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Colorectal CancerArrow
More than 5 years
Interview 39  

Interview 39

Age at Interview: 51
Sex: Female
Age at Diagnosis: 41
Background:

Brief outline:Diagnosed with colorectal cancer 1991, under went surgery.


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She explains the need for follow-up support after treatment.

 



I didn't have any um follow-up in the community. I didn't have uh any contact with the GPs unless I went um, because I'd got a twinge or something that worried me. I didn't have any contact from the hospital either, there wasn't a specialist nurse to help me through this. And a lot of people still get very little or no support afterwards, which I think is a shame.

Just to have the phone number of somebody you can ring is very important um, because you are bound to have questions. And I had questions um, that I didn't put to anyone and I'm, they made me more worried. If I'd been able to talk to somebody right away uh, then I could have saved myself quite a few sleepless nights.

Uh, and I think that's why it's so great if you can get a specialist nurse or somebody whose, you've got a phone number of, if you've got worries you can clear them up right away just by ringing them and having a chat, because we all have worries.

And I think nurse-led clinics are a great thing because nurses tend to have more time to talk to you and are more reassuring. And so if you can find a nurse-led clinic that you can go to with your worries, I think this is a really good idea.

Some hospitals now will give you um, a coupon to fill in if you've got a, a problem or a symptom and then you can be in charge of your own follow-up.
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