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Bones & joints
Osteoporosis
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Full list of topics
Diagnosis and learning more about osteoporosis :
What is osteoporosis? (Introduction Dr. Ashok Bhalla)
Being diagnosed with osteoporosis
DXA scans and other tests for osteoporosis
Who develops osteoporosis?
Treatments and interventions :
Medication for osteoporosis
Physiotherapy and hydrotherapy for osteoporosis
Surgery for osteoporosis
Use of complementary therapies by patients with osteoporosis
Managing osteoporosis :
Pain and other physical problems in osteoporosis
Pain and medication in osteoporosis
Food, diet and supplements for osteoporosis
Osteoporosis, smoking and alcohol
Osteoporosis and exercise
Information and support :
Information needs for people with osteoporosis
Sources of information for people with osteoporosis
Osteoporosis organisations and local support groups
Doctor - patient communication :
Communicating with health professionals
Messages to doctors and nurses working with people with osteoporosis
Living with osteoporosis :
Impact on home due to osteoporosis
Family, friends and support for people with osteoporosis
Osteoporosis, mobility, driving and transport
The effect of osteoporosis on work and finances
Osteoporosis, social life, leisure and holidays
Feelings and thoughts about life and body image :
Body image of people with osteoporosis
Feelings and thoughts about osteoporosis
Messages to others with osteoporosis
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Osteoporosis
Subject index
Clip
Bones & joints
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Osteoporosis
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Age of diagnosis 40-49
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Emma - Interview 14
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Emma gets headaches when she is at the gym and she is unsure what exercises she should be doing.
In 1984 Emma had a hysterectomy. In 1992 she complained of severe headaches and was started on hormone replacement therapy (HRT). Diagnosed with osteoporosis around 1994-6 following ribs fracture. Current medication: Strontium ranelate (Protelos) 2 grams every night. Emma also takes omega 3 and cod liver oil.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Jenny - Interview 17
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Jenny had private physiotherapy sessions that enabled her to devise an exercise programme that is good and safe.
Diagnosed in 2003. She has been on several medications: Fosamax, Actonel and Bonviva. She has experienced side effects with all of them. Now off medication and waiting for her next DXA scan. Considering taking the newly licensed once a year drug Aclasta (zoledronic acid).
Bones & joints
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Osteoporosis
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Age of diagnosis 40-49
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Emma - Interview 14
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Emma’s GP reassured her that her vegetarian diet was a healthy and good diet for her osteoporosis. She also takes Omega 3 and cod liver oil which help
In 1984 Emma had a hysterectomy. In 1992 she complained of severe headaches and was started on hormone replacement therapy (HRT). Diagnosed with osteoporosis around 1994-6 following ribs fracture. Current medication: Strontium ranelate (Protelos) 2 grams every night. Emma also takes omega 3 and cod liver oil.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Susan - Interview 11
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Susan felt that she hadn’t received enough information from her doctors about the side effects or the effectiveness of her medication.
Susan was diagnosed in 2005. She was put on alendronic acid but started having a severe burning sensation on her throat. She stopped taking the medication. She is very concerned about the possible side effects of pharmacological treatments.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Laurence - Interview 07
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Laurence would like advice from his GP about whether to have physiotherapy and how much exercise to do.
Diagnosed in 2003; was initially put on Didronel and then on Actonel and currently on weekly alendronic acid. He has doubts about the effectiveness of his medication. He suffers from severe back pain. Last DXA scan showed that he has three vertebral fractures. Recently he was referred to a consultant.
Bones & joints
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Osteoporosis
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Age of diagnosis 60-69
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Linda - Interview 21
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Although Linda finds her regular visits to the gym boring, since she has been diagnosed with osteoporosis she goes regularly because she believes it i
Diagnosed in 2005 and prescribed Fosamax 70 mg, once weekly and calcium tablets twice daily. A bone density scan in 2007 revealed that her bone density has improved and that she is osteopenic rather than osteoporotic. Linda continues taking her medication.
