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Lymphoma
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Cancer
>>
Lymphoma
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Hodgkin's Lymphoma
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Interview 27
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Being asked to bring someone with her to the hospital made her realise that something must be seriously wrong.
While pregnant she discovered swellings on her neck, which were not investigated. Following delivery an ear ache led to a diagnosis of Hodgkin's lymphoma in 2000, which was treated with chemotherapy.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 12
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Felt so shocked and numb that she couldn't take in everything the doctor was saying about the diagnosis, so initially feared the worst.
Diagnosed with Hodgkin's Disease in 1998 after losing weight and finding a lump in her neck. Treatment was chemotherapy followed by radiotherapy to her chest, which put her into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 41
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Was never told how potentially serious her illness was and the word 'cancer' was never mentioned. She felt this helped to give her a positive attitude
Hodgkin's lymphoma diagnosed in 1976 after she developed a lump on her neck. Chemotherapy put her into remission. Afterwards she contracted shingles and needed skin grafts and hair transplants because of severe scabbing on her scalp.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 32
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Had 2 relapses of his high grade NHL and the 2nd time was told he would die but was later offered a new treatment and found it difficult to adjust to
Non-Hodgkin's lymphoma diagnosed in 1996 after developing swellings in his neck and face. Treatment: chemotherapy, radiotherapy and a stem cell autograph. Two recurrences. Treatment included an allogenic bone marrow 'mini transplant'.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 39
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Had 10 months off sick but went in occasionally when her blood counts were high; struggled on her return to work and was advised to retire early; her
Mantle Cell non-Hodgkin's lymphoma was diagnosed in 1999 after she found a lump in her thigh. She was treated with chemotherapy and rituximab. She is in remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 24
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Her husband missed work to look after the children and lost pay. They paid for extra childcare and extra domestic cleaning to reduce her infection ris
Diagnosed with Hodgkin's disease in 1984, which relapsed in 1996, and non-Hodgkin's lymphoma in 2004. Treated with radiotherapy, chemotherapy, rituximab and autologous stem cell transplant. In remission.
Topic
Cancer
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Lymphoma
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Other sources of support
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Other sources of support
Other sources of supports
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 33
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Received lots of cards and gifts, which made her feel loved and looked after.
Hodgkin's lymphoma was diagnosed in 1993 after she noticed swollen glands in her neck following an infection she contracted while travelling abroad. Twelve sessions of chemotherapy put her into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 33
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Her three male friends shaved their heads with her and made a video of the process. She feels lucky not to have been over-concerned about her looks.
Hodgkin's lymphoma was diagnosed in 1993 after she noticed swollen glands in her neck following an infection she contracted while travelling abroad. Twelve sessions of chemotherapy put her into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 05
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Never felt alone having had many offers of help and support from friends, neighbours and parents of their children's friends.
Hodgkin's Disease diagnosed in 2004 treated with chemotherapy (ABVD). In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 13
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A GP's patients had been told he would be off work for several months with a serious illness but he was open with them if they wanted to know more.
Diagnosed with Hodgkin's disease in 2005 after finding lumps in his neck and having repeated episodes of fever. Had completed nine of twelve cycles of chemotherapy.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 42
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It was very hard for her husband who probably didn't share her optimism that she would survive; he was offered no help in dealing with his feelings.
Non-Hodgkin's lymphoma was diagnosed in 2001 after persistent itching and a cough. The tumour responded poorly to treatment and it took several chemotherapies, a stem cell transplant and radiotherapy to achieve remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 44
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Chemotherapy caused vaginal dryness so she didn't enjoy sex; she couldn't discuss it with her husband and wanted to pretend she was normal; a nurse fr
Non-Hodgkin's lymphoma treated with chemotherapy. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 06
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To reduce her risk of catching infections she stopped going out, and instead of going to the hospital for treatment by public transport accepted lifts
Non-Hodgkin's lymphoma diagnosed in 2005 after finding a swollen lymph gland. Currently being treated with chemotherapy (CHOP-R).
