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The Faecal Occult Blood test for bowel cancer :
What is the NHS bowel cancer screening programme?
The pilot and the programme since then
Initial reaction to the invitation for screening
People's views of the initial information leaflet
Why people decide to take part in screening
Why some were reluctant or did not take part
The instructions for using the FOBt kit
Doing the Faecal Occult Blood test at home
Storing the samples and posting them
Getting a 'normal' result of a FOBt by post
Getting an 'unclear' or 'abnormal' result by post
When a screening test is abnormal :
Talking to specialist practitioners about results
Preparing for a colonoscopy
The colonoscopy procedure and treatment
Side effects of colonoscopy
Getting colonoscopy results
More treatment needed after an initial colonoscopy :
More treatment needed after an initial colonoscopy
Views of the service and messages to others :
Views of the service and messages to others
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Bowel screening
Subject index
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Cancer
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Bowel screening
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Colonoscopy, all normal
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Interview 38
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The nurse answered all her questions about the colonoscopy, reassuring her that there was nothing to worry about.
Invited to be screened for bowel cancer 3 times, between 2002 and 2006. The last Faecal Occult Blood (FOB) test result was abnormal so she had a colonoscopy, but nothing abnormal was found in the bowel.
Cancer
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Bowel screening
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Interview 47
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Specialist screening practitioner Andrea Giles explains what may happen after an abnormal FOB test result.
No information given.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 37
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He felt reassured when he was given the odds of having a serious problem and told that an abnormal FOB test result might be due to many things.
He was invited to be screened for bowel cancer in 2006, when aged 65. After an abnormal Faecal Occult Blood test he had a colonoscopy, during which two benign polyps were removed.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 34
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The nurse explained that bleeding may be due to polyps, which may be benign, and that they can be painlessly removed during a colonoscopy.
Invited to be screened for bowel cancer in 2006, when aged 61. The result of the Faecal Occult Blood (FOB) test was abnormal, so he had a colonoscopy. One polyp was removed, which was found to be cancerous.
Cancer
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Bowel screening
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Colonoscopy, all normal
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Interview 29
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The nurse was very helpful, went through everything and told him he could have a colonoscopy the following week.
Invited to be screened for bowel cancer in 2006, when aged 61. His Faecal Occult Blood (FOB) test was abnormal, so he had a colonoscopy. Nothing abnormal was found during the procedure.
Cancer
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Bowel screening
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Colonoscopy, all normal
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Interview 23
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The nurse emphasised the advantages of having a colonoscopy, but he felt he had a choice and could have decided not to have one.
Invited to be screened for bowel cancer in 2006, when aged 65. The result of the Faecal Occult Blood (FOB) test was abnormal so he had a colonoscopy. Nothing abnormal was found.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 30
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The nurse gave him an information booklet which explained that the colonoscope could perforate the bowel but that the chances of this happening are ab
Screened for bowel cancer in 2006. The result was abnormal, so he had a colonoscopy. Six polyps were removed. They were all benign except one, which was "potentially malignant". He will have another colonoscopy in 2007.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 43
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The nurse gave him detailed information and appeared to show genuine concern. He didn't want to hear details about the risks involved in colonoscopy.
In 2005 he had a Faecal Occult Blood (FOB) test, which was abnormal, so he had a colonoscopy, during which a polyp was found. Later he had a right hemi-colectomy and the polyp, which was found to be malignant, was removed.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 45
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She was given plenty of time think about having a colonoscopy but she decided immediately because she was afraid she might change her mind.
When screened for bowel cancer in 2005, the Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy. Two polyps were removed. One was found to be malignant (cancerous). Now she is well.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 28
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The nurse explained everything in detail and told her that she could ring her at any time if she had any other questions about the colonoscopy.
She asked if she could be screened for bowel cancer. The result of a Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy, during which two benign polyps were removed.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 40
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The nurse gave her the opportunity of talking to someone who had had a colonoscopy but she talked to two other nurses instead.
She was invited to be screened for bowel cancer. A Faecal Occult Blood (FOB) test in 2003 was abnormal so she repeated the test. This was also abnormal. She had a colonoscopy, during which polyps were removed.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 24
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He was given all the relevant information, and understood that a colonoscopy is considered to be very safe.
Screened in 2001 and 2003. Results were normal. In 2005 he did another Faecal Occult Blood (FOB) test. The result was unclear. Another test was abnormal, so he had a colonoscopy, during which two polyps were removed. These were not malignant.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 36
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She needed special blood tests before her colonoscopy because she had only one kidney and diabetes.
Screened for bowel cancer in 2006, when aged 70. The result of the Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy, during which some benign polyps were removed.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 35
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She thought the hospital was unhygienic and the nursing care on the ward was poor.
Screened in 2003, with a normal result. In 2005 another Faecal Occult Blood (FOB) test was abnormal. She had a colonoscopy, during which a small polyp was removed. This was followed by surgery to remove a larger cancerous polyp.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 34
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His male nurse put him at ease before and during the colonoscopy; the doctor asked him to sign a consent form.
