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Intensive care
Intensive care: experiences of family & friends
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Reasons for admission :
Emergency admissions
Planned admissions
In the Intensive Care Unit (ICU) :
Seeing the patient in ICU for the first time
Suspending normal routines: visiting ICU every day
Uncertainty
Emotional impact on relatives & friends in ICU
Impact on children
Telling others
Relationships within and between families
Receiving information and news from doctors
Sources of information in ICU
Nursing care
Keeping a diary
Sources of support in ICU
At the bedside:
Waiting for news
Signs of improvement and progress
The relatives' room and overnight accommodation:
The relatives' room
Overnight accommodation
When someone dies :
End of life decisions
Death and bereavement:
When someone dies
Funerals
Coping with bereavement
On a general ward :
The ward environment and nursing care
Hospital discharge and rehabilitation
Life after leaving the hospital :
Supporting and caring for the ill person at home
Impact on work and finances
Attitudes to life after the hospital experience
Messages to others
Emotional impact on relatives and carers
Emotional impact on family and friends
Adjusting to a changed life
Support and information
Support and information
Lack of support and information
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Intensive care: experiences of family & friends
Subject index
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Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 32
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She and her husband were really pleased when doctors told them he was eligible for a transplant operation and, before the surgery, they were shown aro
His husband was admitted to ICU before and after a kidney pancreas transplant. She spent three weeks travelling to the hospital as well as working.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 09
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Everything was explained to them so, when they left ICU, they felt their son was in safe hands and would receive all the care he needed.
Her son had lymphoma and bowel perforation and sadly died on a ward. She felt doctors should explain information clearly to relatives, who are usually unfamiliar with medical terms.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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She spent all day in intensive care and would come home briefly to spend some time with her new baby, who was being looked after by her mother.
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 34
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She stayed at the hospital for a week and felt that, by being there and holding her partner's hand, she was doing some good.
Her partner had cancer of the kidney and was admitted to ICU after surgery. She visited daily and stayed in hospital overnight for a week.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 14
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When she talked to her husband about their grandchildren, she noticed tears rolling down his cheeks.
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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His grandchildren recorded messages for their grandmother and, when she heard them, the monitor readings changed even though she was unconscious.
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 23
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He tried not to watch the monitors too much and, instead, focussed on being positive and on all the things he and his partner enjoyed doing together.
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 22
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If he wasn't at his wife's bedside talking to her, a nurse was talking to her instead, and he was moved to see such good care.
His wife had emergency surgery to remove a kidney. He found it difficult to discuss his feelings but received comfort from sitting alone in the hospital chapel.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 20
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They were given lots of information about surgery and other treatments, and felt the nurses were supportive to them and the patient.
In 2004 his wife and her mother spent six months in hospital and was admitted to ICU three times because of sepsis and heart problems.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 16
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She felt her son still needed one to one nursing care because he couldn't move his fingers or head when he was well but, after being in ICU, was even
She cares for her 13-year-old son, who has congenital muscular dystrophy. In 2003 he had a serious chest infection and was admitted to a peadiatric ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 07
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One of the nurses took her son outside when he was in HDU and having so much more to look at helped him become more alert and aware.
Their son was admitted to ICU in 2005 with bacterial meningitis. It was a traumatic time but he is now back home and has made excellent progress.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 03
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Staying in a nearby hotel worked out well for her and her husband because it meant they could sleep and keep their strengths up for when their son rec
In 2004 her 17-year-old son was a passenger in a car that was involved in a serious accident. He spent 17 days in ICU.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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She felt that her partner's family didn't understand her feelings but received a lot of support from nurses, who also ensured she had time alone with
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 10
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She grew closer to her partner and his illness made them both more aware of what was important to them.
In 2006 her partner was diagnosed with Weil's disease, a rare bacterial infection. She stayed at the hospital for five nights and then in a nearby hotel.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 11
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Before she saw her husband in ICU for the first time, nurses explained everything to her about the equipment he'd been attached to.
Her husband was diagnosed with pneumonia. She was happy with the nursing care he received in ICU but concerned about information and one of his treatments.
Intensive care
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Intensive care: experiences of family & friends
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Aged 30 & under
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Interview 21
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Nurses explained to her in more detail what doctors had told her, and always phoned her whenever her partner deteriorated so she could come in and be
In 2005 her partner had a car accident and spent over four months in ICU. She visited daily while her mother looked after her new baby.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 23
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He felt the nursing care his partner received was fantastic, that the nurses worked well as a team and that he couldn't thank them enough for all they
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 13
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The nurses explained everything about the treatments, answered all her questions and supported her through an extremely difficult time.
In 2006 her husband had liver disease and pneumonia and sadly died in ICU. She has gained strength from having counselling and from her spirituality.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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The nurses washed his wife's hair and did whatever they could to make her comfortable, as well as giving him lots of support too.
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 01
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She and other members of her family helped clean her sister's mouth and with other aspects of care whenever they visited her.
In March 2005 her sister was diagnosed with Guillain Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and spinal chord.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 20
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They felt the nurses were excellent and that they got to know them quite well having spent several weeks in intensive care.
In 2004 his wife and her mother spent six months in hospital and was admitted to ICU three times because of sepsis and heart problems.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 07
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They felt the nurses were brilliant apart from a few, including one who told them their son was responding when he wasn't and another who didn't take
Their son was admitted to ICU in 2005 with bacterial meningitis. It was a traumatic time but he is now back home and has made excellent progress.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 30
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Both he and his mother noticed that some nurses were more diligent at cleaning and preventing the spread of infection than others.