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 38
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Moved home in order to get a certain treatment and used a friend-of-a-friend, not only to buy her food, but also the extra towels, etc recommended to
Non-Hodgkin's lymphoma diagnosed in 2005 following diarrhoea and swollen lymph glands in her neck. Treated with chemotherapy and rituximab. A new tumour was discovered immediately after being told she was in remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 23
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His friends reacted to his illness in different ways: some didn't contact him while a few were very supportive.
Diagnosed with Hodgkin's disease in 1992 after finding a lump in his armpit. Treated with surgery and radiotherapy. Recurrence treated with chemotherapy and autologous and allogenic stem cell transplants. In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 22
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Was touched by offers of help from friends and learned that people like to be told how they can help; was disappointed to have less contact from frien
Diagnosed with Hodgkin's disease in 2002 after finding a lump on her neck. Chemotherapy damaged her lungs but also put her in remission. She has just completed chemotherapy and radiotherapy for a recurrence.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 35
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Was immobilised after treatment for a spinal tumour and stayed with friends for 5 years as he couldn't manage alone; it worked well because they didn'
Diagnosed with non-Hodgkin's lymphoma on his spine in 2001 after he experienced middle back pain resulting in paralysis. Radiotherapy treatment put him into remission but it took 2 years for him to regain full mobility.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 38
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A friend of a friend supplied her new flat with essential food when she was discharged from hospital after her first treatment.
Non-Hodgkin's lymphoma diagnosed in 2005 following diarrhoea and swollen lymph glands in her neck. Treated with chemotherapy and rituximab. A new tumour was discovered immediately after being told she was in remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 47
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Gained support from joining a youth club and a holiday for young people with cancer, made friends with fellow patients and supported a school mate thr
Diagnosed in 2001 with Stage II, Hodgkin's lymphoma. He had six blocks of chemotherapy over six months. He had a Hickman line and went into hospital twice a month to get his treatment. In remission since 2002.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 42
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Accepted her illness and was at peace: she felt she wouldn't die from it because God would look after her.
Non-Hodgkin's lymphoma was diagnosed in 2001 after persistent itching and a cough. The tumour responded poorly to treatment and it took several chemotherapies, a stem cell transplant and radiotherapy to achieve remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 20
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Gained peace from his trust in God; he believed that God had a plan and purpose for his life, so he took each day as it came and trusted that things w
Diagnosed with Mantle Cell non-Hodgkin's lymhoma in 1999 after a stranger pointed out a lump in his neck. Treated with chemotherapy, a stem cell transplant, and rituximab. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 28
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His wife went with him to treatment sessions, gave him injections, flushed his central line, kept his spirits up and put up with his moods while also
Was diagnosed with non-Hodgkin's lymphoma in 1993 after finding an abdominal lump. He had chemotherapy and interferon, followed by a stem cell transplant for a recurrence. In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 05
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Never felt alone having had many offers of help and support from friends, neighbours and parents of their children's friends.
Hodgkin's Disease diagnosed in 2004 treated with chemotherapy (ABVD). In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 23
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Saw his wife most days when in hospital for his stem cell transplants and occasional visits from his daughter gave him a boost when he was feeling par
Diagnosed with Hodgkin's disease in 1992 after finding a lump in his armpit. Treated with surgery and radiotherapy. Recurrence treated with chemotherapy and autologous and allogenic stem cell transplants. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 11
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Found his hospital stay more difficult mentally than physically - he felt isolated and bored and his room was depressing; he was determined to get out
Diagnosed with Mantle Cell non-Hodgkin's Lymphoma in 2000 after a tonsillectomy. After initial chemotherapy locally, he was referred to London for high dose chemotherapy and stem cell transplant.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 07
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He takes vitamin C every day to avoid infection, phones his GP for antibiotics if he feels a sore throat starting, and family members try to protect h
Non-Hodgkin's lymphoma diagnosed in 1992 following a persistent sore throat that did not respond to antibiotics. Initial chemotherapy treatment did not work but further chemotherapy put him into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 23
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His sister donated stem cells for an allogenic transplant and the G-CSF injections made her bones ache; she had to be sedated to go on the cell separa
Diagnosed with Hodgkin's disease in 1992 after finding a lump in his armpit. Treated with surgery and radiotherapy. Recurrence treated with chemotherapy and autologous and allogenic stem cell transplants. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 42
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Worried about her infection risk when she had to share a bathroom with others when in hospital for her stem cell transplant, and often didn't feel lik
Non-Hodgkin's lymphoma was diagnosed in 2001 after persistent itching and a cough. The tumour responded poorly to treatment and it took several chemotherapies, a stem cell transplant and radiotherapy to achieve remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 18
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He was excited to be treated with the new drug Zevalin and the staff watched with curiosity.
