home
a-z of conditions
forums
news
about us
See all conditions
Intensive care
Intensive care: Patients' experiences
Forum
Resources & Information
Subject index
Credits
Full list of topics
Reasons for admission :
Emergency admissions
Planned admissions
Experiences in intensive care :
Coming round and regaining consciousness
Sleep, dreams and hallucinations
Intensive care treatments
Physiotherapy
Emotional experiences in ICU
Nursing care in ICU
Death and bereavement
High Dependency Unit (HDUs)
Experiences in the general ward :
The general ward: care and environment
Physical and emotional experiences
Physiotherapy on the ward
Discharge and moving on
Recovering at home :
Physical recovery
Emotional aspects of recovery
Making sense of what happened
ICU follow-up care
Attitudes to life during and after recovery
Impact on family
Impact on work
Sources of support
Messages to others
Information
For people admitted to ICU for emergency treatment
Planned admissions
Search the whole site
Search in this condition
Intensive care: Patients' experiences
Subject index
Clip
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 05
>>
Everything was done for her by nurses because she was too weak to move.
Had pneumonia and severe sepsis. Was in intensive care for 22 days, the High Dependency Unit for 10 days and just over a week on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 26
>>
He felt bored and frustrated and had to learn how to walk again.
Was admitted to intensive care in 2005 because of severe pneumonia. Spent 30 days in intensive care and 8 days in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 15
>>
She was adamant about being taken outdoors as she'd been in hospital for so long.
Was admitted to ICU three times in 2004 and spent, in total, about 1 month in intensive care. Spent several months in hospital, in different wards and had a hospital transfer. Was diagnosed with Crohn's Disease and, shortly afterwards, had an ileostomy.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 30 and under
>>
Interview 17
>>
He needed support to sit in a chair and had crutches to help him walk.
Has sickle cell anaemia and was experiencing chest pain, which turned out to be pneumonia. Breathing difficulties led to ICU admission and, because of multiple organ failure, spent about 12 days in ICU. Following ICU, spent 2 weeks in general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 02
>>
He got tired quickly and recommends visitors only stay for short periods of time.
Had very severe cold and coughing in 2005, which turned out to be pneumonia. Was in intensive care for nearly a month and in general ward for about 4 days. Has now fully recovered.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 07
>>
He aimed to breathe without equipment and to move to a general ward by certain dates.
Was diagnosed with Guillain-Barre Syndrome, a rare disorder of the peripheral nerves, those outside the brain and spinal chord. Was in intensive care for 7 months and on a ward for 1 month. Was preparing to have rehabilitation at time of interview.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 03
>>
He accepted that he was ill and couldn't move or communicate, but felt looked after and safe (he had Acute Respiratory Distress Syndrome).
In 2002 had throat surgery and knew he would go to High Dependency Unit afterwards. Overnight, however, had Acute Respiratory Distress Syndrome and needed emergency bronchoscopy. Was in intensive care for 5 weeks and in ward for 5 weeks.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 30
>>
She was unable to move or talk and felt isolated and powerless.
Was admitted to intensive care in 2005 because of epiglottitis and severe sepsis. Spent about 6 days in intensive care and 5 days in a High Dependency Unit.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
She remembered hearing voices, having treatments and coming round unable to do anything for herself (she had pneumonia).
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
Her family were her 'rock' during a difficult time in hospital.
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 05
>>
She found it difficult to hold a pen and felt frustrated because her writing was unintelligible (she had pneumonia and sepsis).
Had pneumonia and severe sepsis. Was in intensive care for 22 days, the High Dependency Unit for 10 days and just over a week on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 06
>>
She communicated by nodding at letters in the alphabet but found this slow and frustrating.
Was admitted to intensive care in 2003 because of pneumonia, and developed septicaemia. Spent 3 weeks in ICU, 36 hours in a High Dependency Unit and 5 weeks on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 06
>>
She craved fruit juice and was gradually allowed drinks and, later, on a ward, soft foods.
