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• Dying & bereavement >> Living with Dying >> Carers >> Interview 40 >> Her father, who had motor neurone disease, at first refused to accept that he would die.

Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.

• Dying & bereavement >> Living with Dying >> Carers >> Interview 40 >> It is very difficult if other family members are told the diagnosis before the patient.

Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.

• Dying & bereavement >> Living with Dying >> Carers >> Interview 40 >> Patients who needed help to eat were not always given necessary help due to lack of staff.

Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.

• Dying & bereavement >> Living with Dying >> Carers >> Interview 40 >> Her father was afraid of dying and she found it hard to comfort him because he didn't have faith in any religion.

Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.

• Dying & bereavement >> Living with Dying >> Age 61-70 >> Interview 34 >> Says she wouldn't like to spend an afternoon talking to other people about motor neurone disease.

Developed motor neurone disease in 1992, officially diagnosed in 1995, decided not to take the drug riluzole because of possible side effects.

• Dying & bereavement >> Living with Dying >> Carers >> Interview 40 >> Health professionals must assume that even if patients can't communicate they are aware of what is going on.

Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.

• Dying & bereavement >> Living with Dying >> Age 61-70 >> Interview 34 >> Thinks euthanasia should be available and the law should be changed.

Developed motor neurone disease in 1992, officially diagnosed in 1995, decided not to take the drug riluzole because of possible side effects.

• Dying & bereavement >> Living with Dying >> Carers >> Interview 40 >> Warns that making a will needs special care: because her family had some difficulties.

Daughter of a man who was diagnosed with motor neurone disease in June 2001, at the age of 81, and who died in October 2001.