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Susan was diagnosed in 2005. She was put on alendronic acid but started having a severe burning sensation on her throat. She stopped taking the medication. She is very concerned about the possible side effects of pharmacological treatments.
In 2003 Diana was diagnosed with severe osteoporosis of the spine. She paid herself to have the Forsteo (teriparatide) treatment that consists of daily subcutaneous injections for 18 months. Describes Forsteo as ‘marvellous’ Currently on Actonel once a week.
Diagnosed in 2004 following complains of back and neck pains; on alendronic acid, 70 mg once weekly. She has had three bone density scans and there was improvement on the second but the third revealed a small deterioration of bone density.
Betty was diagnosed in 2004 and was initially put on Fosamax but then changed to Pamidronate infusions every three months. She stopped her treatment for two years because she no longer was able to use public transport. Her new hospital is nearer and her daughter drives her there.
Diagnosed in 1994 after a DXA scan revealed severe osteoporosis. Her consultant prescribed Fosamax at first, then added Calcium, Vitamin D and HRT. Currently she carries with the same treatment minus HRT and takes Calcichew D3 Forte. She has regained bone density and is osteopenic.
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