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Lymphoma
Subject index
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Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 15
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Was dismayed to be told she had cancer but did not need treatment, which her friends found hard to believe, and she felt that the reason had not been
Low and high grade non-Hodgkin's lymphoma. Treatments included surgery, watch & wait, chemotherapy, radiotherapy and autologous stem cell transplant. Complications of anaemia, pleural effusions, repeated infections and an allergic reaction. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 16
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Had been geared up to have treatment so was shocked to be told he would be put on watch and wait instead and said it just didn't seem right.
Non-Hodgkin's lymphoma diagnosed in 1997 after finding a lump in his neck. 'Watch and wait' policy adopted. Later treated with various chemotherapies, a stem cell transplant, and a radiolabelled monoclonal antibody. Now offered a cord blood transplant.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 18
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Explains how often he saw his specialist during 'watch and wait' and what happened at those appointments.
Non-Hodgkin's lymphoma diagnosed in 1998 after shoulder pain and finding a lump. Two years of watchful waiting then three bouts of drug treatment, with short remissions in between. Now in longer remission after receiving radiolabelled monoclonal antibody.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 18
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Needed regular reassurance that he didn't need treatment and could forget about his illness by keeping busy between appointments with his specialist.
Non-Hodgkin's lymphoma diagnosed in 1998 after shoulder pain and finding a lump. Two years of watchful waiting then three bouts of drug treatment, with short remissions in between. Now in longer remission after receiving radiolabelled monoclonal antibody.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 46
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Felt his consultant had rushed him off to bank his sperm after their first meeting about treatment; he felt unprepared and wanted to know more about w
Diagnosed with Hodgkin's Lymphoma grade 2B in 2001. His treatment consisted of six months of fortnightly sessions of chemotherapy, followed by five weeks of radiotherapy. In remission since 2002.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 19
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Declined egg harvesting as she'd had insufficient time with experts to discuss the practical and ethical issues, it would delay her treatment, and the
Hodgkins Disease diagnosed in 2004 after finding a lump in her neck. Eight cycles of ABVD chemotherapy put her into remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 10
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Had total confidence in her oncologist's decisions about her treatment.
Diagnosed with low grade follicular non-Hodgkin's lymphoma in 2001 following a biopsy of a lesion in her eye. Treatment was radiotherapy to the eye for 6 weeks. Two years later an enlarged lymph node was removed from her groin.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 19
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Thinks that patients should have a bit more say in planning their treatment schedules.
Hodgkins Disease diagnosed in 2004 after finding a lump in her neck. Eight cycles of ABVD chemotherapy put her into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 24
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Her doctors didn't explain properly how much her tumours had shrunk with each treatment, causing her unnecessary anxiety.
Diagnosed with Hodgkin's disease in 1984, which relapsed in 1996, and non-Hodgkin's lymphoma in 2004. Treated with radiotherapy, chemotherapy, rituximab and autologous stem cell transplant. In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 19
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Says at first her consultant didn't like being questioned by her so she told him she didn't like being treated as a disease rather than a human being,
Hodgkins Disease diagnosed in 2004 after finding a lump in her neck. Eight cycles of ABVD chemotherapy put her into remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 23
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His consultant was insensitive in making light of his planned stem cell transplant which for him was a major life-changing event.
Diagnosed with Hodgkin's disease in 1992 after finding a lump in his armpit. Treated with surgery and radiotherapy. Recurrence treated with chemotherapy and autologous and allogenic stem cell transplants. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 38
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Compares consultants at two different hospitals: one didn't allow her to finish her questions and misled her about a clinical trial, the other communi
Non-Hodgkin's lymphoma diagnosed in 2005 following diarrhoea and swollen lymph glands in her neck. Treated with chemotherapy and rituximab. A new tumour was discovered immediately after being told she was in remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 42
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Felt isolated when having chemotherapy in a side room in a hospital ward as nurses and other staff rarely came to check her drip, see that she was all
Non-Hodgkin's lymphoma was diagnosed in 2001 after persistent itching and a cough. The tumour responded poorly to treatment and it took several chemotherapies, a stem cell transplant and radiotherapy to achieve remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (grade not stated)
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Interview 31
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Still knows very little about lymphoma and has been happy to trust that he will be OK; to his surprise he has not felt the need to find more informati
Was diagnosed with non-Hodgkin's lymphoma in 2004 after finding lumps in his neck and experiencing prolonged weight loss. Radiotherapy treatment put him into remission but he has other health problems.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 04
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Has had a lot of information via the clinic; he and his wife plan their questions for the consultant before appointments and can phone afterwards to a
Non-Hodgkin's lymphoma diagnosed in 1997 treated with chemotherapy (CHOP). First recurrence treated with high dose chemotherapy and autologous stem cell transplant. Second recurrence treated with intensive chemotherapy and rituximab.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 42
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Was given a booklet about the chemotherapy and, later, another about stem cell transplants, but had not had all the information she would have liked.
