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The Faecal Occult Blood test for bowel cancer :
What is the NHS bowel cancer screening programme?
The pilot and the programme since then
Initial reaction to the invitation for screening
People's views of the initial information leaflet
Why people decide to take part in screening
Why some were reluctant or did not take part
The instructions for using the FOBt kit
Doing the Faecal Occult Blood test at home
Storing the samples and posting them
Getting a 'normal' result of a FOBt by post
Getting an 'unclear' or 'abnormal' result by post
When a screening test is abnormal :
Talking to specialist practitioners about results
Preparing for a colonoscopy
The colonoscopy procedure and treatment
Side effects of colonoscopy
Getting colonoscopy results
More treatment needed after an initial colonoscopy :
More treatment needed after an initial colonoscopy
Views of the service and messages to others :
Views of the service and messages to others
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Bowel screening
Subject index
Topic
Cancer
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Bowel screening
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Getting colonoscopy results
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Getting colonoscopy results
Getting colonoscopy results
Cancer
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Bowel screening
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More treatment needed after an initial colonoscopy
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More treatment needed after an initial colonoscopy
More treatment needed after an initial colonoscopy
Cancer
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Bowel screening
>>
Talking to specialist practitioners about results
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Talking to specialist practitioners about results
Talking to specialist practitioners about results
Cancer
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Bowel screening
>>
Preparing for a colonoscopy
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Preparing for a colonoscopy
Preparing for a colonoscopy
Cancer
>>
Bowel screening
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The colonoscopy procedure and treatment
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The colonoscopy procedure and treatment
The colonoscopy procedure and treatment
Cancer
>>
Bowel screening
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Side effects of colonoscopy
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Side effects of colonoscopy
Side effects of colonoscopy
Cancer
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Bowel screening
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Side effects of colonoscopy
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Side effects of colonoscopy
Side effects of colonoscopy
Cancer
>>
Bowel screening
>>
The colonoscopy procedure and treatment
>>
The colonoscopy procedure and treatment
The colonoscopy procedure and treatment
Cancer
>>
Bowel screening
>>
Preparing for a colonoscopy
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Preparing for a colonoscopy
Preparing for a colonoscopy
Cancer
>>
Bowel screening
>>
Talking to specialist practitioners about results
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Talking to specialist practitioners about results
Talking to specialist practitioners about results
Clip
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 28
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She said she was completely devastated when the test result came through.
She asked if she could be screened for bowel cancer. The result of a Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy, during which two benign polyps were removed.
Cancer
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Bowel screening
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FOBt with normal result
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Interview 09
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She had a normal result in 2002 and 2004. She felt a sense of relief.
She was invited to be screened for bowel cancer in 2002 and in 2004. The results of both the Faecal Occult Blood (FOB) tests were normal.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 42
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She didn't mind getting the unclear or abnormal results by post.
In 2006 her Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy. Three small polyps were removed. She had a right hemi-colectomy to remove a larger polyp, which was not malignant.
Cancer
>>
Bowel screening
>>
FOBt with normal result
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Interview 05
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Thinks that receiving results through the post is 'as good a way as any'.
Invited to be screened in 2001, when aged 62, and again in 2005, when aged 66. The results of the Faecal Occult Blood (FOB) tests were both normal.
Cancer
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Bowel screening
>>
FOBt with normal result
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Interview 27
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She sighed with relief when she read that her result was normal.
Invited to be screened for bowel cancer three times, between 2000 and 2005. The result of the Faecal Occult Blood (FOB) test has been normal each time.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 45
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She felt frightened when another test result came back 'abnormal'.
When screened for bowel cancer in 2005, the Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy. Two polyps were removed. One was found to be malignant (cancerous). Now she is well.
Cancer
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Bowel screening
>>
Interview 47
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Andrea Giles, specialist screening practitioner, explains what it means to have a normal result.
No information given.
Cancer
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Bowel screening
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FOBt with normal result
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Interview 13
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Her husband's results took two days and hers arrived after three days. She was initially alarmed when she saw the envelopes because it was so quick.
When she was first invited to be screened for bowel cancer she declined, but later, in 2006, when aged 58, she decided to do the Faecal Occult Blood (FOB) test. The result was normal.
Cancer
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Bowel screening
>>
FOBt with normal result
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Interview 05
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The letter with the results included a list of the symptoms of bowel cancer but it did not affect his behaviour.