Was admitted to intensive care in 2003 because of pneumonia, and developed septicaemia. Spent 3 weeks in ICU, 36 hours in a High Dependency Unit and 5 weeks on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
The physiotherapists encouraged her to walk even though she was weak and found it difficult to eat.
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 30 and under
>>
Interview 12
>>
She was embarrassed when she was hoisted from the bed to a chair and surprised at how weak she looked when she saw herself in the mirror.
Was diagnosed with ulcerative colitis. Had to have surgery to remove colon. Had kidney failure and was in intensive care for about 21 days, High Dependency Unit for about 2 weeks and a general ward for 2 weeks.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 28
>>
He disliked having physiotherapy but knew he needed it and appreciated the physiotherapists' support with hindsight.
Was admitted to intensive care in 2004 because of septicaemia. Spent about 7 weeks in intensive care and 4 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 27
>>
He was dependent on others for his care and communication, and felt his 'real self' was trapped somewhere inside him.
Was admitted to intensive care in 2005 because of pancreatitis and septicaemia. Spent 2 weeks in intensive care, 2 weeks in a High Dependency Unit; 6 weeks in a general ward, and 2 weeks in a rehabilitation hospital.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 04
>>
She asked some of her family not to visit so she could have the energy to do her physiotherapy.
Had bowel complications and septicaemia. Was in intensive care for nearly 5 weeks. Spent 1 week in a High Dependency Unit and was then discharged.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
She felt more positive after having her legs shaved by nurses and her eyebrows shaped by a beauty therapist.
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 04
>>
Using bedpans was humiliating but this motivated her to recover and become independent again.
Had bowel complications and septicaemia. Was in intensive care for nearly 5 weeks. Spent 1 week in a High Dependency Unit and was then discharged.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 20
>>
He felt calm and accepting because there was nothing he could do but rely on the help of others.
Was diagnosed with colorectal cancer in 2004. Because of complication (idiopathic thrombocytopenia, diagnosed in 2000), short stay in intensive care was planned, following surgery. Spent 8 days in intensive care and 18 days in general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 29
>>
She recalled how the nurses went out of their way to help her feel cared for and positive.
Had a planned hysterectomy in 2004. Complications led to a second operation. Was admitted to intensive care because of Acute Respiratory Distress Syndrome. Spent 2 weeks in intensive care, 1 day in High Dependence Unit and 1 week in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
She felt that her care was inconsistent because some nurses helped her with daily activities while others didn't.
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
She felt that her care was inconsistent because some nurses helped her with daily activities while others didn't.
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 37
>>
He felt like a child the first time his brother took him out and was very emotional.
Was admitted to intensive care in 2004 after having a motorbike accident. Spent 9 days in intensive care and 16 days in a trauma ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 30
>>
She felt that nurses were desensitised and uncaring when they put monitoring technical equipment before talking with patients.
Was admitted to intensive care in 2005 because of epiglottitis and severe sepsis. Spent about 6 days in intensive care and 5 days in a High Dependency Unit.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 05
>>
Her hallucinations started wearing off in HDU but she felt bored because she was unable to do anything.
Had pneumonia and severe sepsis. Was in intensive care for 22 days, the High Dependency Unit for 10 days and just over a week on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 04
>>
She was discharged because she could walk and her partner could look after her at home.
Had bowel complications and septicaemia. Was in intensive care for nearly 5 weeks. Spent 1 week in a High Dependency Unit and was then discharged.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 03
>>
He felt safe, protected and cared for in ICU but isolated on the ward and was still very weak.
In 2002 had throat surgery and knew he would go to High Dependency Unit afterwards. Overnight, however, had Acute Respiratory Distress Syndrome and needed emergency bronchoscopy. Was in intensive care for 5 weeks and in ward for 5 weeks.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 27
>>
He adored some of the nurses but felt others were very busy and uncaring and, on one occasion, left him in his chair for twelve hours.
Was admitted to intensive care in 2005 because of pancreatitis and septicaemia. Spent 2 weeks in intensive care, 2 weeks in a High Dependency Unit; 6 weeks in a general ward, and 2 weeks in a rehabilitation hospital.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 07
>>
He praised all the hospital staff but felt that nurses in ICU could give much more care and attention than those on the ward, who were much busier.
