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Symptoms and diagnosis :
What is leukaemia?
Symptoms of leukaemia
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Watch and wait
Living with the symptoms of CLL
Tests and treatments :
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Central lines
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Being in hospital
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Unwanted effects of treatment
Hair loss and body image
Infections and other treatment complications
Treatment-induced infertility
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Remission and recovery from treatment
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Leukaemia
Subject index
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Cancer
>>
Leukaemia
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Acute leukaemias (AML, ALL, BAL)
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Brian - Interview 01
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After first leaving hospital Brian worried about having no blood tests done for a month; he was anxious before his first check-up that the results mig
Blood tests for another condition revealed low neutrophil counts, which led to a diagnosis of myelodysplastic syndrome but he was later told he had leukaemia. He was treated with 4 cycles of various chemotherapies and is in remission.
Cancer
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Leukaemia
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Acute leukaemias (AML, ALL, BAL)
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John - Interview 26
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John felt daunted by the prospect of having a central line fitted as he was already anxious from being told he had leukaemia and needed chemotherapy a
John was diagnosed with acute promyelocytic leukaemia (a type of acute myeloid leukaemia) after repeated viral infections. He was treated with ATRA (All Trans-Retinoic Acid) and 4 courses of chemotherapy as part of a clinical trial. He is in remission.
Cancer
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Leukaemia
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Acute leukaemias (AML, ALL, BAL)
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Julie - Interview 09
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Julie was allowed home for her birthday after her first month in hospital but was anxious about being away from hospital in case of problems. She enjo
Julie was diagnosed with acute myeloid leukaemia after experiencing weight loss and bruising. She had four courses of chemotherapy then high dose therapy and whole body irradiation followed by an autologous bone marrow transplant. She is in remission.
Cancer
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Leukaemia
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Myelodysplastic syndrome (MDS)
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Claire - Interview 45
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Claire worried about going into hospital; being shown around beforehand scared her more because it felt alien and she didn’t seem ill enough to be the
Claire was diagnosed with myelodysplastic syndrome after experiencing tiredness, aching legs and weight loss. She was treated with chemotherapy and an allogenic bone marrow transplant. She is in remission and has a new outlook on life.
Cancer
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Leukaemia
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Acute leukaemias (AML, ALL, BAL)
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Jim - Interview 21
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Jim was always scared of catching infections - he says don't be afraid to tell the nurses if you think their hygiene precautions aren't good enough.
Jim was diagnosed with acute lymphoblastic leukaemia after feeling tired on exertion. He spent 35 days in hospital having intensive chemotherapy followed by outpatient chemotherapy. He is in remission but his treatment will continue for another 2.5 years.
Cancer
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Leukaemia
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Acute leukaemias (AML, ALL, BAL)
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Julie - Interview 09
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Julie describes having total body irradiation. It was painless, but she felt like a caged animal and found the room cold.
Julie was diagnosed with acute myeloid leukaemia after experiencing weight loss and bruising. She had four courses of chemotherapy then high dose therapy and whole body irradiation followed by an autologous bone marrow transplant. She is in remission.
Cancer
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Leukaemia
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Chronic lymphocytic leukaemia (CLL)
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Marilyn - Interview 25
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Marilyn explains why it was decided that she needed treatment after 5 years of watch and wait and that although she was anxious about it she felt read
Marilyn was diagnosed with chronic lymphocytic leukaemia after having a blood test for something else. After 5 years of watch and wait she had oral chemotherapy. After 2 years in remission she had a different oral chemotherapy, which she has just finished.
Cancer
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Leukaemia
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Chronic lymphocytic leukaemia (CLL)
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Beverley - Interview 19
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Beverley’s sisters felt anxious while waiting to learn if they could donate stem cells. Her children were upset that they could not be tested.
Beverley was diagnosed with chronic lymphocytic leukaemia after complaining of tiredness and joint pains. She has been on ‘watch and wait’ for seven years but her symptoms are getting worse and she expects to start treatment soon.
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