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Victoria Iris was diagnosed in 1989 and at that time the only treatment available was HRT. Over the years her treatment has changed; Didronel, daily Fosamax and weekly Fosamax. Currently she is on the 18 months Forsteo (teriparatide) treatment. Victoria Iris developed Kyphosis but she didn’t become aware of it until it was evident.
Around 1994, Joan was prescribed increasing doses of steroid tablets over a nine month period to treat auto immune haemophilic anemia. The steroids caused her to develop osteoporosis. She has severe curvature of the spine. Medication; ibandronate infusions.
Susannah was diagnosed in 1978. Over the years she has had many fractures; to her spine, wrists, toe, ribs, etc. She describes her condition as “extreme osteoporosis”. Susannah does not take any medication. She is concerned about the side effects of drugs.
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