Non-Hodgkin's lymphoma diagnosed in 1998 after shoulder pain and finding a lump. Two years of watchful waiting then three bouts of drug treatment, with short remissions in between. Now in longer remission after receiving radiolabelled monoclonal antibody.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 19
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Thinks that patients should have a bit more say in planning their treatment schedules.
Hodgkins Disease diagnosed in 2004 after finding a lump in her neck. Eight cycles of ABVD chemotherapy put her into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 22
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She suddenly started feeling ill, her temperature rose above 38oC and she didn't understand what was going on or realise she was seriously ill.
Diagnosed with Hodgkin's disease in 2002 after finding a lump on her neck. Chemotherapy damaged her lungs but also put her in remission. She has just completed chemotherapy and radiotherapy for a recurrence.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 28
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His central line was replaced when it became infected a month before his stem cell transplant.
Was diagnosed with non-Hodgkin's lymphoma in 1993 after finding an abdominal lump. He had chemotherapy and interferon, followed by a stem cell transplant for a recurrence. In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 41
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Was treated when a teenager and never told that she might become infertile so was not anxious when later trying to get pregnant and produced three bea
Hodgkin's lymphoma diagnosed in 1976 after she developed a lump on her neck. Chemotherapy put her into remission. Afterwards she contracted shingles and needed skin grafts and hair transplants because of severe scabbing on her scalp.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 04
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When his lymphoma relapsed several alternative treatments were discussed and he accepted his specialist's recommendation.
Non-Hodgkin's lymphoma diagnosed in 1997 treated with chemotherapy (CHOP). First recurrence treated with high dose chemotherapy and autologous stem cell transplant. Second recurrence treated with intensive chemotherapy and rituximab.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 34
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Her low grade lymphoma did not need treating yet but would be monitored; she could however have chemotherapy now if she wished.
Follicular non-Hodgkin's lymphoma was diagnosed in 2005 after she took action on a lump she had had for many years. She has not been treated but is being monitored.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 19
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Was scared when told she'd need chemotherapy and worried about her fertility; even after preparing for it, starting chemotherapy was the scariest mome
Hodgkins Disease diagnosed in 2004 after finding a lump in her neck. Eight cycles of ABVD chemotherapy put her into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 21
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Personality changes damaged his marriage but he couldn't see it at the time; he was too proud to accept counselling and his marriage broke up.
Diagnosed with Hodgkin's disease in 1988 after night sweats and a lump in his neck, treated with radiotherapy. Recurrence treated with chemotherapy and autologous stem cell transplant. In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 47
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His illness pulled the family together, helping to overcome tensions in the household; his extended Hindu family did fasts and prayed for him.
Diagnosed in 2001 with Stage II, Hodgkin's lymphoma. He had six blocks of chemotherapy over six months. He had a Hickman line and went into hospital twice a month to get his treatment. In remission since 2002.
Cancer
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Lymphoma
>>
Non-Hodgkin's Lymphoma (low grade)
>>
Interview 28
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His wife went with him to treatment sessions, gave him injections, flushed his central line, kept his spirits up and put up with his moods while also
Was diagnosed with non-Hodgkin's lymphoma in 1993 after finding an abdominal lump. He had chemotherapy and interferon, followed by a stem cell transplant for a recurrence. In remission.
Cancer
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Lymphoma
>>
Non-Hodgkin's Lymphoma (high grade)
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Interview 25
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Her husband had to do household tasks that he'd never done before including clearing up after her.
