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Joan - Interview 39  

Joan - Interview 39

Age at Interview: 88
Sex: Female
Age at Diagnosis: 74
Background: Married with two daughters, before retirement Joan worked as a local government employee. Her husband is her main carer. Joan’s advice to others: ask questions about your condition and medications. Nationality/ethnic background: British

Brief outline:Around 1994, Joan was prescribed increasing doses of steroid tablets over a nine month period to treat auto immune haemophilic anemia. The steroids caused her to develop osteoporosis. She has severe curvature of the spine. Medication; ibandronate infusions.

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Joan’s husband was able to have a holiday in Norway because all the arrangements for his wife’s care had been made by their daughters.

 



Husband: I have just come back from Norway.
 
You?
 
Husband: Norway for five days. [daughter] arranged all that and came with me you see. Joan went up to the other daughter’s. It gives Joan a break and it gives me a break as well. As I say without the two girls we just couldn’t manage.
Oh yes. No.
 
That and the telephone is the biggie. The telephone means Joan has somebody to talk to. If we want any services, it is always on the other end.
 
They can chase somebody. And that helps a hell of a lot.
 
That’s good. And when you go to your daughter’s house…?
 
Joan: Well they bring a bed downstairs for me. Because you see there is no stair lift there. So they bring the bed downstairs. Both of them do the same thing. Bring a single bed downstairs. Put it in a room downstairs and there I stay.
 
Husband: The oxygen people are good when we are going, they send all the kit there. It is waiting for us when we get there. Use it and we telephone them to say when we are coming back, and when we are they come and collect it all and bring it back again. They are an absolutely marvellous service I think.
 
Joan: Yes, very good.
 
Which service is this?
 
Joan: It’s the … well they call themselves Air Products but they are very good. They supply all the oxygen and the machines and I mean I have got a converter out in the hall and that takes the oxygen and pumps it through to me, so …
 
Husband: And they say if you want us ring and we’ll be there within the hour.
 
Joan: They promise to be there every day.
 
And they keep their promise and they are very conscious I think of the job they do.

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