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Rheumatoid Arthritis
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Discovery :
What is Rheumatoid Arthritis?
Original symptoms and visiting a GP
Referral to a rheumatologist, tests & diagnosis
Impact of the diagnosis
Ideas about causes
Impact of diagnosis on family & others
Tests and treatments :
Choosing treatments & taking part in trials
Painkillers
Anti-inflammatory drugs
Disease modifying anti-rheumatic drugs (DMARDs)
Steroid tablets, injections & intravenous pulses
Biologic treatments: anti-TNF and B-cell therapy
Long term use of drugs
Regular monitoring and other diagnostic tests
Physiotherapy & hydrotherapy
Occupational therapy
Other hospital specialists
Surgery - introduction
Surgery - upper limb and neck
Surgery - lower limb
Outpatient clinics
Complementary and alternative approaches
Living with rheumatoid arthritis :
Diet & food supplements
Exercise
Personal life and changes to the home
Social life & relationships
Mobility, driving & transport
Work
Financial implications & financial support
Sources of support
Body image
Attitude to RA & facing the future
Self-management
Ongoing symptoms- flares, stiffness & sleep disturbance
Ongoing symptoms- pain, fatigue, depression, weight change
Pregnancy & breastfeeding
Parenting & childcare
Messages to others with RA
Messages to health care professionals
Finding information about RA
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Rheumatoid Arthritis
Subject index
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Bones & joints
>>
Rheumatoid Arthritis
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Disease duration 16-20 years
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Interview 23
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Thought it was only a temporary illness but felt she could deal with it once it had a name. Didn't want to imagine the worst case scenario.
Psoriasis age 17. Rapid onset RA diagnosed seronegative '86. Various DMARDS tried and complementary therapies/diet helped. Stroke '00, blood disorder & Sjogrens. Currently Steroids, Dihydrocodeine, Vioxx. 2 new knees/1 hip/2 shoulders & right thumb fusion.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 12
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'There are many possible causes but if you have it you just have to cope as best as you can.'
Diagnosed mid-2000 after rapid onset. Side-effects from sulphasalazine with hydroxychloriquine. Currently Methotrexate, NSAID, Losec, Celeximab and Paracetemol. Some steroid pulses and planned knee replacement.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Interview 47
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House adaptations have been made gradually so his wife is able to cope.
Partner was diagnosed with RA at 33 has had the disease for 17 years.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 45
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Supports his wife and feels being flexible is the way to cope with her changing abilities.
Partner diagnosed with RA aged 27 has had the disease 4 years.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 48
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Has learnt over the years when to help his partner and when to accept she wants to do things independently.
Partner was diagnosed with RA at 25 has had the disease 5 years.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 11-15 years
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Interview 33
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She felt depressed for much of secondary school but has now learnt to focus on a series of goals and feels much more positive.
Juvenile chronic arthritis diagnosed 1990. Initially NSAIDs, then methotrexate but nausea & then oral steroids from age 15. Finger tendon repair & hip replacement (01) Currently Anti-TNF Humira injected 2/month, indometacin, co-codamol & Lansoprazole.
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