Was diagnosed with Guillain-Barre Syndrome, a rare disorder of the peripheral nerves, those outside the brain and spinal chord. Was in intensive care for 7 months and on a ward for 1 month. Was preparing to have rehabilitation at time of interview.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 35
>>
He was still too weak to move or lift things when he was transferred to a ward and would have liked a HDU in his hospital.
Was admitted to intensive care in 2004 because of Guillain-Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and the spinal chord. Spent 17 days in intensive care and about 1 week in general ward. Was then transferred to rehabilitation ward in another hospital, and spent about 3 months there.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 01
>>
She found the care on the ward excellent and felt like she needed to do more for herself once she was there.
Was admitted to intensive care in 1998 because of a complication during pregnancy, leading to septic shock. Was in ICU for 11 days and in general ward for 2 weeks. Recovered well and has had no further problems related to that illness.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 01
>>
She was extremely weak and her family worried that if she needed anything during the night, no one would be around to help.
Was admitted to intensive care in 1998 because of a complication during pregnancy, leading to septic shock. Was in ICU for 11 days and in general ward for 2 weeks. Recovered well and has had no further problems related to that illness.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 06
>>
She was anxious about moving to a general ward because she was too weak to do anything for herself and had no energy to press the buzzer.
Was admitted to intensive care in 2003 because of pneumonia, and developed septicaemia. Spent 3 weeks in ICU, 36 hours in a High Dependency Unit and 5 weeks on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 27
>>
He had to balance his dependence on nurses with his own dignity as a person, and was pleased when he became less dependent for his personal care.
Was admitted to intensive care in 2005 because of pancreatitis and septicaemia. Spent 2 weeks in intensive care, 2 weeks in a High Dependency Unit; 6 weeks in a general ward, and 2 weeks in a rehabilitation hospital.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 29
>>
Nurses expected her to be able to wash herself but became aware of her weakness and needs with time.
Had a planned hysterectomy in 2004. Complications led to a second operation. Was admitted to intensive care because of Acute Respiratory Distress Syndrome. Spent 2 weeks in intensive care, 1 day in High Dependence Unit and 1 week in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 06
>>
She had to rebuild her strength to do normal daily activities and missed her new baby.
Was admitted to intensive care in 2003 because of pneumonia, and developed septicaemia. Spent 3 weeks in ICU, 36 hours in a High Dependency Unit and 5 weeks on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
She started off by just being able to stand up and sit down but could eventually walk down the ward.
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 05
>>
She talks about the physiotherapy she had - in ICU, HDU and then on a general ward - until she was strong enough to be discharged.
Had pneumonia and severe sepsis. Was in intensive care for 22 days, the High Dependency Unit for 10 days and just over a week on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 25
>>
He was eager to recover and was sometimes already at the gym doing exercises when the physiotherapist came looking for him.
Was admitted to intensive care in 2003 because of severe pneumonia, septicaemia, liver abcess and kidney failure. Spent about 4 weeks in intensive care and 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 27
>>
He was terrified when he fell into his Zimmer frame but says people must accept the challenges physiotherapists set them.
Was admitted to intensive care in 2005 because of pancreatitis and septicaemia. Spent 2 weeks in intensive care, 2 weeks in a High Dependency Unit; 6 weeks in a general ward, and 2 weeks in a rehabilitation hospital.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 03
>>
He just had to talk to a doctor, and managed to use his Zimmer frame alone to walk down the ward to do it.
In 2002 had throat surgery and knew he would go to High Dependency Unit afterwards. Overnight, however, had Acute Respiratory Distress Syndrome and needed emergency bronchoscopy. Was in intensive care for 5 weeks and in ward for 5 weeks.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 35
>>
He sometimes felt frustrated when his progress was slow but a huge sense of achievement when he could walk again.
