The information was there, it was once, if I asked they told me, it wasn't a problem. It got to a stage where they used to come and ask me because if they used come and check my blood level, this that and the other, they used to say, alright then [participant's name], what is it? Because I made, I think because I was out of it in a sense where I didn't have the opportunity to know exactly what was going on, the minute I was able to regain some control of my life, I made sure I knew everything that they were doing, why were they doing this. If there was a new medication I was given, why? Get the doctor to tell me why. I'm not just taking it because you said well I've got to take this.
The only problem was with the Crohn's, I think because it's such a hard disease to explain, that's the only thing, the problem that I had. You know, you asked certain questions and they're still not answers that they can give you so….
Did you look for any information once you got out of the hospital?
Yes, I did, went up and looked on so many different sites. Crohn's you know, I think, and even I found that it was just as confusing. I think going to look for it was just as confusing as when I was in hospital and they were trying to explain to me what was going on. I did look up sites. My sister, my family looked up sites. I mean it's weird, once you have symptoms of something, you look it on the Internet or whatever and you compare your symptoms to other things and I think you always go for the worst thing that's there. So we probably, we thought was it bowel cancer you know, things like this so. |