Bones & joints
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Osteoporosis
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Age of diagnosis 70+
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Betty - Interview 31
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Betty feels rushed during her GP appointment and wishes there was more time for discussion.
Betty was diagnosed in 2004 and was initially put on Fosamax but then changed to Pamidronate infusions every three months. She stopped her treatment for two years because she no longer was able to use public transport. Her new hospital is nearer and her daughter drives her there.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Rose - Interview 33
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Allow people time to get up from a lying position after an examination. They will be slower and are frightened of having another fracture.
Diagnosed in1989 and on hormone replacement therapy (HRT) for fourteen years. Currently on alendronic acid, 70 milligrams once weekly and Calcichew D3 Forte twice daily. Her bone density mass has improved particularly on her hips. She was also diagnosed with mastocytosis.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Iris - Interview 24
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Provide ongoing support for the newly diagnosed and opportunities for people to share their experiences.
Her diagnosis of osteoporosis was prompted by her being invited by the osteoporosis nurse for a bone density scan. The type of fracture she had was unusually severe for the type of fall she incurred and, her age. She takes Actonel 3mg once weekly and calcium tablets.
Bones & joints
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Osteoporosis
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Age of diagnosis 23-39
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Jane - Interview 19
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Think creatively when you are listening to someone’s symptoms.
Jane’s excruciating back pain that started during labour wasn’t investigated until after six weeks later. Eventually she was diagnosed with osteoporosis through pregnancy but also with Coeliac disease. Jane says that she had coeliac symptoms for many years but again, these were not investigated. She is on Calcichew D3 Forte but not on medication for osteoporosis.
Bones & joints
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Osteoporosis
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Age of diagnosis 40-49
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Michelle - Interview 02
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Increase awareness and preventative measures amongst young people.
In 1981 Michele was diagnosed with severe endometriosis. In 1995 and following a health assessment she was told that she was at risk of osteoporosis and was initially put on etidronate. Two years later her medication was changed to risedronate (Actonel). She also has coeliac disease.
Bones & joints
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Osteoporosis
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Age of diagnosis 60-69
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Linda - Interview 21
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Provide written information including a list of resources of where to find out further information about osteoporosis.
Diagnosed in 2005 and prescribed Fosamax 70 mg, once weekly and calcium tablets twice daily. A bone density scan in 2007 revealed that her bone density has improved and that she is osteopenic rather than osteoporotic. Linda continues taking her medication.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Gloria - Interview 06
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When telling a patient their diagnosis, spend more time giving them explanation and information.
In 1999 and following a wrist fracture, the doctor at the hospital advice her to ask her GP for a bone density scan to test for osteoporosis. No maternal history of osteoporosis, but surgery to both her kidneys. On alendronic acid once a week and on Adcal D3 once daily.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Susan - Interview 11
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Get plenty of information and support, live healthily and if you have back problems push your doctor for an earlier diagnosis.
Susan was diagnosed in 2005. She was put on alendronic acid but started having a severe burning sensation on her throat. She stopped taking the medication. She is very concerned about the possible side effects of pharmacological treatments.
Bones & joints
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Osteoporosis
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Age of diagnosis 60-69
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Ann - Interview 35
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Carry out good back care and invest in comfortable footwear.
Diagnosed in 2001. Ann has had side effects from several of the osteoporosis treatments; problems with swallowing, heartburn and pain. She is currently on Bonviva (ibandronate) once monthly orally, but she is changing to the intravenous injection form administered every three months. She was also diagnosed with coeliac disease.
Bones & joints
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Osteoporosis
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Age of diagnosis 60-69
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Sarah - Interview 27
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Fractures do heal and you will get better.
In 2002 Sarah took part in a clinical trial were she was first diagnosed with osteoporosis. It seems that her diagnosis wasn’t sent to her GP. In 2008 she fell and hurt her back and her GP sent her for an x-ray and it was then that her condition was officially diagnosed. Current treatment: alendronic acid once weekly and calcium tablets.
