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Rheumatoid Arthritis
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Discovery :
What is Rheumatoid Arthritis?
Original symptoms and visiting a GP
Referral to a rheumatologist, tests & diagnosis
Impact of the diagnosis
Ideas about causes
Impact of diagnosis on family & others
Tests and treatments :
Choosing treatments & taking part in trials
Painkillers
Anti-inflammatory drugs
Disease modifying anti-rheumatic drugs (DMARDs)
Steroid tablets, injections & intravenous pulses
Biologic treatments: anti-TNF and B-cell therapy
Long term use of drugs
Regular monitoring and other diagnostic tests
Physiotherapy & hydrotherapy
Occupational therapy
Other hospital specialists
Surgery - introduction
Surgery - upper limb and neck
Surgery - lower limb
Outpatient clinics
Complementary and alternative approaches
Living with rheumatoid arthritis :
Diet & food supplements
Exercise
Personal life and changes to the home
Social life & relationships
Mobility, driving & transport
Work
Financial implications & financial support
Sources of support
Body image
Attitude to RA & facing the future
Self-management
Ongoing symptoms- flares, stiffness & sleep disturbance
Ongoing symptoms- pain, fatigue, depression, weight change
Pregnancy & breastfeeding
Parenting & childcare
Messages to others with RA
Messages to health care professionals
Finding information about RA
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Rheumatoid Arthritis
Subject index
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Bones & joints
>>
Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 19
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Feels surgeons could explain more and patients should ask questions about the planned operation.
Diagnosed 1980. Early treatment NSAID, pain killer and steroids. 9 operations e.g. joint replacement, neck fusion. Various DMARDS. Currently on Anti-TNF Infliximab/7 weeks. Methotrexate weekly, Prednisolone, Rofecoxib, hydroxychloriquine daily.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 17
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Was shocked at how many operations the surgeon thought she needed and wished the wait were shorter.
Diagnosed 1970. After early years, had 15 yrs when relatively well on NSAIDs. Flared up 99/00. Methotrexate 25mg/wk, daily Rofecoxib 25mg, Tramadol 200mg, anti-depressants & HRT. Awaiting 1 hip & 2 elbow replacements, wrist & finger straightening surgery.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 22
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Didn't like her scars and ate lots of Vitamin C rich fruit to heal them.
Diagnosed 1964 Juvenile Chronic Arthritis. 11 years of steroids limited growth. NSAIDs 'til age 37. Now Methotrexate 10mg/wk + folic acid, daily Prednisolone 5mg, Naproxin 100mg, Niozadadine (anti-ulcer) & iron. 2 hips replaced age 26 & 2 knees, age 30.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Interview 25
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Has used silicone gel on her scars to reduce the redness and swelling.
Juvenile chronic arthritis diagnosed '85, on steroids since. Hip replacements age 23 & 32, 2 knees together at 36 & wrist/hand ops. Currently Methotrexate, Prednisolone, Rofecoxib & Tramadol. Cinnarizine & Stemetil for side effects - balance loss & nausea.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 05
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Describes her neck problems, how the thought of a neck operation was frightening but that it was very successful.
RA diagnosed as significant symptoms after birth of 2nd child. Complementary treatments used. Takes Diclofenac 15mg & 2 Coproxamol daily. 10 operations: hips, knees & shoulder replacement/revision; neck, ankle & toe fusions, and removal of bone in 1 elbow.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 19
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Describes her two neck operations and having anti-TNF treatment to assist the bone graft.
Diagnosed 1980. Early treatment NSAID, pain killer and steroids. 9 operations e.g. joint replacement, neck fusion. Various DMARDS. Currently on Anti-TNF Infliximab/7 weeks. Methotrexate weekly, Prednisolone, Rofecoxib, hydroxychloriquine daily.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Interview 14
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Dislocated her ankle and consequently had pinning and replacement surgery in that and her other ankle.
Diagnosed '84 as sore fingers; main symptoms age 30+ & began DMARDs. Now Methotrexate 15mg/wk & daily folic acid, Meloxicam 15mg, Prednisolone 2.5mg, 6 Co-codamol & Lansoprazole. Operations; toe '90; wrist & finger fusions; 2 ankle replacements '01/03.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 05
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Would have liked the surgeon to tell her how her ankle would feel after the plaster was removed.
RA diagnosed as significant symptoms after birth of 2nd child. Complementary treatments used. Takes Diclofenac 15mg & 2 Coproxamol daily. 10 operations: hips, knees & shoulder replacement/revision; neck, ankle & toe fusions, and removal of bone in 1 elbow.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 30
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Describes a toe and ankle fusion operation and how the pain is now more like mild toothache than a raging fever.
Diagnosed '95 after severe ankle pain (maybe virus triggered). Subject in Anti-TNF trial. Pneumonia due to RA. Regular steroid injections prior to ankle fusion. Methotrexate/folic acid, Celebrex, Tramadol, Diazapan, Tomazapan, Prozac, Atenolol, Dothiepin.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 36
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Had joint replacements under spinal block anaesthetic rather than general.
Diagnosed 1979 as a young child. Currently on Methotrexate 10mg & folic acid, tramadol 100mg 2/day, solpadol 7/day. 2 hips and 2 knees replaced under spinal anaesthetic in succession over 2 years. Broken femur complication of last knee operation.
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