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In 1984 Emma had a hysterectomy. In 1992 she complained of severe headaches and was started on hormone replacement therapy (HRT). Diagnosed with osteoporosis around 1994-6 following ribs fracture. Current medication: Strontium ranelate (Protelos) 2 grams every night. Emma also takes omega 3 and cod liver oil.
Diagnosed in 2003. She has been on several medications: Fosamax, Actonel and Bonviva. She has experienced side effects with all of them. Now off medication and waiting for her next DXA scan. Considering taking the newly licensed once a year drug Aclasta (zoledronic acid).
In 1984 Emma had a hysterectomy. In 1992 she complained of severe headaches and was started on hormone replacement therapy (HRT). Diagnosed with osteoporosis around 1994-6 following ribs fracture. Current medication: Strontium ranelate (Protelos) 2 grams every night. Emma also takes omega 3 and cod liver oil.
Susan was diagnosed in 2005. She was put on alendronic acid but started having a severe burning sensation on her throat. She stopped taking the medication. She is very concerned about the possible side effects of pharmacological treatments.
Diagnosed in 2003; was initially put on Didronel and then on Actonel and currently on weekly alendronic acid. He has doubts about the effectiveness of his medication. He suffers from severe back pain. Last DXA scan showed that he has three vertebral fractures. Recently he was referred to a consultant.
Diagnosed in 2005 and prescribed Fosamax 70 mg, once weekly and calcium tablets twice daily. A bone density scan in 2007 revealed that her bone density has improved and that she is osteopenic rather than osteoporotic. Linda continues taking her medication.
Betty was diagnosed in 2004 and was initially put on Fosamax but then changed to Pamidronate infusions every three months. She stopped her treatment for two years because she no longer was able to use public transport. Her new hospital is nearer and her daughter drives her there.
Diagnosed in1989 and on hormone replacement therapy (HRT) for fourteen years. Currently on alendronic acid, 70 milligrams once weekly and Calcichew D3 Forte twice daily. Her bone density mass has improved particularly on her hips. She was also diagnosed with mastocytosis.
Her diagnosis of osteoporosis was prompted by her being invited by the osteoporosis nurse for a bone density scan. The type of fracture she had was unusually severe for the type of fall she incurred and, her age. She takes Actonel 3mg once weekly and calcium tablets.
Jane’s excruciating back pain that started during labour wasn’t investigated until after six weeks later. Eventually she was diagnosed with osteoporosis through pregnancy but also with Coeliac disease. Jane says that she had coeliac symptoms for many years but again, these were not investigated. She is on Calcichew D3 Forte but not on medication for osteoporosis.
In 1981 Michele was diagnosed with severe endometriosis. In 1995 and following a health assessment she was told that she was at risk of osteoporosis and was initially put on etidronate. Two years later her medication was changed to risedronate (Actonel). She also has coeliac disease.
Diagnosed in 2005 and prescribed Fosamax 70 mg, once weekly and calcium tablets twice daily. A bone density scan in 2007 revealed that her bone density has improved and that she is osteopenic rather than osteoporotic. Linda continues taking her medication.
In 1999 and following a wrist fracture, the doctor at the hospital advice her to ask her GP for a bone density scan to test for osteoporosis. No maternal history of osteoporosis, but surgery to both her kidneys. On alendronic acid once a week and on Adcal D3 once daily.
Susan was diagnosed in 2005. She was put on alendronic acid but started having a severe burning sensation on her throat. She stopped taking the medication. She is very concerned about the possible side effects of pharmacological treatments.
Diagnosed in 2001. Ann has had side effects from several of the osteoporosis treatments; problems with swallowing, heartburn and pain. She is currently on Bonviva (ibandronate) once monthly orally, but she is changing to the intravenous injection form administered every three months. She was also diagnosed with coeliac disease.
In 2002 Sarah took part in a clinical trial were she was first diagnosed with osteoporosis. It seems that her diagnosis wasn’t sent to her GP. In 2008 she fell and hurt her back and her GP sent her for an x-ray and it was then that her condition was officially diagnosed. Current treatment: alendronic acid once weekly and calcium tablets.
Diagnosed in 1994 after complaining of severe back pain. She is currently on Actonel (risedronate) but was first put on Didronel (etidronate) and then Fosamax once a week. Recent DXA scans revealed that her bone density has greatly improved.
Victoria Iris was diagnosed in 1989 and at that time the only treatment available was HRT. Over the years her treatment has changed; Didronel, daily Fosamax and weekly Fosamax. Currently she is on the 18 months Forsteo (teriparatide) treatment. Victoria Iris developed Kyphosis but she didn’t become aware of it until it was evident.
James is on alendronic acid once weekly and calcium tablets two a day. He also takes Omeprazole and Domperidone for his acid reflux. For a dysfunctional bladder he takes amitriptyline at bedtime. He had vertebroplasty surgery done three times to repair collapsed vertebraes but the last time it was unsuccessful and is waiting to have it done again.
Robert was diagnosed with osteoporosis at the age of forty-three. Robert had to wait seven months before been referred to a bone metabolic specialist who sent him without delay to have a bone density scan. Now his osteoporosis is under control but he continues experiencing severe pain due to the damage caused by the condition.
James is on alendronic acid once weekly and calcium tablets two a day. He also takes Omeprazole and Domperidone for his acid reflux. For a dysfunctional bladder he takes amitriptyline at bedtime. He had vertebroplasty surgery done three times to repair collapsed vertebraes but the last time it was unsuccessful and is waiting to have it done again.
Diagnosed in 2006 following a compressed T11 fracture in the spine; experienced severe pain. Surgical procedure; Kyphoplasty. Oral medications provoked adverse side effects. Currently on intravenous drug; ibandronate 3 mg once every three months plus calcium tablets.
Diagnosed in 2001. Ann has had side effects from several of the osteoporosis treatments; problems with swallowing, heartburn and pain. She is currently on Bonviva (ibandronate) once monthly orally, but she is changing to the intravenous injection form administered every three months. She was also diagnosed with coeliac disease.
In 1981 Michele was diagnosed with severe endometriosis. In 1995 and following a health assessment she was told that she was at risk of osteoporosis and was initially put on etidronate. Two years later her medication was changed to risedronate (Actonel). She also has coeliac disease.
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