National Osteoporosis Society (NOS)
Camerton,Bath, Somerset BA2 0PJ
National charity that provides information and advice on all aspects of osteoporosis including the menopause, medication, diet, medical information and exercise. The Helpline service is staffed with specially trained nurses. Has local support groups throughout the country. It produces clear and up-to-date information in booklets and leaflets on all aspects of the condition plus a quarterly magazine: Osteoporosis News.
Arthritis Research Campaign (ARC)
www.arc.org.uk
Info@arc.org.uk
Tel: 0870 850 5000
Copeman House, St Mary's Court, St Mary's Gate, Chesterfield, Derbyshire, S41 7TD
Aims to raise funds to promote medical research into the cause, treatment and cure of arthritic conditions: to educate medical students, doctors and allied health professionals about arthritis and to provide information to people affected by arthritis and to the general public.
World Health Organisation FRAX calculator
http://courses.washington.edu/bonephys/FxRiskCalculator.html
Keith found this Canadian website very usful it has a fracure risk calculator that is easy to use.
Osteoporosis 2000
Tel: 0114 234 4433
Learoyd Way, Hillsborough Barracks, Langsett Road, Sheffield S6 2LR
It provides help and information for people with osteoporosis and their families through their helpline, drop-in-centre and support groups. It organises exercise for health classes in the city of Sheffield and surrounding areas.
National Health Information and Support Sources
Please click on the link below for our list of national health information and support sources.
www.healthtalkonline.org/Page/National_Health_Information
Advicenow
CAN Mezzanine, 32-36 Loman Street, London SE1 0EH
Advicenow is a web resource which provides links to information and the law and
your rights in England and Wales.
Age UK
Provide reliable information, advice and fact sheets for older people.
Back Care UK
www.backcare.org.uk
info@backcare.org.uk
Tel: 020 8977 5474
16 Elmtree Road, Teddington, Middlesex, TW11 8ST
Is an independent national charity that helps people manage and prevent back pain by providing information, promoting self help, encouraging debate and funding research into better back health.
BalanceTraining.org.UK
The site gives useful information on how to avoid falls. It includes tips on balance training for older people.
Benefits Enquiry Line (BEL)
Bel-Customer-Services@dwp.gsi.gov.uk
Tel: 0800 882200 (8.30am-6.30pm,
Monday-Friday; 9am-1pm, Saturday)
Textphone: 0800 243355
201 Red Rose House, Lancaster Road, Preston, Lancashire PR1 1HB
The Benefit Enquiry Line is a benefits helpline for people with disabilities, their carers and representatives. It is part of the Department for Work and Pensions. It gives advice and information on benefits and how to claim them.
British Red Cross
Telephone: 0870 170 7000
UK Office, 44 Moorfields, London EC2Y 9AL
Provides extra support and care at home and it is a service offered by volunteers. The services includes: assistance with shopping, collecting prescriptions, companionship and helping to rebuild confidence. The service is available on a short-term basis and is provided free of charge. Referrals are accepted from GP’s, primary care trusts, hospitals, social workers and individuals. For further information get in touch with your local Red Cross branch office.
Coeliac UK
www.coeliac.org.uk/
Helpline: 0870 444 8804
Coeliac UK, 3rd Floor, Apollo Centre, Desborough Road, High Wycombe, Buckinghamshire, HP11 2QW
Coeliac UK is the leading charity working for people with coeliac disease and dermatitis herpetiformis (DH). They providing expert and independent information to help people manage their health and diet. They campaigning to improve access to fast diagnosis, good subsequent healthcare and safe foods - in the home and out and research new treatments and the possibilities of a cure.
Counsel and Care
Tel: 0845 300 7585 (Helpline open10am-4pm, Monday-Friday;10am-1pm Wednesday)
Twyman House, 16 Bonny Street, London NW1 9PG
Counsel and Care gives advice and information to older people, their relatives and carers on issues such as community care and housing with care.
