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• Cancer >> Testicular Cancer >> Finding information >> Finding information

Finding information

• >> Testicular Cancer >> Finding information >> Finding information

Finding information

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• Cancer >> Testicular Cancer >> Age Group 20 - 30 >> Interview 12 >> Recalls that the doctors gave him plenty of information.

A lump was first found in the neck in 2000. After a biopsy, testicular cancer (teratoma) was diagnosed, and other secondary tumours found in lungs and abdomen; 5 cycles of chemotherapy (each cycle over 3 weeks, with 3 days in hospital); then surgery- biopsy of an abdominal tumour - found to be dead tissue.

• Cancer >> Testicular Cancer >> Age Group 31 - 40 >> Interview 26 >> Recalls that he and his wife found the tape recording of the consultation and the information booklets very useful.

Testicular cancer diagnosed in 1998; orchidectomy. No secondary tumours, but radiotherapy 5 times a week for 4 weeks to prevent recurrence.

• Cancer >> Testicular Cancer >> Age Group 51 - 55 >> Interview 03 >> Says that he was given so much information it almost became boring.

Testicular cancer (teratoma) diagnosed in 1996; orchidectomy. No evidence of secondary tumours; three cycles of chemotherapy (each cycle over three weeks with three days in hospital) to prevent recurrence.

• Cancer >> Testicular Cancer >> Age Group 31 - 40 >> Interview 07 >> Remembers that his doctor talked to him for a couple of hours about different treatment options and different types of tumour.

Testicular cancer (seminoma) diagnosed in 1998; orchidectomy. No evidence of any secondary tumours, but radiotherapy (2-3 times a week over 8 weeks) to prevent any recurrence.

• Cancer >> Testicular Cancer >> Age Group 31 - 40 >> Interview 19 >> Explains that he had the information he needed and asserts that too much information can be depressing.

Testicular cancer (seminoma and teratoma) diagnosed in 2001; orchidectomy. No evidence of secondary tumours; no more treatment, but regular monitoring (surveillance).

• Cancer >> Testicular Cancer >> Age Group 31 - 40 >> Interview 31 >> Suggests that if he had had more information he would have been better prepared for the news that his cancer had spread.

Testicular cancer diagnosed in 1999, with secondary tumours in the abdomen. Orchidectomy and chemotherapy (3 cycles with 2 days in hospital and one week at home for each cycle).

• Cancer >> Testicular Cancer >> Age Group 41 - 50 >> Interview 27 >> Recalls that he wanted information but that the doctors appeared too busy to talk to him.

Testicular cancer (seminoma) diagnosed in 2001; orchidectomy. No secondary tumours but 8 treatments of radiotherapy to prevent recurrence.

• Cancer >> Testicular Cancer >> Age Group 20 - 30 >> Interview 23 >> Recalls that he found the Cancerbackup's website very helpful.

Testicular cancer (teratoma) diagnosed in 2001; orchidectomy. No evidence of secondary tumours; no more treatment but regular monitoring (surveillance).

• Cancer >> Testicular Cancer >> Age Group 41 - 50 >> Interview 37 >> Says that the Internet is a brilliant way of finding information.

Diagnosed with testicular cancer (seminoma) with secondary tumours in 1991, followed by right orchidectomy and chemotherapy. In 1993, pain in lower abdomen. Left testicle was found to be fibrosed and infected. Left orchidectomy, and testosterone replacement therapy. Also has kidney disease and diabetes as the result of treatment.

• Cancer >> Testicular Cancer >> Age Group 41 - 50 >> Interview 29 >> Says that the Internet was helpful but that American and English websites sometimes gave conflicting information.

Testicular cancer (teratoma) diagnosed in 2001, orchidectomy. No secondary tumours; no further treatment but regular monitoring (surveillance).

• Cancer >> Testicular Cancer >> Age Group 41 - 50 >> Interview 09 >> Says that he found the 'chat rooms' and message boards on American websites useful.

Testicular cancer (seminoma) diagnosed in 1999; orchidectomy. Some suspicion that the tumour had spread, so 17 treatments with radiotherapy over one month.

• Cancer >> Testicular Cancer >> Age Group 41 - 50 >> Interview 39 >> Explains that he obtained useful information by talking to another patient.

