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Cancer
Ductal Carcinoma in Situ (DCIS)
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Full list of topics
Discovery and diagnosis :
What is ductal carcinoma in situ (DCIS)?
Routine mammograms: the UK Breast Screening Programme
Diagnostic mammograms
Referral to an assessment clinic
Diagnostic tests: mammogram
Diagnostic tests: ultrasound scan
Diagnostic tests: biopsy
Waiting for results
Feelings about the diagnosis
Telling other people
Treatments & their impacts :
Feelings about having a wide local excision
Wide local excision: the operation
Wide local excision: recovery
Wide local excision: pathology results
Feelings about having a mastectomy
Mastectomy: the operation
Mastectomy: physical and emotional recovery
Mastectomy: pathology results
Breast reconstruction using an implant
Breast reconstruction using an LD flap
Breast reconstruction using a DIEP flap
Nipple reconstruction
Choosing not to have breast reconstruction
Prostheses
Body image
Radiotherapy
Chemotherapy
Hormone therapy
Information and support :
Information
Support from family, friends and health professionals
Support from other women with DCIS or breast cancer
Effects on daily life :
How it effects families
Views on breast screening
Messages to others
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Ductal Carcinoma in Situ (DCIS)
Subject index
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Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 50-54
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Linda - Interview 3
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Linda was having worrying side effects with tamoxifen. After talking to other women on the internet and her GP, she switched to Nolvadex.
Linda was diagnosed with DCIS in 2007, aged 53. She had a wide local excision, followed by a mastectomy. She was also prescribed Nolvadex for five years.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 65-70
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Hilary - Interview 10
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Hilary knew straight away that she wanted breast reconstruction. She felt frightened at the thought of coming round after surgery and having only one
Hilary was diagnosed with DCIS in 2007, aged 66. She had a mastectomy and immediate LD flap reconstruction. She was awaiting further surgery to match both breasts.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 50-54
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Pauline - Interview 33
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Pauline wanted relevant information at each different stage of treatment. She got it from various different sources.
Pauline had three excisions, radiotherapy and tamoxifen. She had DCIS as well as invasive breast cancer.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 50-54
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Carol - Interview 18
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Carol found the breast cancer forums helpful but said that information on the internet could be confusing because everyone had different diagnoses.
Carol was diagnosed with DCIS in 2008, aged 51. She had a wide local excision and was happy with the care and treatment she received.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 65-70
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Shirley - Interview 22
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Shirley didn’t want to be confused by all the information on the internet and preferred to talk to health professionals.
Shirley was diagnosed with DCIS in 2006, aged 70. She had a wide local excision and radiotherapy, and also took part in a clinical trial.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 50-54
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Agnes - Interview 8
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Agnes was grateful to talk to another woman with DCIS but preferred to get information from other women by using internet forums.
Agnes had a wide local excision, after which some invasive cancer was also found. She will be having radiotherapy and taking tamoxifen.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: under 50
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Elizabeth - Interview 21
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Some people do not know what to say or ask inappropriate questions. Since coming to live in the UK she has learnt to be self sufficient but has one fr
Elizabeth had a wide local excision, radiotherapy and is taking tamoxifen for five years. Work helped her to stay positive and focussed throughout.
Cancer
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Ductal Carcinoma in Situ (DCIS)
>>
Age at diagnosis: 50-54
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Linda - Interview 3
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Since leaving hospital, Linda has not contacted the breast care nurse. She prefers support from other women she has contacted on website forums.
Linda was diagnosed with DCIS in 2007, aged 53. She had a wide local excision, followed by a mastectomy. She was also prescribed Nolvadex for five years.
Cancer
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Ductal Carcinoma in Situ (DCIS)
>>
Age at diagnosis: under 50
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Pauline - Interview 28
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Pauline thinks that women who are diagnosed with DCIS should be given a little pack with information about websites and various other local and nation
Pauline was diagnosed with DCIS in 2001, aged 49, after her first routine mammogram. She had two excisions, followed by a mastectomy and reconstruction using an implant. She also had radiotherapy and took tamoxifen for two years.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 50-54
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Sandra - Interview 1
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Sandra's son became more disorganised at school and tearful. She worried that he was finding distressing information on cancer websites.
Sandra was diagnosed with DCIS in 2007, aged 50. She had a mastectomy and immediate reconstruction using an implant. After surgery, Paget’s disease was also found.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 55-60
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Jane - Interview 5
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Jane says that DCIS is very early breast cancer and can be treated. There is a lot of helpful information on the internet.
Jane was diagnosed with DCIS in 2007, aged 58. She had a mastectomy and a DIEP flap breast reconstruction at the same time.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 55-60
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Jane - Interview 5
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Jane reacted by looking for more information and found it reassuring. She advises other women not to spend too much time looking for information on th
Jane was diagnosed with DCIS in 2007, aged 58. She had a mastectomy and a DIEP flap breast reconstruction at the same time.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: under 50
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Jacqui - Interview 31
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Jacqui’s implant had lost its shape after a fall. She was unsure about having more surgery but felt that having a breast improved her self esteem.
Jacqui was diagnosed with DCIS in 1995 after having a mammogram that was part of a clinical trial. She had a mastectomy and, two weeks later, a reconstruction using an implant.
Cancer
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Ductal Carcinoma in Situ (DCIS)
>>
Age at diagnosis: 55-60
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Jane - Interview 5
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After talking to her plastic surgeon and looking on the internet, Jane opted for a DIEP flap reconstruction. She was worried about the general anaesth
Jane was diagnosed with DCIS in 2007, aged 58. She had a mastectomy and a DIEP flap breast reconstruction at the same time.
Cancer
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Ductal Carcinoma in Situ (DCIS)
>>
Age at diagnosis: 50-54
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Beverley - Interview 15
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Beverley felt she wasn’t given enough information. She wanted small amounts of information and different stages and wished she’d known about Breast Ca
Beverley was diagnosed with DCIS in 2006, aged 50. She had a mastectomy and DIEP flap reconstruction, which she was very happy with.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: 50-54
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Patricia - Interview 7
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Patricia had invasive breast cancer and DCIS. She feels that making treatment decisions for DCIS are harder because it might not develop. She would ha
Patricia was diagnosed with DCIS in 2007, aged 53. She had a mastectomy and LD flap reconstruction six months later. She will also be taking hormone therapy.
Cancer
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Ductal Carcinoma in Situ (DCIS)
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Age at diagnosis: under 50
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Kath - Interview 12
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Kath wanted more information about the kind of DCIS she had. She would have liked a copy of her pathology report and to talk to other women with DCIS
Kath was diagnosed with DCIS in 2007, aged 47, after seeing her GP because her breast felt dense. She had a mastectomy and LD flap reconstruction.
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