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Rheumatoid Arthritis
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Discovery :
What is Rheumatoid Arthritis?
Original symptoms and visiting a GP
Referral to a rheumatologist, tests & diagnosis
Impact of the diagnosis
Ideas about causes
Impact of diagnosis on family & others
Tests and treatments :
Choosing treatments & taking part in trials
Painkillers
Anti-inflammatory drugs
Disease modifying anti-rheumatic drugs (DMARDs)
Steroid tablets, injections & intravenous pulses
Biologic treatments: anti-TNF and B-cell therapy
Long term use of drugs
Regular monitoring and other diagnostic tests
Physiotherapy & hydrotherapy
Occupational therapy
Other hospital specialists
Surgery - introduction
Surgery - upper limb and neck
Surgery - lower limb
Outpatient clinics
Complementary and alternative approaches
Living with rheumatoid arthritis :
Diet & food supplements
Exercise
Personal life and changes to the home
Social life & relationships
Mobility, driving & transport
Work
Financial implications & financial support
Sources of support
Body image
Attitude to RA & facing the future
Self-management
Ongoing symptoms- flares, stiffness & sleep disturbance
Ongoing symptoms- pain, fatigue, depression, weight change
Pregnancy & breastfeeding
Parenting & childcare
Messages to others with RA
Messages to health care professionals
Finding information about RA
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Rheumatoid Arthritis
Subject index
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Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 36
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Has seen many occupational therapists over the years and been given some useful equipment.
Diagnosed 1979 as a young child. Currently on Methotrexate 10mg & folic acid, tramadol 100mg 2/day, solpadol 7/day. 2 hips and 2 knees replaced under spinal anaesthetic in succession over 2 years. Broken femur complication of last knee operation.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 16
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An occupational therapist visited her home and provided some very useful equipment including lever taps.
Diagnosed 1977 after shoulder pains. Diclofenac retard 100mg/day, Methotrexate 15mg/week & 5mg/day folic acid. Partial wrist & 2 finger joints replaced, thumb tendon repairs, 6 toe joint operations, ankle fusion & a back operation (not due to RA).
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 20
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Felt some of the advice from the Occupational therapist on equipment was unhelpful because she thought she'd never need it.
Diagnosed September 2002 after few months of joint swelling/pain which was quite debilitating. Steroid injections helped and now pain and stiffness under control with Sulphasalazine (6 x 500mg/day) and Meloxicam (7.5mg/day). Life returned to fairly normal.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 39
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Equipment she has found useful includes an adjustable bath seat and hip seat.
Diagnosed for 9 months but symptoms for 4/5 years. Current treatments Sulphasalazine,voltarol, thyroxine, ventolin, coproxamol. Diclofenac twice daily.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 11-15 years
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Interview 29
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Access to Work helped her to obtain voice-activated soft ware and other office equipment.
RA diagnosed '90 & Juvenile RA age 8-11. Significant DMARD side-effects. Had breast cancer '98 & drugs also relieved RA. Methotrexate 15mg/week, folic acid 5mg 6/7 days, daily Diclofenac, Tamoxifen 20mg & Nibedipine 20mg. Paracetemol & Zantac as required.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 11-15 years
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Interview 29
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Describes many things that cost more because she has arthritis.
RA diagnosed '90 & Juvenile RA age 8-11. Significant DMARD side-effects. Had breast cancer '98 & drugs also relieved RA. Methotrexate 15mg/week, folic acid 5mg 6/7 days, daily Diclofenac, Tamoxifen 20mg & Nibedipine 20mg. Paracetemol & Zantac as required.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 01
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Social services paid for a chair to lower her into the bath but wouldn't pay for other items.
Psoriatic arthritis diagnosed at 15 then RA at 25 ('99) but delayed as negative blood tests. Initial treatments DMARDs and steroid pulses. Currently steroid tablets, NSAIDs, Methotrexate injected weekly & Anti-TNF Infliximab infusions began 2 months ago.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 11-15 years
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Interview 10
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The council paid most of the cost of adapting his house.
RA diagnosed after wrist problems & then overall disability. Some joint injections. RA medication: Gold 20mg/month, Diclofenac & Solpadol daily, Movelat (NSAID gel), Zopiclone (Sleep). Other drugs for ulcer, blood pressure, Emphysema, stroke and migraine.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Interview 23
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She adapted her kitchen to make life easier.
Psoriasis age 17. Rapid onset RA diagnosed seronegative '86. Various DMARDS tried and complementary therapies/diet helped. Stroke '00, blood disorder & Sjogrens. Currently Steroids, Dihydrocodeine, Vioxx. 2 new knees/1 hip/2 shoulders & right thumb fusion.
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