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Intensive care
Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
Topic
Intensive care
>>
Intensive care: experiences of family & friends
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Suspending normal routines: visiting ICU every day
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Suspending normal routines: visiting ICU every day
Suspending normal routines: visiting ICU every day
Clip
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 26
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She recorded music that her sister-in-law enjoyed and was very impressed when she saw one of her sister-in-law's visitors singing to her while she was
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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Her husband's mother sat at her son's bedside so she could go back home, organise child care and make other practical arrangements before returning to
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 35
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She was very honest with her two young daughters about their grandmother's illness and about how serious it was.
Her mother was admitted to ICU because of gallstones and other complications. She visited her every day, often with her two young daughters, and kept a diary.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 08
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He and his son talked with ICU nurses and decided to let his son's nine-year-old and seven-year-old children visit their grandmother.
His wife was admitted to ICU after having complications during emergency surgery. During her time in hospital he had a lot of support from family and his local community.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 28
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Her daughter's and son-in-law's house was exactly as they'd left it the day they had a car accident and she stayed there until they started improving.
Her daughter was admitted to a ward and her son-in-law to ICU after they had a car accident. She stayed in their home so she could visit.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 36
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He felt visitors shouldn't have to worry about parking when they have a relative in intensive care.
His father went to ICU after having a stroke and developing pneumonia. Members of the family supported one another and he is now closer to his sister.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 10
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She found waiting to be let into ICU stressful, especially when her partner was first admitted, and felt his parents probably ended up waiting longer
In 2006 her partner was diagnosed with Weil's disease, a rare bacterial infection. She stayed at the hospital for five nights and then in a nearby hotel.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 18
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Her friend's son didn't understand how seriously ill his mother was until afterwards and stayed with his grandparents during that time.
Her best friend spent two weeks in ICU. She was the closest person to her, visited her daily and is now her main carer.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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She spent all day in intensive care and would come home briefly to spend some time with her new baby, who was being looked after by her mother.
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 19
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When her brother had been in ICU for two weeks, she let her two children visit him in case he didn't survive or improve.
Her brother had an accident while cleaning his motorbike. He had severe head injuries and spent almost four weeks in ICU, where she visited him daily.
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 34
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She stayed at the hospital for a week and felt that, by being there and holding her partner's hand, she was doing some good.
Her partner had cancer of the kidney and was admitted to ICU after surgery. She visited daily and stayed in hospital overnight for a week.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 17
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She downplayed her husband's illness to her daughters because she didn't want hospital visiting to take over their lives as well.
Her husband was admitted to ICU because of a brain aneurysm. She spent eight weeks visiting him in two different hospitals, sometimes staying overnight.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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Her mother looked after her two younger children which meant that she, her husband and in-laws could visit ICU every day so her son would always have
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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She felt that visitors were supportive of each other and, because her son was so young, she received enormous support as well.
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 19
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No one in the family went to work, school or university during the first week because they felt they had to be at the bedside, even if there was nothi
Her brother had an accident while cleaning his motorbike. He had severe head injuries and spent almost four weeks in ICU, where she visited him daily.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 30
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When other visitors asked him questions, it reinforced for him just how important it was for doctors to communicate clearly.
His father died in ICU, aged 83. Being an intensive care doctor, he was able to provide information and support to his mother and brother.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 35
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As well as visiting ICU she tried to keep life as normal as possible for her children and, somehow, found the energy to do both.
Her mother was admitted to ICU because of gallstones and other complications. She visited her every day, often with her two young daughters, and kept a diary.
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 26
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Many of the visitors she saw in the relatives' room were understandably wrapped up in their own crises, and she often sat and read a book until she wa
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 23
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During the day he or his partner's parents were always at the bedside and, overnight, he slept on a chair so that he could be with her.
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 24
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The relatives' room wasn't really big enough and you couldn't make yourself a drink.