His father died in ICU, aged 83. Being an intensive care doctor, he was able to provide information and support to his mother and brother.
Intensive care
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Intensive care: experiences of family & friends
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Aged 70 +
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Interview 26
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Occasionally she found it difficult to get information from nurses because, although she was her sister-in-law's next of kin, some nurses hadn't been
In 2006 her sister-in-law sadly died in ICU after having an accident in her car. She visited her daily and took care of all the practical matters.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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He kept a diary so he could gain distance from what was happening to his wife and see if there were any patterns emerging when she kept improving and
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 32
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Her neighbours gave her lifts to the hospital and took it in turns to cook for her so she'd have a meal waiting for her when she got home late after v
His husband was admitted to ICU before and after a kidney pancreas transplant. She spent three weeks travelling to the hospital as well as working.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 12
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A nurse rang her at three in the morning and told her, once she and her husband were at the hospital, that their son was dying.
In 2005 her 21-year-old son sadly died in ICU. She focuses as much as she can on remembering the good memories they shared.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 18
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Her friend was scared about being on a busy ward and having to do more for herself when she was still very weak.
Her best friend spent two weeks in ICU. She was the closest person to her, visited her daily and is now her main carer.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 04
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Her son had to have his own room because he had MRSA but she felt he was in danger of injuring himself whenever he tried to walk and that he needed su
In October 2004, her son had a motorbike accident and was admitted to ICU. He had a serious head injury and broken jaw.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 11
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She wished all hospitals with ICUs also had HDUs so that intensive care patients would not have to go straight from ICU to a ward.
Her husband was diagnosed with pneumonia. She was happy with the nursing care he received in ICU but concerned about information and one of his treatments.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 51-60
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Interview 07
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They were disappointed that nurses were not doing more for their son and she ended up feeding, washing, changing and shaving him every day.
Their son was admitted to ICU in 2005 with bacterial meningitis. It was a traumatic time but he is now back home and has made excellent progress.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 31
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Because his wife was too weak to feed herself and the nurses were too busy to feed each patient individually, he was allowed to come in and help with
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 27
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She visited her husband on the ward every day so she could feed him and make sure he was eating and gaining weight.
Her husband had cardiac arrest and was admitted to ICU. She is his full-time carer and worries about leaving him on his own because of his memory.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 29
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He felt his partner's mother was transferred to a ward too soon and if her husband hadn't been there, she might not have got the help she needed.
His partner's mother was admitted to ICU after an accident in the home. He lived with them at the time and tried to provide emotional support.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 08
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He felt there was a lack of communication between ICU and ward staff but, once the nurses on the ward knew how ill his wife was, they gave her more su
His wife was admitted to ICU after having complications during emergency surgery. During her time in hospital he had a lot of support from family and his local community.
Intensive care
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Intensive care: experiences of family & friends
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Aged 51-60
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Interview 11
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Her husband had problems with his catheter and she felt that better communication would have helped avoid such a problem.
Her husband was diagnosed with pneumonia. She was happy with the nursing care he received in ICU but concerned about information and one of his treatments.
Intensive care
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Intensive care: experiences of family & friends
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Aged 41-50
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Interview 17
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She felt more reassured when her husband was transferred to a specialist hospital, because he was still very weak, confused and needed a lot of care.
Her husband was admitted to ICU because of a brain aneurysm. She spent eight weeks visiting him in two different hospitals, sometimes staying overnight.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 23
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His partner stayed on a ward for one night before moving to a private hospital, where he felt she would get more care and support.
In 2006 his partner spent four weeks in ICU because of pneumonia. He visited her every day, sharing the visiting with his partner's parents.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 37
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After several bureaucratic problems, he was able to transfer his wife to a private hospital, where she would get the physiotherapy and psychological s
His wife spent 49 days in ICU because of severe lung problems. After her illness, he became involved in helping improve services for ICU patients.
Intensive care
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Intensive care: experiences of family & friends
>>
Aged 61-70
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Interview 14
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She felt that, although the nurses were very busy, they did the best they could and were very good.
She has cared for her husband full-time since he had a heart attack and life threatening infection that meant he had to have his leg amputated.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 31
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His wife needed a lot of support and, in the rehabilitation unit, nurses had time to spend with her and physiotherapists helped her become mobile agai
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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At his follow-up appointment, her husband was shown around the ICU and his questions were answered, which was reassuring because he couldn't remember
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Intensive care
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Intensive care: experiences of family & friends
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Aged 61-70
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Interview 31
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His wife is very dependent now and he feels that no one could understand her needs and problems without spending a lot of time with her first.
He cares full-time for his wife, who was diagnosed with Crohn's disease in 1998. She has been admitted to ICU several times and recently had a stroke.
Intensive care
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Intensive care: experiences of family & friends
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Aged 31-40
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Interview 15
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Accept support, ask questions if you need information and be aware that when the patient comes home there will be good and bad days.
Her husband was admitted to ICU because of an emergency heart problem, which was never diagnosed. She praised the care and professionalism of the ICU staff.
Topic
Intensive care
>>
Intensive care: experiences of family & friends
>>
Nursing care
>>
Nursing care
Nursing care
Intensive care
>>
Intensive care: experiences of family & friends
>>
The ward environment and nursing care
>>
The ward environment and nursing care
The ward environment and nursing care
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