Diagnosed with non-Hodgkin's lymphoma in 2005 after experiencing breathlessness. Fluid removed from around her heart followed by chemotherapy injected in her spine as well as intravenously. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 38
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One daughter finds information and updates people via email; the other is giving her mother a second home that will entitle her to treatment not avail
Non-Hodgkin's lymphoma diagnosed in 2005 following diarrhoea and swollen lymph glands in her neck. Treated with chemotherapy and rituximab. A new tumour was discovered immediately after being told she was in remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 47
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His mum often looked after him on the hospital ward, staying till late at night, and his brother took him home; his family's support helped him cope.
Diagnosed in 2001 with Stage II, Hodgkin's lymphoma. He had six blocks of chemotherapy over six months. He had a Hickman line and went into hospital twice a month to get his treatment. In remission since 2002.
Cancer
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Lymphoma
>>
Hodgkin's Lymphoma
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Interview 41
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Her parents had protected her by covering up how potentially serious her illness had been when she was a teenager; she realised only later how hard it
Hodgkin's lymphoma diagnosed in 1976 after she developed a lump on her neck. Chemotherapy put her into remission. Afterwards she contracted shingles and needed skin grafts and hair transplants because of severe scabbing on her scalp.
Cancer
>>
Lymphoma
>>
Hodgkin's Lymphoma
>>
Interview 22
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Both her parents were doctors and found it hard not being able to help her; her father suggested a second opinion because he didn't want to believe th
Diagnosed with Hodgkin's disease in 2002 after finding a lump on her neck. Chemotherapy damaged her lungs but also put her in remission. She has just completed chemotherapy and radiotherapy for a recurrence.
Cancer
>>
Lymphoma
>>
Non-Hodgkin's Lymphoma (low grade)
>>
Interview 20
>>
Gained peace from his trust in God; he believed that God had a plan and purpose for his life, so he took each day as it came and trusted that things w
Diagnosed with Mantle Cell non-Hodgkin's lymhoma in 1999 after a stranger pointed out a lump in his neck. Treated with chemotherapy, a stem cell transplant, and rituximab. In remission.
Cancer
>>
Lymphoma
>>
Non-Hodgkin's Lymphoma (high grade)
>>
Interview 42
>>
Accepted her illness and was at peace: she felt she wouldn't die from it because God would look after her.
Non-Hodgkin's lymphoma was diagnosed in 2001 after persistent itching and a cough. The tumour responded poorly to treatment and it took several chemotherapies, a stem cell transplant and radiotherapy to achieve remission.
Cancer
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Lymphoma
>>
Non-Hodgkin's Lymphoma (high grade)
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Interview 04
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Has had a lot of information via the clinic; he and his wife plan their questions for the consultant before appointments and can phone afterwards to a
Non-Hodgkin's lymphoma diagnosed in 1997 treated with chemotherapy (CHOP). First recurrence treated with high dose chemotherapy and autologous stem cell transplant. Second recurrence treated with intensive chemotherapy and rituximab.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 22
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Both her parents were doctors and found it hard not being able to help her; her father suggested a second opinion because he didn't want to believe th
Diagnosed with Hodgkin's disease in 2002 after finding a lump on her neck. Chemotherapy damaged her lungs but also put her in remission. She has just completed chemotherapy and radiotherapy for a recurrence.
Cancer
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Lymphoma
>>
Non-Hodgkin's Lymphoma (low grade)
>>
Interview 38
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One daughter finds information and updates people via email; the other is giving her mother a second home that will entitle her to treatment not avail
Non-Hodgkin's lymphoma diagnosed in 2005 following diarrhoea and swollen lymph glands in her neck. Treated with chemotherapy and rituximab. A new tumour was discovered immediately after being told she was in remission.
Cancer
>>
Lymphoma
>>
Non-Hodgkin's Lymphoma (high grade)
>>
Interview 25
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Her husband had to do household tasks that he'd never done before including clearing up after her.
Diagnosed with non-Hodgkin's lymphoma in 2005 after experiencing breathlessness. Fluid removed from around her heart followed by chemotherapy injected in her spine as well as intravenously. In remission.