Invited to be screened in 2001, when aged 62, and again in 2005, when aged 66. The results of the Faecal Occult Blood (FOB) tests were both normal.
Cancer
>>
Bowel screening
>>
FOBt with normal result
>>
Interview 13
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The letter giving her the results reminded her to look out for symptoms of bowel cancer, such as blood in her motion.
When she was first invited to be screened for bowel cancer she declined, but later, in 2006, when aged 58, she decided to do the Faecal Occult Blood (FOB) test. The result was normal.
Cancer
>>
Bowel screening
>>
FOBt with normal result
>>
Interview 12
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The letter with the list of symptoms influenced her and made her look at her motions more carefully.
Invited to be screened for bowel cancer in 2002 and 2005, when aged 65 and 69. The results of the Faecal Occult Blood (FOB) tests were normal.
Cancer
>>
Bowel screening
>>
FOBt with normal result
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Interview 03
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The letter said that the result of his test was normal. Six months later he re-read the list of symptoms, realised that he was passing blood, and was
Screened in 2000, aged 64. Faecal Occult Blood test (FOB) test was normal, but later he noticed blood in his stools, was referred to a consultant, diagnosed with cancer, and treated with surgery.
Cancer
>>
Bowel screening
>>
Interview 47
>>
Andrea Giles, specialist screening practitioner, explains what it means to have an unclear or abnormal result.
No information given.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 01
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He was more concerned about taking time off work than about what the abnormal test result meant for his health.
Invited for screening in 2001 when aged 62. The first Faecal Occult Blood (FOB) test suggested there might be a problem, so test repeated. He had a colonoscopy, was diagnosed with bowel cancer, had surgery and a temporary ileostomy.
Cancer
>>
Bowel screening
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Diagnosed with polyps
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Interview 22
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He felt 'fed up' when he had to repeat the test but thought that since he had started the screening process he ought to finish it.
Invited for screening in 2006, aged 64. The result of the Faecal Occult Blood (FOB) test was unclear so he repeated the test, which was abnormal. He had a colonoscopy, and a non-malignant polyp was removed.
Cancer
>>
Bowel screening
>>
Colonoscopy, all normal
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Interview 23
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He thought his abnormal FOB test result might be due to piles (haemorrhoids) bleeding from his gums, bleeding due to aspirin or perhaps a polyp.
Invited to be screened for bowel cancer in 2006, when aged 65. The result of the Faecal Occult Blood (FOB) test was abnormal so he had a colonoscopy. Nothing abnormal was found.
Cancer
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Bowel screening
>>
Diagnosed with cancer
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Interview 34
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His test results were abnormal so he assumed the worst and was keen to get on with further investigations.
Invited to be screened for bowel cancer in 2006, when aged 61. The result of the Faecal Occult Blood (FOB) test was abnormal, so he had a colonoscopy. One polyp was removed, which was found to be cancerous.
Cancer
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Bowel screening
>>
FOBt unclear, then normal
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Interview 04
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When she received an unclear result she felt anxious but at the same time was a bit reassured to read that an abnormal test result did not necessarily
Screened in 2002, when aged 63, Faecal Occult Blood (FOB) test normal. Screened again in 2005, the result was unclear, so the test was repeated twice, with normal results.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
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Interview 20
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The doctor phoned him within a few days to say that the polyps were benign (not cancerous).
Invited for screening in 2001. The result of his Faecal Occult Blood (FOB) test was abnormal. He had a colonoscopy and polypectomy. Subsequent colonoscopies have all been normal.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 24
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His abnormal test result made him so agitated that he went to his GP, who was reassuring.
Screened in 2001 and 2003. Results were normal. In 2005 he did another Faecal Occult Blood (FOB) test. The result was unclear. Another test was abnormal, so he had a colonoscopy, during which two polyps were removed. These were not malignant.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
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Interview 18
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The doctor explained that he had removed some polyps and had sent them to the laboratory for analysis.
Invited for screening in 2006, when aged 69. The Faecal Occult Blood (FOB) test was abnormal. This led to a colonoscopy, a biopsy, and then another colonoscopy and the removal of benign polyps.
Cancer
>>
Bowel screening
>>
Diagnosed with cancer
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Interview 35
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Before she went home the doctor told her that she had a suspicious looking polyp and that she would need to see a surgeon.
