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Living with DyingArrow
Age 51-60
Interview 35  

Interview 35

Age at Interview: 56
Sex: Female
Age at Diagnosis: 55
Background: PR Executive, Widow, 2 children
Brief outline:Diagnosed with multiple myeloma and AL amyloidosis in 2002, treated with chemotherapy


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The nurses at the hospital gave her advice about Disability Living Allowance, which she found an enormous help.

 



The Macmillan nurse immediately came to see me to talk to me about what chemotherapy might be and what the nursing care would be and was exceedingly helpful. 

Both places were exceedingly helpful in getting straight on to ordering a blue badge for the car so that when your bit of an old crock as I am you have a disabled badge in the car and also benefits that might be available to you. 

I immediately applied for, on their advice, and got Disability Living Allowance, which is not means tested and is an enormous help in paying for the extra help that you need in the house or this and that. I bought a wheelchair straight off and it was about £100. That was an extremely useful thing to have because you need to conserve your energy for seeing friends or going out, whatever, and in the early days when I couldn't walk very much at all because I'd been in hospital for so long that the muscles in my legs rather wasted away, so I had that problem as well as the just general lack of energy and the wheelchair meant I could go out and about and people could come and pick me up complete with wheelchair and take my blue badge in their car and life could go on as near as normal.  

That sort of information was wonderful. I hope all the hospitals give it.
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