Invited to be screened for bowel cancer in 2006, when aged 61. The result of the Faecal Occult Blood (FOB) test was abnormal, so he had a colonoscopy. One polyp was removed, which was found to be cancerous.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 35
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Her nurse stayed with her throughout the procedure. She liked seeing the inside of her bowel on the TV screen.
Screened in 2003, with a normal result. In 2005 another Faecal Occult Blood (FOB) test was abnormal. She had a colonoscopy, during which a small polyp was removed. This was followed by surgery to remove a larger cancerous polyp.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 30
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He had six polyps removed from the bowel. One was potentially malignant. He was fascinated to see the inside of the bowel.
Screened for bowel cancer in 2006. The result was abnormal, so he had a colonoscopy. Six polyps were removed. They were all benign except one, which was "potentially malignant". He will have another colonoscopy in 2007.
Cancer
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Bowel screening
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Colonoscopy, all normal
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Interview 38
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She was given antibiotics just before the colonoscopy because she had a leaking mitral valve in her heart.
Invited to be screened for bowel cancer 3 times, between 2002 and 2006. The last Faecal Occult Blood (FOB) test result was abnormal so she had a colonoscopy, but nothing abnormal was found in the bowel.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 22
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The nurses rang him two days after his colonoscopy to see if he was in 'good shape'. He appreciated their caring attitude.
Invited for screening in 2006, aged 64. The result of the Faecal Occult Blood (FOB) test was unclear so he repeated the test, which was abnormal. He had a colonoscopy, and a non-malignant polyp was removed.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 34
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He felt better when the nurse told him it was a good thing his cancer had been found early when it was easy to treat.
Invited to be screened for bowel cancer in 2006, when aged 61. The result of the Faecal Occult Blood (FOB) test was abnormal, so he had a colonoscopy. One polyp was removed, which was found to be cancerous.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 30
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The nurse was very concerned and told him in a very tactful, positive way that a polyp was 'potentially malignant'.
Screened for bowel cancer in 2006. The result was abnormal, so he had a colonoscopy. Six polyps were removed. They were all benign except one, which was "potentially malignant". He will have another colonoscopy in 2007.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 01
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The surgeon told him he had cancer and showed him pictures of the inside of his bowel. A nurse helped him and his wife come to terms with the situatio
Invited for screening in 2001 when aged 62. The first Faecal Occult Blood (FOB) test suggested there might be a problem, so test repeated. He had a colonoscopy, was diagnosed with bowel cancer, had surgery and a temporary ileostomy.
Cancer
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Bowel screening
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FOBt with normal result
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Interview 03
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After the operation he was in the high dependency unit for about 12 hours, then in an ordinary ward for two weeks before going home.
Screened in 2000, aged 64. Faecal Occult Blood test (FOB) test was normal, but later he noticed blood in his stools, was referred to a consultant, diagnosed with cancer, and treated with surgery.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 43
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He thought the nurses were 'wonderful'. They worked hard under difficult conditions.
In 2005 he had a Faecal Occult Blood (FOB) test, which was abnormal, so he had a colonoscopy, during which a polyp was found. Later he had a right hemi-colectomy and the polyp, which was found to be malignant, was removed.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 46
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Describes the operation, the pain relief, and post-operative care. She got 'fantastic' care from the nurses and doctors.
Invited to be screened for bowel cancer in 2006. The result of the Faecal Occult Blood (FOB) test was abnormal, so she had a colonoscopy, when five polyps were removed. One polyp was cancerous, so she had a left hemi-colectomy.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 35
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The specialist cancer nurse provided excellent continuity of care. She visited her in hospital and was there again when she saw the surgeon after the
Screened in 2003, with a normal result. In 2005 another Faecal Occult Blood (FOB) test was abnormal. She had a colonoscopy, during which a small polyp was removed. This was followed by surgery to remove a larger cancerous polyp.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 35
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The operation went well, but being in hospital was not pleasant and nursing care was inadequate.
Screened in 2003, with a normal result. In 2005 another Faecal Occult Blood (FOB) test was abnormal. She had a colonoscopy, during which a small polyp was removed. This was followed by surgery to remove a larger cancerous polyp.
Cancer
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Bowel screening
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Diagnosed with cancer
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Interview 35
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The operation went well, but being in hospital was not pleasant and nursing care was inadequate.
Screened in 2003, with a normal result. In 2005 another Faecal Occult Blood (FOB) test was abnormal. She had a colonoscopy, during which a small polyp was removed. This was followed by surgery to remove a larger cancerous polyp.
Cancer
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Bowel screening
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Diagnosed with polyps
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Interview 37
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He recommends screening for bowel cancer for anyone 'of a certain age' because early diagnosis may lead to a cure.
He was invited to be screened for bowel cancer in 2006, when aged 65. After an abnormal Faecal Occult Blood test he had a colonoscopy, during which two benign polyps were removed.
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