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Rheumatoid Arthritis
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Discovery :
What is Rheumatoid Arthritis?
Original symptoms and visiting a GP
Referral to a rheumatologist, tests & diagnosis
Impact of the diagnosis
Ideas about causes
Impact of diagnosis on family & others
Tests and treatments :
Choosing treatments & taking part in trials
Painkillers
Anti-inflammatory drugs
Disease modifying anti-rheumatic drugs (DMARDs)
Steroid tablets, injections & intravenous pulses
Biologic treatments: anti-TNF and B-cell therapy
Long term use of drugs
Regular monitoring and other diagnostic tests
Physiotherapy & hydrotherapy
Occupational therapy
Other hospital specialists
Surgery - introduction
Surgery - upper limb and neck
Surgery - lower limb
Outpatient clinics
Complementary and alternative approaches
Living with rheumatoid arthritis :
Diet & food supplements
Exercise
Personal life and changes to the home
Social life & relationships
Mobility, driving & transport
Work
Financial implications & financial support
Sources of support
Body image
Attitude to RA & facing the future
Self-management
Ongoing symptoms- flares, stiffness & sleep disturbance
Ongoing symptoms- pain, fatigue, depression, weight change
Pregnancy & breastfeeding
Parenting & childcare
Messages to others with RA
Messages to health care professionals
Finding information about RA
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Rheumatoid Arthritis
Subject index
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Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 07
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After several visits to the GP with painful wrists and swollen joints she was referred to a specialist.
RA diagnosed 1998 after months of wrist pain and early morning stiffness. Initial steroid injections. Currently: Methotrexate 7.5mg /week & folic acid 5mg/day, Hydroxychloroquine 400mg/day and Ibuprofen as necessary. Exercise helps so swims 5 days a week.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 20
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The urgent referral to the rheumatologist worried her but getting a diagnosis was a relief.
Diagnosed September 2002 after few months of joint swelling/pain which was quite debilitating. Steroid injections helped and now pain and stiffness under control with Sulphasalazine (6 x 500mg/day) and Meloxicam (7.5mg/day). Life returned to fairly normal.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 30
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Tells what happened when he first saw the rheumatologist.
Diagnosed '95 after severe ankle pain (maybe virus triggered). Subject in Anti-TNF trial. Pneumonia due to RA. Regular steroid injections prior to ankle fusion. Methotrexate/folic acid, Celebrex, Tramadol, Diazapan, Tomazapan, Prozac, Atenolol, Dothiepin.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 16
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Has complete faith in her doctors and has never felt a need to get involved in treatment decisions.
Diagnosed 1977 after shoulder pains. Diclofenac retard 100mg/day, Methotrexate 15mg/week & 5mg/day folic acid. Partial wrist & 2 finger joints replaced, thumb tendon repairs, 6 toe joint operations, ankle fusion & a back operation (not due to RA).
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 22
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Makes sure she has regular blood monitoring at the hospital.
Diagnosed 1964 Juvenile Chronic Arthritis. 11 years of steroids limited growth. NSAIDs 'til age 37. Now Methotrexate 10mg/wk + folic acid, daily Prednisolone 5mg, Naproxin 100mg, Niozadadine (anti-ulcer) & iron. 2 hips replaced age 26 & 2 knees, age 30.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Interview 14
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Has monthly blood monitoring, but it is difficult to get a sample. She likes to know and understands the results.
Diagnosed '84 as sore fingers; main symptoms age 30+ & began DMARDs. Now Methotrexate 15mg/wk & daily folic acid, Meloxicam 15mg, Prednisolone 2.5mg, 6 Co-codamol & Lansoprazole. Operations; toe '90; wrist & finger fusions; 2 ankle replacements '01/03.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 16
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Understands what her blood monitoring is for; having a record card helps.
Diagnosed 1977 after shoulder pains. Diclofenac retard 100mg/day, Methotrexate 15mg/week & 5mg/day folic acid. Partial wrist & 2 finger joints replaced, thumb tendon repairs, 6 toe joint operations, ankle fusion & a back operation (not due to RA).
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 38
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Abnormal blood results led to a endoscopy and a colonoscopy.
Diagnosed 2 years ago but symptoms for 4 years. Currently on no medication but did take Sulphasalazine for 5 months before stopping because of side-effect of flaky skin. She has also had steroid joint injections and taken NSAIDs.
Topic
Bones & joints
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Rheumatoid Arthritis
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Regular monitoring and other diagnostic tests
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Regular monitoring and other diagnostic tests
Regular monitoring and other diagnostic tests
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 24
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Was taken to hospital by ambulance and after 5 days of tests was found to have RA.
Diagnosed April 1997 after sudden onset of symptoms and admission to hospital. RA widespread leading to initial depression. Side-effects from Methotrexate so now taking Leflunomide 20mg/day, Rofecoxib 12.5mg/ alternate days and pain killers as required.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 11-15 years
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Interview 06
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After an initial diagnosis and flare 11 years ago, she was re-diagnosed and told it could be lupus.
RA began with stiff neck and initial severe flare lasting months; 11 yrs - no further symptoms; then 2 acute flares in 2 years. Steroid injections helped. Currently on Methotrexate 10mg /week & daily hydroxychloroquine 400mg, Ranitidine 300mg & folic acid.
Bones & joints
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Rheumatoid Arthritis
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Referral to a rheumatologist, tests & diagnosis
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Referral to a rheumatologist, tests & diagnosis
Referral to the rheumatologist, tests and diagnosis
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