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Dying & bereavement
Living with Dying
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Discovery :
How bad news was broken
Own reaction to hearing that life would be shorter
Finding information
Roller coaster feelings
Talking to children
Medical, Nursing & Social Care :
Hospital care
Pain and pain control
Care at home: social services
Care at home: nursing
The needs of carers
Hospice in-patient care
Hospice day care
Insufficient hospice care
Complementary and alternative approaches
Living with dying :
Positive aspects of life threatening illness
Religion, faith and philosophy
Financial help
Support and counselling
Where people want to die
Message to health,social care workers and government
Message to others
Advance decision ("living wills")
Thoughts about suicide, assisted dying and euthanasia
Practical matters
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Living with Dying
Subject index
Clip
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 42
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He was impressed by the organisation and with the way the doctors at the hospice managed to control his pain.
Diagnosed with prostate cancer in 2000, and treated with hormone therapy and chemotherapy. Also given some radiotherapy to control pain caused by metastases in the bones.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 15
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She feels bitter that the consultant didn't recognise that there was something wrong and that she was indeed in pain.
Breast cancer diagnosed in 1992, followed by a lumpectomy and radiotherapy. Sarcoma diagnosed in 2000, followed by double mastectomy.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 13
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She enjoyed her week in hospital where her pain was controlled and where she was given blood for anaemia.
Diagnosed with breast cancer in 1995, followed by lumpectomy, chemotherapy and radiotherapy. Secondary tumours (metastases) diagnosed in 2000.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 23
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Describes her stabbing pain.
Breast cancer diagnosed in 2001, followed by a mastectomy, radiotherapy and chemotherapy
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 27
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Describes his experience of excruciating pain.
Diagnosed with secondary progressive multiple sclerosis, which has been treated with pain relief and other symptom control.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 25
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Says that she would have better access to good pain control in a hospice.
Diagnosed with end stage Chronic Obstructive Pulmonary Disease in 1986. Also has early heart failure and severe osteoporosis, and is treated with medication, a nebuliser and oxygen.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 09
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He gets different types of pain including a cramp-like pain when his kidneys go into spasm.
Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 13
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Describes chronic ill health and many aches and pains, but still feels quite good.
Diagnosed with breast cancer in 1995, followed by lumpectomy, chemotherapy and radiotherapy. Secondary tumours (metastases) diagnosed in 2000.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 22
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A clinical psychologist helped her to control her pain with various drugs.
Had two sub-arachnoid haemorrhages in 1993 and then developed hydrocephalus. Had a shunt inserted in 1994, which was "revised" (removed and replaced) in 2000.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 37
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She was admitted to a ward for several days so that a morphine dose schedule could be worked out to control her pain.
Ovarian cancer diagnosed in 1998 following breathing and bladder problems, weight gain and bloating, and changed bowel habits. Treated by surgical removal of both ovaries and abdominal fluid, chemotherapy, then hysterectomy and further chemotherapy.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 21
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He is confident that when he reaches the last stage of his illness he will get enough morphine to control pain.
Developed symptoms in December 2001, diagnosed with oesophageal cancer in December 2002, treated with chemotherapy to shrink the tumour, followed by surgery in May 2003.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 25
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She uses visualisation to try to control the pain.
Diagnosed with end stage Chronic Obstructive Pulmonary Disease in 1986. Also has early heart failure and severe osteoporosis, and is treated with medication, a nebuliser and oxygen.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 25
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She regrets that there isn't a pain management clinic for those with lung disease in her area.
Diagnosed with end stage Chronic Obstructive Pulmonary Disease in 1986. Also has early heart failure and severe osteoporosis, and is treated with medication, a nebuliser and oxygen.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 39
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The morphine makes her feel a bit 'dopey' but it controls the pain.
Diagnosed with non-small cell lung cancer in 1995, which was treated with regular chemotherapy, at least every nine months. In 2003 developed metastases in the spine.
Dying & bereavement
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Living with Dying
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Age 51-60
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Interview 09
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Regrets that he can't have adequate pain control without unacceptable side effects which would make him drowsy.
Diagnosed with testicular cancer 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement. Also has kidney disease and diabetes as the result of treatment.
Dying & bereavement
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Living with Dying
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Age 81-90
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Interview 38
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The hospice palliative care team has helped him to control pain without serious side effects.
Diagnosed with bladder cancer in 2001, and unsuccessfully treated with a bladder infusion of BCG. Offered radiotherapy but declined because it was thought that treatment might affect mobility (due to polyneuropathy diagnosed in 1994).
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 04
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“Everyone should have a key worker such as my hospice nurse”.
Diagnosed with leukaemia in July 2001; treated with chemotherapy and radiotherapy.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 18
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Thinks that both a “living will” and euthanasia mean that life may be shortened artificially and believes that both are morally wrong.
Diagnosed with bladder cancer and prostate cancer in 2001, followed by transurethral resections in 2001 and 2002, and then a prostatectomy and cystectomy (removal of bladder) and urostomy in 2002.
Dying & bereavement
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Living with Dying
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Age 71-80
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Interview 16
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He believes that pain can be controlled and that euthanasia is the “next stop to murder”.
Diagnosed with prostate cancer in 2001, followed by surgery, radiotherapy and hormone treatment.
Topic
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Living with Dying
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Pain and pain control
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Pain and pain control
Pain and pain control
Dying & bereavement
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Living with Dying
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Pain and pain control
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Pain and pain control
Pain and pain control
Dying & bereavement
>>
Living with Dying
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Age 71-80
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Interview 16
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He believes that pain can be controlled and that euthanasia is the “next stop to murder”.
Diagnosed with prostate cancer in 2001, followed by surgery, radiotherapy and hormone treatment.
Dying & bereavement
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Living with Dying
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Age 61-70
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Interview 22
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A clinical psychologist helped her to control her pain with various drugs.
Had two sub-arachnoid haemorrhages in 1993 and then developed hydrocephalus. Had a shunt inserted in 1994, which was "revised" (removed and replaced) in 2000.
Dying & bereavement
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Living with Dying
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Age 30-50
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Interview 13
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Since she became ill she has learnt to paint and write poems and has become involved in many other activities.
Diagnosed with breast cancer in 1995, followed by lumpectomy, chemotherapy and radiotherapy. Secondary tumours (metastases) diagnosed in 2000.
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