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Rheumatoid Arthritis
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Full list of topics
Discovery :
What is Rheumatoid Arthritis?
Original symptoms and visiting a GP
Referral to a rheumatologist, tests & diagnosis
Impact of the diagnosis
Ideas about causes
Impact of diagnosis on family & others
Tests and treatments :
Choosing treatments & taking part in trials
Painkillers
Anti-inflammatory drugs
Disease modifying anti-rheumatic drugs (DMARDs)
Steroid tablets, injections & intravenous pulses
Biologic treatments: anti-TNF and B-cell therapy
Long term use of drugs
Regular monitoring and other diagnostic tests
Physiotherapy & hydrotherapy
Occupational therapy
Other hospital specialists
Surgery - introduction
Surgery - upper limb and neck
Surgery - lower limb
Outpatient clinics
Complementary and alternative approaches
Living with rheumatoid arthritis :
Diet & food supplements
Exercise
Personal life and changes to the home
Social life & relationships
Mobility, driving & transport
Work
Financial implications & financial support
Sources of support
Body image
Attitude to RA & facing the future
Self-management
Ongoing symptoms- flares, stiffness & sleep disturbance
Ongoing symptoms- pain, fatigue, depression, weight change
Pregnancy & breastfeeding
Parenting & childcare
Messages to others with RA
Messages to health care professionals
Finding information about RA
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Rheumatoid Arthritis
Subject index
Clip
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 22
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Explains how the social services Direct Payments scheme works, which gives people control over how they spend the money.
Diagnosed 1964 Juvenile Chronic Arthritis. 11 years of steroids limited growth. NSAIDs 'til age 37. Now Methotrexate 10mg/wk + folic acid, daily Prednisolone 5mg, Naproxin 100mg, Niozadadine (anti-ulcer) & iron. 2 hips replaced age 26 & 2 knees, age 30.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Interview 01
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Social services paid for a chair to lower her into the bath but wouldn't pay for other items.
Psoriatic arthritis diagnosed at 15 then RA at 25 ('99) but delayed as negative blood tests. Initial treatments DMARDs and steroid pulses. Currently steroid tablets, NSAIDs, Methotrexate injected weekly & Anti-TNF Infliximab infusions began 2 months ago.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 11-15 years
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Interview 10
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The council paid most of the cost of adapting his house.
RA diagnosed after wrist problems & then overall disability. Some joint injections. RA medication: Gold 20mg/month, Diclofenac & Solpadol daily, Movelat (NSAID gel), Zopiclone (Sleep). Other drugs for ulcer, blood pressure, Emphysema, stroke and migraine.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 04
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She finds Incapacity Benefit invaluable and wishes she had known about it earlier.
Diagnosed '79 with rapid onset after glandular fever. Various foot surgery undergone and hand surgery planned. Symptom relief from physio/ hydrotherapy & some complementary therapies/diets. Currently Coproxamol, Methotrexate, folic acid & occasional NSAID.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 21-25 years
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Interview 36
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To obtain benefits she needed a doctor's examination but found it 'dehumanising'.
Diagnosed 1979 as a young child. Currently on Methotrexate 10mg & folic acid, tramadol 100mg 2/day, solpadol 7/day. 2 hips and 2 knees replaced under spinal anaesthetic in succession over 2 years. Broken femur complication of last knee operation.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 27
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She does not receive benefits because she was assessed by a doctor on one of her better days.
RA diagnosed 1975 after stiff fingers. Elbow replacement '91 and 2 toe operations. Currently Methotrexate 10mg/week & folic acid 6/7 days, daily Cyclosporin 150mg, Diclofenac 100mg suppository, co-codamol as required and Losarlyn 100mg (blood pressure).
Bones & joints
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Rheumatoid Arthritis
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Disease duration 26 years plus
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Interview 22
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Explains why she decided to get a car through the charity Motability.
Diagnosed 1964 Juvenile Chronic Arthritis. 11 years of steroids limited growth. NSAIDs 'til age 37. Now Methotrexate 10mg/wk + folic acid, daily Prednisolone 5mg, Naproxin 100mg, Niozadadine (anti-ulcer) & iron. 2 hips replaced age 26 & 2 knees, age 30.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 6-10 years
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Interview 31
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She wasn't told for a long time that she could claim benefits. She had to fill in a 20 page booklet.
Diagnosed '93 after quick onset. Side-effects from various DMARDs. Currently on Enbrel (anti TNFa) twice a week, Brufen retard 2400mg/day, Prednisolone 7.5mg/day and Paracetemol as required. Both elbows replaced (2002) and knee washout operation.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Interview 23
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It took years for her to obtain the right benefits and she thinks she should have had more advice.
Psoriasis age 17. Rapid onset RA diagnosed seronegative '86. Various DMARDS tried and complementary therapies/diet helped. Stroke '00, blood disorder & Sjogrens. Currently Steroids, Dihydrocodeine, Vioxx. 2 new knees/1 hip/2 shoulders & right thumb fusion.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 0-5 years
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Emma - Interview 61
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Emma talks about the benefits she has experienced since using Cimzia and describes the improvements as a slow process.
In 2008, aged 21 Emma was diagnosed with rheumatoid arthritis (RA). Currently, she is on a combination therapy that includes Sulfasalazine, Methotrexate and Naproxen as a painkiller and a new biological drug called Cimzia (certolizumab pegol). The plan is to eventually reduce her RA medication to Methotraxate and Cimzia only.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Pat - Interview 59
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Pat is receiving Incapacity Benefit and expects to be assessed again soon. She has been assessed several times in the past. Her attitude is to comply
Pat was diagnosed with rheumatoid arthritis aged 25 but it took almost three years and a progressive deterioration of her symptoms for her to get an appropriate treatment. Her disease has remained active and to date she has had ten operations and four implants. Pat participated in a clinical trial for a newer drug called Golimumab (Simponi) but the therapy failed to improve or control her rheumatoid arthritis. She is due to start another biological therapy; Rituximab.
Bones & joints
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Rheumatoid Arthritis
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Disease duration 16-20 years
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Melissa - Interview 50
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Melissa talks about the application and assessment process for Incapacity Benefit and thinks that the system is fair.
Melissa was first diagnosed with juvenile idiopathic arthritis and later with rheumatoid arthritis. She was on Methotrexate for about eight years. She has been on two Anti-TNF treatments: etanercepts (Enbrel) and adalimumab (Humira) and expects to be started on influximab soon.
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