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Rheumatoid Arthritis
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Discovery :
What is Rheumatoid Arthritis?
Original symptoms and visiting a GP
Referral to a rheumatologist, tests & diagnosis
Impact of the diagnosis
Ideas about causes
Impact of diagnosis on family & others
Tests and treatments :
Choosing treatments & taking part in trials
Painkillers
Anti-inflammatory drugs
Disease modifying anti-rheumatic drugs (DMARDs)
Steroid tablets, injections & intravenous pulses
Biologic treatments: anti-TNF and B-cell therapy
Long term use of drugs
Regular monitoring and other diagnostic tests
Physiotherapy & hydrotherapy
Occupational therapy
Other hospital specialists
Surgery - introduction
Surgery - upper limb and neck
Surgery - lower limb
Outpatient clinics
Complementary and alternative approaches
Living with rheumatoid arthritis :
Diet & food supplements
Exercise
Personal life and changes to the home
Social life & relationships
Mobility, driving & transport
Work
Financial implications & financial support
Sources of support
Body image
Attitude to RA & facing the future
Self-management
Ongoing symptoms- flares, stiffness & sleep disturbance
Ongoing symptoms- pain, fatigue, depression, weight change
Pregnancy & breastfeeding
Parenting & childcare
Messages to others with RA
Messages to health care professionals
Finding information about RA
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Rheumatoid Arthritis
Subject index
Clip
Bones & joints
>>
Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 16
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Patients may forget what they have been told so it helps to have the phone number of a nurse to be reminded and get advice.
Diagnosed 1977 after shoulder pains. Diclofenac retard 100mg/day, Methotrexate 15mg/week & 5mg/day folic acid. Partial wrist & 2 finger joints replaced, thumb tendon repairs, 6 toe joint operations, ankle fusion & a back operation (not due to RA).
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Kate - Interview 52
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Talks about her hospital appointments, including her anti-TNF clinic and the type of tests she has done. She says that there is a lot of monitoring be
None of her previous non-biologic treatments have worked long-term. Her condition deteriorated to such an extent that she was housebound and needed help with most things. Currently she is on Enbrel and Methotrexate and her condition is much improved.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Emma - Interview 61
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Emma works in the same hospital but in a less demanding ward. Previously, she worked in the A&E department.
In 2008, aged 21 Emma was diagnosed with rheumatoid arthritis (RA). Currently, she is on a combination therapy that includes Sulfasalazine, Methotrexate and Naproxen as a painkiller and a new biological drug called Cimzia (certolizumab pegol). The plan is to eventually reduce her RA medication to Methotraxate and Cimzia only.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 37
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She often has to wait, but the clinic doctors and nurses are always friendly and helpful.
Diagnosed July 2001 after developing a stiff neck. Combination treatment of Sulphasalazine 2000mg/day and Methotrexate 10mg/week with folic acid 5mg 2/week. Rofecoxib 25mg/day, Ferrous sulphate 400mg/day (anaemia), Protium 40mg/day (indigestion).
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 32
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Things have changed a lot since her symptoms started in the 1970s - doctors are now less formal and more willing to talk.
Diagnosed seronegative RA '97 but symptoms since '77 after flu-like virus. Took Opren but side-effects so chose homeopathy. Mid '90s significant disease progression & began DMARDS, but side-effects. Now 6 weekly Depomedrone injections (120mg), physio & hydrotherapy.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 17
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Sees the specialist nurse before the consultant each time she visits the rheumatology clinic.
Diagnosed 1970. After early years, had 15 yrs when relatively well on NSAIDs. Flared up 99/00. Methotrexate 25mg/wk, daily Rofecoxib 25mg, Tramadol 200mg, anti-depressants & HRT. Awaiting 1 hip & 2 elbow replacements, wrist & finger straightening surgery.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 32
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The rheumatology nurse has given her steroid injections; she has also used the helpline.
Diagnosed seronegative RA '97 but symptoms since '77 after flu-like virus. Took Opren but side-effects so chose homeopathy. Mid '90s significant disease progression & began DMARDS, but side-effects. Now 6 weekly Depomedrone injections (120mg), physio & hydrotherapy.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 19
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Describes her charity work to increase the number of nurse clinics so patients have quicker access to rheumatology specialists when required.
Diagnosed 1980. Early treatment NSAID, pain killer and steroids. 9 operations e.g. joint replacement, neck fusion. Various DMARDS. Currently on Anti-TNF Infliximab/7 weeks. Methotrexate weekly, Prednisolone, Rofecoxib, hydroxychloriquine daily.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Sandra - Interview 63
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Sandra was not responding to treatment and her symptoms were getting worse. She describes how her RA was assessed by two specialists before being give
Sandra was diagnosed in April 2010 and her current rheumatoid arthritis treatment includes: Cimzia (certolizumab pegol), Methrotrexate, Sulfasalazine and Hydrochloroquine. Sandra’s consultant talked to her about reducing and eventually phasing out the last two drugs. She also takes painkillers; Diclofenac and Co-Codamol and Amitriptyline at night time.
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