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Jane - Interview 19  

Jane - Interview 19

Age at Interview: 42
Sex: Female
Age at Diagnosis: 36
Background: Jane is a university lecturer and lives with her partner and their son. Both her maternal grand-mother and her mother have osteoporosis. Jane feels let down by the healthcare system.

Brief outline:Jane’s excruciating back pain that started during labour wasn’t investigated until after six weeks later. Eventually she was diagnosed with osteoporosis through pregnancy but also with Coeliac disease. Jane says that she had coeliac symptoms for many years but again, these were not investigated. She is on Calcichew D3 Forte but not on medication for osteoporosis.

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Jane was assessed for Disability Living Allowance and she was surprised she did not get it.

 



And then realised that I’d have to eventually go back to work. And then decided on a long commuted way of going to work which meant that I didn’t have to use public transport. I’d drive to work and go to somewhere where I could park quite easily, and so I never had to carry bags. And so I ended up, you know, living in one city and working in another city so that I could actually in my head have a more physically able life. And so I still do that now. And I still have to minimise everything that I carry. And  but obviously my little baby’s a lot older now so I don’t have to carry him around so much now.
 
 
But economically  the osteoporosis made an impact in the fact that I got made redundant as soon as I had, as soon as I was pregnant. Just, you know, coincidentally. And then went straight from I think the statutory pregnancy straight onto I think sick, a sick payment. So I went straight off the job market and into the doldrums of, you know, not having any money really. Because in my mental head when I had, when I had my son, it was like, yeah I’ll take this length of time off and I’ll do and I can do that and so it all went a bit down the Swanee really. And because you, you live somebody or you’re married, then you’re not entitled to anything at all really. And so economically I couldn’t afford a physio now.
 
 
I got like, a DLA award, a minor award and the doctor came out. He was just, like he was the most horrific person. And he was so like, and I don’t know why, maybe because he’s used to seeing lots of people who are making it up or something, but he just said, “Oh so when, when was the last time you fractured then?” As if it was just like I when was the last time you sneezed. And so I started to cry when he asked me. And he went, “What are you crying for?” And it was just like, you know, you’ve just got no idea, have you? And then he told me that I hadn’t any muscle wastage whatsoever. And I knew that all my knees had gone and the lot. And so you just end up just thinking, “Oh God, this is just such a waste of time.”
 
Was this a medical examination?
 
Well he just looked at my knees. And he asked me to bend down. And he said, “Oh, I’ll, you know, we’ll let you know.” But, you know, mobility-wise I went from having full total mobility to absolutely no mobility and then got told  that I was fine. And you know, my life used to be quite big and my life now is quite little, You know, I know how to, there’s a certain, I’ll only do certain bus routes, I know that I’ll work out of my home town in order so that I can park. I know that, and so lately it’s got so little. I can’t go to the shops, I’ll carry three things. So it’s quite, and so, and then someone sits and goes, “Yes, well, you know, there’s no, you’ve got no mobility problems.” It’s just like, “OK.”
 
Hmm.
 
So [laughs]. 

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