Non-Hodgkin's lymphoma was diagnosed in 2001 after persistent itching and a cough. The tumour responded poorly to treatment and it took several chemotherapies, a stem cell transplant and radiotherapy to achieve remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 10
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Had enough basic information about her lymphoma and did not want to know more that might not apply to her.
Diagnosed with low grade follicular non-Hodgkin's lymphoma in 2001 following a biopsy of a lesion in her eye. Treatment was radiotherapy to the eye for 6 weeks. Two years later an enlarged lymph node was removed from her groin.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 29
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Decided that if she wanted to hear only positive answers from her doctors and nurses she needed to be careful what she asked.
Was diagnosed with non-Hodgkin's lymphoma in 1985 after finding a lump in her neck. Four sessions of chemotherapy put her in remission. She has been well ever since.
Topic
Cancer
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Lymphoma
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Dealing with health professionals
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Dealing with health professionals
Dealing with health professionals
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 35
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A man with a spinal tumour describes his severe back pain and then temporary paralysis.
Diagnosed with non-Hodgkin's lymphoma on his spine in 2001 after he experienced middle back pain resulting in paralysis. Radiotherapy treatment put him into remission but it took 2 years for him to regain full mobility.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (high grade)
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Interview 45
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Remembers how the behaviour of staff towards him changed during an ultrasound scan and after an operation to remove some tumours and take a biopsy.
Diagnosed 1996 with stage IV Burkitt's lymphoma, a type of non-Hodgkin's lymphoma. He received chemotherapy as an inpatient for five months, followed by 15 sessions of radiotherapy.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 24
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Knew that complementary therapies were used to help people with cancer but was surprised that the professionals treating her would not recommend any.
Diagnosed with Hodgkin's disease in 1984, which relapsed in 1996, and non-Hodgkin's lymphoma in 2004. Treated with radiotherapy, chemotherapy, rituximab and autologous stem cell transplant. In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 24
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Had worried after a poor 1st day's harvest that not enough stem cells would be harvested, but was relieved after the 2nd day when it had been successf
Diagnosed with Hodgkin's disease in 1984, which relapsed in 1996, and non-Hodgkin's lymphoma in 2004. Treated with radiotherapy, chemotherapy, rituximab and autologous stem cell transplant. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 28
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His 1st harvest failed because of insufficient injections and his 2nd produced only just enough cells; he imagined the cell separator machine would be
Was diagnosed with non-Hodgkin's lymphoma in 1993 after finding an abdominal lump. He had chemotherapy and interferon, followed by a stem cell transplant for a recurrence. In remission.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 24
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After being discharged from hospital after her stem cell transplant she spent days in bed at home and repeatedly felt too exhausted to return to work.
Diagnosed with Hodgkin's disease in 1984, which relapsed in 1996, and non-Hodgkin's lymphoma in 2004. Treated with radiotherapy, chemotherapy, rituximab and autologous stem cell transplant. In remission.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 10
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Felt confident in the staff, her treatment was well organised, it wasn't stressful, traumatic or intrusive, and other people seemed more worried than
Diagnosed with low grade follicular non-Hodgkin's lymphoma in 2001 following a biopsy of a lesion in her eye. Treatment was radiotherapy to the eye for 6 weeks. Two years later an enlarged lymph node was removed from her groin.
Cancer
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Lymphoma
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Non-Hodgkin's Lymphoma (low grade)
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Interview 34
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Her low grade lymphoma did not need treating yet but would be monitored; she could however have chemotherapy now if she wished.
Follicular non-Hodgkin's lymphoma was diagnosed in 2005 after she took action on a lump she had had for many years. She has not been treated but is being monitored.
Cancer
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Lymphoma
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Hodgkin's Lymphoma
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Interview 08
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Precisely followed the instructions he was given about how and when to use his medication and other measures to counter unwanted effects of treatment.
Diagnosed in 1995 with Hodgkin's Disease following breathlessness and arthritis-like symptoms. His doctor also detected swollen lymph glands in his neck. Six cycles of chemotherapy put him into remission.
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