In 1996, a lump was found at top of one leg. A biopsy of the lump led to a diagnosis of testicular cancer (seminoma). Chemotherapy for three months. Had 4 days in hospital for each cycle of chemotherapy.

• Cancer >> Testicular Cancer >> Age Group 20 - 30 >> Interview 42 >> Recognises the advantages of listening to other men who have had experience of testicular cancer.

Testicular cancer (teratoma) and secondary tumours diagnosed in 1994. Orchidectomy and 5 cycles of chemotherapy (each with 3 or 4 days in hospital and two weeks at home). In Feb. 1995 major surgery (left thoraco-abdominal retroperitoneal lymph node dissection) to remove a secondary tumour in the abdomen, near to the spine.

• Cancer >> Testicular Cancer >> Age Group 20 - 30 >> Interview 23 >> Recalls that he expected only to have the lump removed and was shocked to discover he was having a testicle removed.

Testicular cancer (teratoma) diagnosed in 2001; orchidectomy. No evidence of secondary tumours; no more treatment but regular monitoring (surveillance).

• Cancer >> Testicular Cancer >> Age Group 31 - 40 >> Interview 19 >> Recalls that the consultant explained everything very well.

Testicular cancer (seminoma and teratoma) diagnosed in 2001; orchidectomy. No evidence of secondary tumours; no more treatment, but regular monitoring (surveillance).

• Cancer >> Testicular Cancer >> Age Group 20 - 30 >> Interview 42 >> Recalls that the consultant explained everything and made him feel better.

Testicular cancer (teratoma) and secondary tumours diagnosed in 1994. Orchidectomy and 5 cycles of chemotherapy (each with 3 or 4 days in hospital and two weeks at home). In Feb. 1995 major surgery (left thoraco-abdominal retroperitoneal lymph node dissection) to remove a secondary tumour in the abdomen, near to the spine.

• Cancer >> Testicular Cancer >> Age Group 20 - 30 >> Interview 42 >> Recalls that one doctor spoke to his parents instead of to him, and that nurses were better at communicating.

Testicular cancer (teratoma) and secondary tumours diagnosed in 1994. Orchidectomy and 5 cycles of chemotherapy (each with 3 or 4 days in hospital and two weeks at home). In Feb. 1995 major surgery (left thoraco-abdominal retroperitoneal lymph node dissection) to remove a secondary tumour in the abdomen, near to the spine.

• Cancer >> Testicular Cancer >> Age Group 31 - 40 >> Interview 26 >> Recalls that he and his wife found the tape recording of the consultation and the information booklets very useful.

Testicular cancer diagnosed in 1998; orchidectomy. No secondary tumours, but radiotherapy 5 times a week for 4 weeks to prevent recurrence.

• Cancer >> Testicular Cancer >> Age Group 41 - 50 >> Interview 09 >> Recalls the time when he was examined at the hospital but was not given any information.

Testicular cancer (seminoma) diagnosed in 1999; orchidectomy. Some suspicion that the tumour had spread, so 17 treatments with radiotherapy over one month.

• Cancer >> Testicular Cancer >> Age Group 20 - 30 >> Interview 23 >> Recalls that he expected only to have the lump removed and was shocked to discover he was having an orchidectomy.

Testicular cancer (teratoma) diagnosed in 2001; orchidectomy. No evidence of secondary tumours; no more treatment but regular monitoring (surveillance).

• Cancer >> Testicular Cancer >> Age Group 31 - 40 >> Interview 08 >> Recalls lack of communication immediately after the operation.

Testicular cancer (teratoma) diagnosed in 1995, with secondary tumours in abdomen. Orchidectomy followed by four cycles of chemotherapy (each cycle over three weeks with 6 days in hospital).

• Cancer >> Testicular Cancer >> Age Group 51 - 55 >> Interview 04 >> Arthur Frank suggests that men may find it helpful to talk to someone who's survived testicular cancer.

Arthur W. Frank, diagnosed testicular cancer (seminoma) in October 1985. Orchidectomy followed by chemotherapy for secondary abdominal tumours. Author of At the Will of the Body (Boston: Houghton Mifflin, 1991; new edition 2002), and The Wounded Storyteller: Body, Illness and Ethics (University of Chicago, 1995).