Dial UK
Tel: 01302 310123 (Helpline open 9am-5pm Monday-Thursday; 9am-4pm Friday)
Textphone: 01302 310123
St Catherine’s, Tickhill Road, Doncaster, South Yorkshire DN4 8QN
Dial UK is a national organisation for a network of 140 local disability information and advice services (DIALs) run by and for disabled people. They provide information and advice to disabled people and others on all aspects of living with a disability within their own area.
Dial-a-Ride
Dial-a-Ride is a door-to-door service for disabled people who cannot use public transport. It is a local service and details about it can be found in your local telephone directory. There is no national website.
Expert patient’s programme
The expert patient’s programme is a lay-led self-management programme that has been specifically developed for people living with long-term conditions. It aims to support people to increase their confidence, improve their quality of life and better manage their condition
Gynaecological and Endocrine Service
Tel; 020 7346 8251
King’s College Hospital, Denmark Hill, London SE5 9RS
This service provides assessment and treatment for all kind of gynaecological problems including the menopause and osteoporosis. Doctor’s referrals necessary.
NHS Smoking Helplines
Helpline: 08000224332
Mobilise
Tel: 01508 489449
National HQ, Ashwellthorpe, Norwich NR16 1EX
Mobilise is a national charity that focuses in the mobility needs of all disabled people.
Motability
www.motability.co.uk
Tel: 0845 456 4566
City Gate House, 22 Southwark Bridge Road, London, SE1 9HB
Established to provide disabled people with safe, reliable and affordable cars. Cars account for 99% of the scheme's activities, with powered wheelchairs and scooters making up the balance
Pain Management Programmes
World Health Organisation: PAIN LADDER: applicable to any chronic pain, not just cancer:
Patients Association
Tel: 0845 608 4455 (Helpline open 10am-4pm, Monday-Friday)
PO Box 935, Harrow, Middlesex HA1 3YJ
It provides information and advice on access to health services, complaints procedure and patients’ rights.
Quit (Smoking Quitlines)
211 Ols Street, London EC1V 9NR
Tel: 0800 002200
Tel: 020 7251 1551
Scotland: 0800 848484
Wales: 0800 169 0169
Offer individual advice on giving up smoking in English and Asian languages. This organisation designed an exercise programme specifically for smokers to help them quit smoking. It gives talks in schools on smoking and pregnancy and refer to local support groups. Run training courses for professionals.
Society for back pain research
www.sbpr.info
SBPRenquiries@boa.ac.uk
35-43 Lincoln's Inn Fields, London WC1A 3PN
Promotes the study of all clinical and scientific aspects of spinal pain, including the neck, and to encourage research into its causes, treatment and prevention.
The Pain Society
www.britishpainsociety.org
info@painsociety.org
Tel: 0207 631 8870
21 Portland Place, London W1B 1PY
Is the representative body for all healthcare professionals and scientists involved in the management and understanding of pain in the UK. The Society aims to promote education, training, research and to increase both professional and public awareness of the prevalence of pain and the facilities that are available for its management. Its website is primarily aimed at healthcare professionals, but does contain a reading list, links section, pamphlets and other publications some of which are available to downloaded free from the website or by post.
The UK Mastocytosis Support Group
This national support group aims to offer emotional support for people affected by mastocytosis and other mast cell related conditions and their families; to encourage understanding about the condition and treatment choices and provide information to sufferers, their cares, family members and health professionals. Also works towards creating awareness about this rare condition.
Women’s Health Concern Ltd
Tel: 020 7451 1377
Nurse counselling service: 0845 123 2319
Whitehall House, 41 Whitehall, London SW1A 2BY
An organisation that aims to help educate and support women with their health care. They publish factsheets on the most common gynaecological, sexual health and other medical conditions including HRT, osteoporosis and the menopause. They provide confidential advice through their telephone advice line.
