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Rheumatoid Arthritis
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Discovery :
What is Rheumatoid Arthritis?
Original symptoms and visiting a GP
Referral to a rheumatologist, tests & diagnosis
Impact of the diagnosis
Ideas about causes
Impact of diagnosis on family & others
Tests and treatments :
Choosing treatments & taking part in trials
Painkillers
Anti-inflammatory drugs
Disease modifying anti-rheumatic drugs (DMARDs)
Steroid tablets, injections & intravenous pulses
Biologic treatments: anti-TNF and B-cell therapy
Long term use of drugs
Regular monitoring and other diagnostic tests
Physiotherapy & hydrotherapy
Occupational therapy
Other hospital specialists
Surgery - introduction
Surgery - upper limb and neck
Surgery - lower limb
Outpatient clinics
Complementary and alternative approaches
Living with rheumatoid arthritis :
Diet & food supplements
Exercise
Personal life and changes to the home
Social life & relationships
Mobility, driving & transport
Work
Financial implications & financial support
Sources of support
Body image
Attitude to RA & facing the future
Self-management
Ongoing symptoms- flares, stiffness & sleep disturbance
Ongoing symptoms- pain, fatigue, depression, weight change
Pregnancy & breastfeeding
Parenting & childcare
Messages to others with RA
Messages to health care professionals
Finding information about RA
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Rheumatoid Arthritis
Subject index
Clip
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 31
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Has often been asked about her family history and would like to know, from a trusted source, whether her children are likely to get RA.
Diagnosed '93 after quick onset. Side-effects from various DMARDs. Currently on Enbrel (anti TNFa) twice a week, Brufen retard 2400mg/day, Prednisolone 7.5mg/day and Paracetemol as required. Both elbows replaced (2002) and knee washout operation.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 20
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Tells how it affected her daughter, age 9, and how she explained it wasn't life threatening.
Diagnosed September 2002 after few months of joint swelling/pain which was quite debilitating. Steroid injections helped and now pain and stiffness under control with Sulphasalazine (6 x 500mg/day) and Meloxicam (7.5mg/day). Life returned to fairly normal.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 34
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Her children offered help, which she needed, but sometimes she found the role reversal hard to accept.
Diagnosed 1957. Had one of the first knee replacements (R) in 1961 but restricted movement since. First left knee replacement lasted approx 30 years and revision 10 years. 8 toes removed. Has taken Prednisolone (5mg) for 41 years.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 39
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Equipment she has found useful includes an adjustable bath seat and hip seat.
Diagnosed for 9 months but symptoms for 4/5 years. Current treatments Sulphasalazine,voltarol, thyroxine, ventolin, coproxamol. Diclofenac twice daily.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 05
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Her children adapted practically to her difficulties and she feels that has made them generally more thoughtful and helpful.
RA diagnosed as significant symptoms after birth of 2nd child. Complementary treatments used. Takes Diclofenac 15mg & 2 Coproxamol daily. 10 operations: hips, knees & shoulder replacement/revision; neck, ankle & toe fusions, and removal of bone in 1 elbow.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 38
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She has had to change how she holds and picks up babies and children.
Diagnosed 2 years ago but symptoms for 4 years. Currently on no medication but did take Sulphasalazine for 5 months before stopping because of side-effect of flaky skin. She has also had steroid joint injections and taken NSAIDs.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 31
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Taking her young baby out in the car and shopping was frighteningly difficult, so she stayed in the house.
Diagnosed '93 after quick onset. Side-effects from various DMARDs. Currently on Enbrel (anti TNFa) twice a week, Brufen retard 2400mg/day, Prednisolone 7.5mg/day and Paracetemol as required. Both elbows replaced (2002) and knee washout operation.
Bones & joints
>>
Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 31
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It was difficult for her especially in the mornings, so her young children had to learn to do things for themselves early.
Diagnosed '93 after quick onset. Side-effects from various DMARDs. Currently on Enbrel (anti TNFa) twice a week, Brufen retard 2400mg/day, Prednisolone 7.5mg/day and Paracetemol as required. Both elbows replaced (2002) and knee washout operation.
Bones & joints
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Rheumatoid Arthritis
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Interview 58
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Professor Robert Moots advices and informs about biologic drugs and pregnancy.
Robert Moots, Professor of Rheumatology, School of Clinical Sciences at the University of Liverpool and Consultant Rheumatologist at University Hospital Aintree, Liverpool.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 34
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She felt she had let her children down by having arthritis, but they helped her regain confidence and self esteem.
Diagnosed 1957. Had one of the first knee replacements (R) in 1961 but restricted movement since. First left knee replacement lasted approx 30 years and revision 10 years. 8 toes removed. Has taken Prednisolone (5mg) for 41 years.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Janet - Interview 56
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She wants children but is concerned about her age and worried of the prospect of stopping her medication before conception and during pregnancy.
Diagnosed in 2006. Janet takes Methotrexate 15 mg but experiences severe sickness and nausea. She will start taking Methotrexate in injection form and hopes this will reduce its side effects. She also takes: Tramadol with paracetamol; folic acid and amitriptyline at night when needed.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Tara - Interview 53
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Weeks after her first child was born Tara began to experience severe pain and joint inflammation and, initially her GP gave her Ibuprofen. She says th
Following her diagnosis Tara was put on Methotrexate and this controlled her illness very well. She came off Methotrexate after deciding to have a second child. She describes her antenatal care as 'excellent' and felt safe and reassured. She is currently on anti-TNF treatment: Humira.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Tara - Interview 53
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Talks about the antenatal care she received with her second pregnancy. She felt very supported and reassured.
Following her diagnosis Tara was put on Methotrexate and this controlled her illness very well. She came off Methotrexate after deciding to have a second child. She describes her antenatal care as 'excellent' and felt safe and reassured. She is currently on anti-TNF treatment: Humira.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Georgina - Interview 57
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Her son does not mind going into town with her when she is using her scooter. She says that she 'plays' football with her son in her scooter.
Diagnosed two years ago Georgina has been on B-cell therapy rituximab since November 2007. Previously she was on anti-TNF therapies; Humira and Enbrel. Her diagnosis of RA came about after her Pain Syndrome consultant referred her to the rheumatology clinic.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Janet - Interview 56
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Janet says that initially her stepchildren couldn't understand why she was unable to do those activities they had all previously enjoyed.
Diagnosed in 2006. Janet takes Methotrexate 15 mg but experiences severe sickness and nausea. She will start taking Methotrexate in injection form and hopes this will reduce its side effects. She also takes: Tramadol with paracetamol; folic acid and amitriptyline at night when needed.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Tara - Interview 53
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Tara thinks that having a young family restricts one's social life anyway. She has learnt the importance of taking it easy.
Following her diagnosis Tara was put on Methotrexate and this controlled her illness very well. She came off Methotrexate after deciding to have a second child. She describes her antenatal care as 'excellent' and felt safe and reassured. She is currently on anti-TNF treatment: Humira.
Bones & joints
>>
Rheumatoid Arthritis
>>
Disease duration 6-10 years
>>
Tara - Interview 53
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At the hospital they emphasised the importance of contraception when on methotrexate to which Tara replied, 'The best contraceptive we have are childr
Following her diagnosis Tara was put on Methotrexate and this controlled her illness very well. She came off Methotrexate after deciding to have a second child. She describes her antenatal care as 'excellent' and felt safe and reassured. She is currently on anti-TNF treatment: Humira.
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