Screened in 2003, with a normal result. In 2005 another Faecal Occult Blood (FOB) test was abnormal. She had a colonoscopy, during which a small polyp was removed. This was followed by surgery to remove a larger cancerous polyp.
Cancer
>>
Bowel screening
>>
Colonoscopy, all normal
>>
Interview 38
>>
Immediately after her colonoscopy the nurse told her that the doctor had seen a slightly enlarged valve separating the large bowel from the small bowe
Invited to be screened for bowel cancer 3 times, between 2002 and 2006. The last Faecal Occult Blood (FOB) test result was abnormal so she had a colonoscopy, but nothing abnormal was found in the bowel.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 28
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The nurse rang her with the result of the colonoscopy. The polyps that had been removed were benign (not cancerous).
She asked if she could be screened for bowel cancer. The result of a Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy, during which two benign polyps were removed.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 31
>>
The nurse phoned to say that the polyp had been benign and that he did not need to keep the hospital appointment unless he wanted to discuss his resul
Invited to be screened for bowel cancer in 2006 when aged 68. The result of the Faecal Occult Blood (FOB) test was abnormal, so he had a colonoscopy, during which one benign polyp was removed.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 33
>>
He went to see the nurse at the hospital. She told him that the polyp removed during the colonoscopy was not cancerous.
He was invited to be screened for bowel cancer in 2006. The result of the Faecal Occult Blood (FOB) test was abnormal, so he had a colonoscopy, during which one benign polyp was removed.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 26
>>
The nurse explained everything and told him that the results were good. He will have another test in two years time.
Screened in 2006, when aged 66. The result of the Faecal Occult Blood (FOB) test was unclear. The next test was abnormal. A colonoscopy showed there were some benign polyps, which were removed.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 40
>>
He felt a great sense of relief when the nurse told him that he had only benign polyps and that the biopsy was 'clear'.
She was invited to be screened for bowel cancer. A Faecal Occult Blood (FOB) test in 2003 was abnormal so she repeated the test. This was also abnormal. She had a colonoscopy, during which polyps were removed.
Cancer
>>
Bowel screening
>>
Diagnosed with cancer
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Interview 15
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He went to the hospital to get his results a week after the colonoscopy. The doctor explained that he had cancer and would need surgery.
In 2001, aged 64, he was screened for bowel cancer. The result of the Faecal Occult Blood (FOB) test was abnormal. After a colonoscopy he was diagnosed with cancer and had surgery.
Cancer
>>
Bowel screening
>>
FOBt with normal result
>>
Interview 03
>>
The doctor told him that he had cancer and would need surgery as soon as possible.
Screened in 2000, aged 64. Faecal Occult Blood test (FOB) test was normal, but later he noticed blood in his stools, was referred to a consultant, diagnosed with cancer, and treated with surgery.
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 30
>>
The nurse was very concerned and told him in a very tactful, positive way that a polyp was 'potentially malignant'.
Screened for bowel cancer in 2006. The result was abnormal, so he had a colonoscopy. Six polyps were removed. They were all benign except one, which was "potentially malignant". He will have another colonoscopy in 2007.
Cancer
>>
Bowel screening
>>
Diagnosed with cancer
>>
Interview 01
>>
The surgeon told him he had cancer and showed him pictures of the inside of his bowel. A nurse helped him and his wife come to terms with the situatio
Invited for screening in 2001 when aged 62. The first Faecal Occult Blood (FOB) test suggested there might be a problem, so test repeated. He had a colonoscopy, was diagnosed with bowel cancer, had surgery and a temporary ileostomy.
Cancer
>>
Bowel screening
>>
Diagnosed with cancer
>>
Interview 46
>>
When she was telephoned to make an appointment with the surgeon she realised something was wrong, even though she had not had her results yet. She was
Invited to be screened for bowel cancer in 2006. The result of the Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy, when five polyps were removed. One polyp was cancerous, so she had a left hemi-colectomy.
Cancer
>>
Bowel screening
>>
Talking to specialist practitioners about results
>>
Talking to specialist practitioners about results
Talking to specialist practitioners about results
Cancer
>>
Bowel screening
>>
Diagnosed with polyps
>>
Interview 37
>>
He was glad to read that an unclear or abnormal FOB test result does not necessarily mean a person has cancer.
He was invited to be screened for bowel cancer in 2006, when aged 65. After an abnormal Faecal Occult Blood test he had a colonoscopy, during which two benign polyps were removed.
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