Cancer
>>
Lymphoma
>>
Non-Hodgkin's Lymphoma (low grade)
>>
Interview 28
>>
His wife went with him to treatment sessions, gave him injections, flushed his central line, kept his spirits up and put up with his moods while also
Was diagnosed with non-Hodgkin's lymphoma in 1993 after finding an abdominal lump. He had chemotherapy and interferon, followed by a stem cell transplant for a recurrence. In remission.
Cancer
>>
Lymphoma
>>
Hodgkin's Lymphoma
>>
Interview 05
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Never felt alone having had many offers of help and support from friends, neighbours and parents of their children's friends.
Hodgkin's Disease diagnosed in 2004 treated with chemotherapy (ABVD). In remission.
Cancer
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Lymphoma
>>
Support from family and friends
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Support from family and friends
Support from family and friends
Cancer
>>
Lymphoma
>>
Hodgkin's Lymphoma
>>
Interview 47
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Gained support from joining a youth club and a holiday for young people with cancer, made friends with fellow patients and supported a school mate thr
Diagnosed in 2001 with Stage II, Hodgkin's lymphoma. He had six blocks of chemotherapy over six months. He had a Hickman line and went into hospital twice a month to get his treatment. In remission since 2002.
Cancer
>>
Lymphoma
>>
Non-Hodgkin's Lymphoma (high grade)
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Interview 45
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Sharing his experience with a support group after finishing his treatment made him feel less alone, but hearing of others who had died depressed him s
Diagnosed 1996 with stage IV Burkitt's lymphoma, a type of non-Hodgkin's lymphoma. He received chemotherapy as an inpatient for five months, followed by 15 sessions of radiotherapy.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 11
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Felt no need to join a support group because he trusted his doctors and felt sure he would survive.
Diagnosed with Mantle Cell non-Hodgkin's Lymphoma in 2000 after a tonsillectomy. After initial chemotherapy locally, he was referred to London for high dose chemotherapy and stem cell transplant.
Cancer
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Lymphoma
>>
Non-Hodgkin's Lymphoma (low grade)
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Interview 28
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Found it difficult to deal with being told his life expectancy might be greater than originally thought as he would have to plan for his future.
Was diagnosed with non-Hodgkin's lymphoma in 1993 after finding an abdominal lump. He had chemotherapy and interferon, followed by a stem cell transplant for a recurrence. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 30
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At monthly support group meetings he learns from other people's experiences of lymphoma and supports others.
Was diagnosed with non-Hodgkin's lymphoma in 2003 after 2-3 years of occasional abdominal pain. Treated with CHOP chemotherapy and rituximab. In remission but suffers from lymphoedema.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 19
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Used a charity website chat-room but found disappointingly few people of her own age there.
Hodgkins Disease diagnosed in 2004 after finding a lump in her neck. Eight cycles of ABVD chemotherapy put her into remission.
Cancer
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Lymphoma
>>
Non-Hodgkin's Lymphoma (low grade)
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Interview 10
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Found it wonderful to talk to a volunteer at a national charity 's local centre and obtained leaflets there.
Diagnosed with low grade follicular non-Hodgkin's lymphoma in 2001 following a biopsy of a lesion in her eye. Treatment was radiotherapy to the eye for 6 weeks. Two years later an enlarged lymph node was removed from her groin.
Cancer
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Lymphoma
>>
Non-Hodgkin's Lymphoma (high grade)
>>
Interview 06
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Was given information about lymphoma first, and about the chemotherapy and side effects later - which gave her time to take in what was happening.
Non-Hodgkin's lymphoma diagnosed in 2005 after finding a swollen lymph gland. Currently being treated with chemotherapy (CHOP-R).
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 14
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Used the library at the Maggie's Centre and looked up her proposed treatments on the internet - but some of her effort was wasted when her treatment p
Diagnosed with Hodgkin's Lymphoma in 2003 following tiredness and weight loss. Treated with various chemotherapies. Consistently low blood cell counts led to a splenectomy, resulting in remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 13
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Warns that information on the internet can be confusing, weird and wacky, and recommends sticking to reputable sites.
Diagnosed with Hodgkin's disease in 2005 after finding lumps in his neck and having repeated episodes of fever. Had completed nine of twelve cycles of chemotherapy.
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