Her mother had cardiac arrest. She spent nine days in ICU and now lives with her daughter. She received a lot of support from her family.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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His wife's time in ICU felt like a roller coaster because she kept improving and deteriorating, but he, his son and daughter spent as much time as the
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 16
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She and her husband tried to keep everything as normal as possible and celebrated Christmas at the hospital, involving other visitors and ICU nurses.
She cares for her 13-year-old son, who has congenital muscular dystrophy. In 2003 he had a serious chest infection and was admitted to a peadiatric ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 19
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Her sister came over from the States to visit their brother but, at that time, he couldn't recognise anyone or even move because of the head injuries
Her brother had an accident while cleaning his motorbike. He had severe head injuries and spent almost four weeks in ICU, where she visited him daily.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 41-50
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Interview 03
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Staying in a nearby hotel worked out well for her and her husband because it meant they could sleep and keep their strengths up for when their son rec
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 12
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Some of her son's friends turned up at the hospital and, at that time, she found this difficult.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 17
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She often unplugged the phone because she needed some time to herself in the afternoon before going back to ICU again in the evening.
Her husband was admitted to ICU because of a brain aneurysm. She spent eight weeks visiting him in two different hospitals, sometimes staying overnight.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 29
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The journey to the hospital was difficult because they didn't know how his partner's mother would be, but he felt close to the family and wanted to su
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 35
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She received lots of calls from her mother's friends when she told them she was critically ill, including calls from friends her mother had lost touch
Her mother was admitted to ICU because of gallstones and other complications. She visited her every day, often with her two young daughters, and kept a diary.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 70 +
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Interview 26
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Although she and her sister-in-law had never been close she visited her for a short time every day, sometimes twice a day, and other activities fell b
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 41-50
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Interview 03
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She wanted some sort of normality during this difficult time, which had made her realise how precious life was.
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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The diary she kept for her partner told him about what happened while he was in ICU, including who had visited him, and the photos showed him the scen
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 14
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She felt emotionally exhausted and work helped take her mind off her husband's illness for a few hours each day.
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 02
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She felt helpless sitting by the bedside so went back to work part-time when her husband started improving, and his family stayed with him whenever sh
In 2003 her husband had an accident while cycling on his mountain bike in woods close to their home. The accident left him with a serious head injury, fractures to his neck and spine, and a collapsed lung.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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Her sister's friend sometimes drove people to the hospital, looked after her sister's home and garden, and visited her every day in ICU.
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 08
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Because a friend had previously been in ICU after a car accident, he knew what to expect when his wife was admitted to intensive care after having eme
His wife was admitted to ICU after having complications during emergency surgery. During her time in hospital he had a lot of support from family and his local community.
Intensive care
>>
Intensive care: experiences of family & friends
>>
Aged 61-70
>>
Interview 37
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All her visitors found it distressing seeing his wife in ICU but he noticed that men and women often reacted differently.
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 09
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Everything was explained to them so, when they left ICU, they felt their son was in safe hands and would receive all the care he needed.
Her son had lymphoma and bowel perforation and sadly died on a ward. She felt doctors should explain information clearly to relatives, who are usually unfamiliar with medical terms.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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She was shocked when she saw her sister in ICU She'd been temporarily paralysed by her illness she was heavily sedated and her eyes were rolling [she
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 37
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Although, due to his work, he felt he knew all about intensive care units he was completely unprepared for how he'd feel seeing his own wife there.
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 12
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The day after her son died, she saw another patient in the same bed he'd been lying in, fighting for his life.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 31-40
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Interview 23
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Ask questions, trust the staff and be there for the patient.
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 36
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He and his father visited the ICU bed his father had been in at a follow-up appointment and learnt that he'd had a rare form of pneumonia.
His father went to ICU after having a stroke and developing pneumonia. Members of the family supported one another and he is now closer to his sister.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 31-40
>>
Interview 02
>>
She felt her husband looked like a stranger after his mountain bike accident and dreaded breaking the news to his parents.
In 2003 her husband had an accident while cycling on his mountain bike in woods close to their home. The accident left him with a serious head injury, fractures to his neck and spine, and a collapsed lung.
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