be set up in response to the HIV epidemic and has been at the forefront of the fight against HIV & AIDS ever since. THT delivers health promotion campaigns, national services and local services directly to people with or affected by HIV and people at risk from centres across England and Wales.
Winston's Wish
www.winstonswish.org.uk
info@winstoonswish.org.uk
Tel: 0845 20 30 405
Winston's Wish helps bereaved children and young people rebuild their lives after a family death. It offers practical support and guidance to families, to professionals and to anyone concerned about a grieving child.