Was admitted to intensive care in 2004 because of Guillain-Barre Syndrome. This is a rare disorder of the peripheral nerves, those outside the brain and the spinal chord. Spent 17 days in intensive care and about 1 week in general ward. Was then transferred to rehabilitation ward in another hospital, and spent about 3 months there.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 29
>>
She asked to be discharged and was allowed home because her husband was off work and could look after her.
Had a planned hysterectomy in 2004. Complications led to a second operation. Was admitted to intensive care because of Acute Respiratory Distress Syndrome. Spent 2 weeks in intensive care, 1 day in High Dependence Unit and 1 week in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 14
>>
After talking with the doctor and some tests, she discharged herself because she felt she'd be better off at home where she could get some sleep.
Had a planned caesarean in 2005. Had a complication (placenta accreta) after she'd delivered and had to have a hysterectomy. Following hysterectomy, was in ICU for nearly 2 days, then spent 2 days in her own room in the hospital with her new baby. Discharged herself and has had no problems since.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 26
>>
His wife collected him, but they would have liked some help from hospital staff with carrying his medications to the car.
Was admitted to intensive care in 2005 because of severe pneumonia. Spent 30 days in intensive care and 8 days in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 28
>>
Doctors agreed to discharge him after talking to his wife, and he surprised his children by turning up at home without telling them first.
Was admitted to intensive care in 2004 because of septicaemia. Spent about 7 weeks in intensive care and 4 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 61-70
>>
Interview 27
>>
He felt very emotional when he came home and was unprepared for adjusting to being with his wife again.
Was admitted to intensive care in 2005 because of pancreatitis and septicaemia. Spent 2 weeks in intensive care, 2 weeks in a High Dependency Unit; 6 weeks in a general ward, and 2 weeks in a rehabilitation hospital.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 24
>>
She found it difficult to climb the steps leading to her front door and had to be wheeled around on an office chair inside the house.
Was admitted to intensive care in 2004 because of severe pneumonia. Spent about 5 weeks in intensive care and nearly 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 09
>>
He could shave one day and have a bath the next but didn't have the strength or energy to do both.
Was admitted to intensive care in 2004 because of a severe asthma attack. Was in intensive care for 3 days and on a general ward for about ten days.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 26
>>
He needed a few days to recover from a short walk and had no strength to do the jobs around the house he would normally have done.
Was admitted to intensive care in 2005 because of severe pneumonia. Spent 30 days in intensive care and 8 days in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 28
>>
It took him four months before he could walk without a stick but he slowly regained mobility and put on weight.
Was admitted to intensive care in 2004 because of septicaemia. Spent about 7 weeks in intensive care and 4 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 06
>>
She was extremely weak when she left hospital but was gradually able to look after her daughter and has since had another baby.
Was admitted to intensive care in 2003 because of pneumonia, and developed septicaemia. Spent 3 weeks in ICU, 36 hours in a High Dependency Unit and 5 weeks on a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 04
>>
She felt worried about catching an infection that might take her into hospital again.
Had bowel complications and septicaemia. Was in intensive care for nearly 5 weeks. Spent 1 week in a High Dependency Unit and was then discharged.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 41-50
>>
Interview 04
>>
She felt reassured when she discussed her feelings with a nurse and learnt that how she felt was normal after critical illness.
Had bowel complications and septicaemia. Was in intensive care for nearly 5 weeks. Spent 1 week in a High Dependency Unit and was then discharged.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 51-60
>>
Interview 19
>>
A few days after getting home he felt depressed and accepted that recovery from major surgery would take some time.
Was diagnosed with pancreatic cancer in 2004. Short stay in intensive care following surgery was planned. Spent 4 days in ICU and about 2 weeks in a general ward.
Intensive care
>>
Intensive care: Patients' experiences
>>
Aged 31-40
>>
Interview 14
>>
Her mother and her friends helped with cooking, cleaning and looking after her baby, so that she could rest during the day.
Had a planned caesarean in 2005. Had a complication (placenta accreta) after she'd delivered and had to have a hysterectomy. Following hysterectomy, was in ICU for nearly 2 days, then spent 2 days in her own room in the hospital with her new baby. Discharged herself and has had no problems since.
Mail to a friend