Bones & joints
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Osteoporosis
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Age of diagnosis 50-59
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Pat - Interview 32
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Be as active as you possibly can, have a high calcium diet and get in contact with your local support group or ring the NOS helpline.
Diagnosed in 1994 after complaining of severe back pain. She is currently on Actonel (risedronate) but was first put on Didronel (etidronate) and then Fosamax once a week. Recent DXA scans revealed that her bone density has greatly improved.
Bones & joints
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Osteoporosis
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Age of diagnosis 60-69
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Victoria Iris - Interview 30
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It’s not the end of the world, follow the advice of your doctors and it can be prevented from getting much worse.
Victoria Iris was diagnosed in 1989 and at that time the only treatment available was HRT. Over the years her treatment has changed; Didronel, daily Fosamax and weekly Fosamax. Currently she is on the 18 months Forsteo (teriparatide) treatment. Victoria Iris developed Kyphosis but she didn’t become aware of it until it was evident.
Bones & joints
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Osteoporosis
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Age of diagnosis 70+
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James - Interview 36
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Recognise that as you get older your strength and energy will become limited. It is not just because of osteoporosis.
James is on alendronic acid once weekly and calcium tablets two a day. He also takes Omeprazole and Domperidone for his acid reflux. For a dysfunctional bladder he takes amitriptyline at bedtime. He had vertebroplasty surgery done three times to repair collapsed vertebraes but the last time it was unsuccessful and is waiting to have it done again.
Bones & joints
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Osteoporosis
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Age of diagnosis 40-49
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Robert - Interview 28
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Remain positive, try to keep your sense of humour and take control of managing your condition.
Robert was diagnosed with osteoporosis at the age of forty-three. Robert had to wait seven months before been referred to a bone metabolic specialist who sent him without delay to have a bone density scan. Now his osteoporosis is under control but he continues experiencing severe pain due to the damage caused by the condition.
Bones & joints
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Osteoporosis
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Age of diagnosis 70+
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James - Interview 36
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James has had two vertebroplasty to repair collapsed vertebras.
James is on alendronic acid once weekly and calcium tablets two a day. He also takes Omeprazole and Domperidone for his acid reflux. For a dysfunctional bladder he takes amitriptyline at bedtime. He had vertebroplasty surgery done three times to repair collapsed vertebraes but the last time it was unsuccessful and is waiting to have it done again.
Bones & joints
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Osteoporosis
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Age of diagnosis 70+
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Noreen - Interview 25
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Noreen recommends kyphoplasty to others because although she is not pain free, her spine is more stable.
Diagnosed in 2006 following a compressed T11 fracture in the spine; experienced severe pain. Surgical procedure; Kyphoplasty. Oral medications provoked adverse side effects. Currently on intravenous drug; ibandronate 3 mg once every three months plus calcium tablets.
Bones & joints
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Osteoporosis
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Age of diagnosis 60-69
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Ann - Interview 35
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Ann’s doctor advised her that going up and down her stairs at home several times a day was good exercise when the weather was bad.
Diagnosed in 2001. Ann has had side effects from several of the osteoporosis treatments; problems with swallowing, heartburn and pain. She is currently on Bonviva (ibandronate) once monthly orally, but she is changing to the intravenous injection form administered every three months. She was also diagnosed with coeliac disease.
Bones & joints
>>
Osteoporosis
>>
Age of diagnosis 40-49
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Michelle - Interview 02
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Michelle was advised to run for no longer than ninety minutes per session but she would like some advice about what type of exercise would be best for
In 1981 Michele was diagnosed with severe endometriosis. In 1995 and following a health assessment she was told that she was at risk of osteoporosis and was initially put on etidronate. Two years later her medication was changed to risedronate (Actonel). She also has coeliac disease.
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