Arthritis Research UK
www.arthritisresearchuk.org
Tel: 01246 558033
Formerly Arthritis Research Campaign (ARC). Arthritis Research UK aims to raise funds to promote medical research into the cause, treatment and cure of arthritic conditions: to educate medical students, doctors and allied health professionals about arthritis and to provide information to people affected by arthritis and to the general public.
Arthritis Care
www.arthritiscare.org.uk
Helplines@arthritiscare.org.uk
Tel: 0808 800 4050 12pm to 4pm Monday to Friday
Is the largest UK-wide voluntary organisation working with and for all people with arthritis. They provide information, publications, support groups, courses and is a bi-monthly magazine (Arthritis News). No Limits, a magazine for young people, is produced with every other issue.
National Rheumatoid Arthritis Society (NRAS)
www.nras.org.uk
enquiries@nras.org.uk
Tel: 0800 2987650
Provides information for; Adults with Rheumatoid Arthritis, Families, friends and carers of people living with Rheumatoid Arthritis, Young people with Juvenile Idiopathic Arthritis (JIA) and Health Professionals with an interest in Rheumatoid Arthritis. Their website gives information about symptoms, drug treatments, pain relief (including alternative therapies), diagnosis and social, emotional and practical problems that people living with chronic long term health problems may face. They run a helpline and also provide one to one telephone support thorough their network of volunteers with RA. They also have a forum.
AbilityNet
www.abilitynet.co.uk
enquiries@abilitynet.org.uk
Tel: 0800 269545
Provides advice, factsheets, assessments and training on assistive technology for people with disabilities.
Arthritis Foundation (USA)
www.arthritis.org
Is a not-for-profit organisation (USA) that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research. They have lots of online information brochures and an online community.
Assist UK - Disabled Living Centres
assist-uk.org
Tel: 0161 238 8776
A UK-wide network of centres that introduce people to products and solutions, which make life easier and safer.
British Health Professionals in Rheumatology (BHPR)
www.rheumatology.org.uk/bhpr
bhpr@rheumatology.org.uk
Tel: 020 7842 0900
A group of academic and practicing rheumatologists and immunologists who are among the world's leading teaching experts. They analyse, criticise, discuss presentations and key meetings about rheumatology.
British Society for Rheumatology (BSR)
www.rheumatology.org.uk
Tel: 020 7842 0900
A medical society committed to advancing knowledge and practice in the field of rheumatology. They aim to improve awareness and understanding of arthritis and other musculoskeletal conditions and work at national and local level to promote high quality standards of care for people with these conditions.
British Society of Rehabilitation Medicine (BSRM)
www.bsrm.co.uk
admin@bsrm.co.uk
Tel: 01992 638865
The Society encourages doctors in all clinical specialties to be involved in education and research into the management of disability.
Children's Chronic Arthritis Association (CCAA)
www.ccaa.org.uk
info@ccaa.org.uk
Tel: 01905 745595
Provides help and information for children with arthritis, their families and professionals involved in their care.
DIAL UK
www.dialuk.info
informationenquiries@dialuk.org.uk
Tel: 01302 310 123
A national organisation for a network of 139 local disability information and advice services run by and for disabled people.
Disability Alliance
www.disabilityalliance.org
Tel: 0207 247 9342 Monday - Friday 10.00am - 12.00 noon and 2.00pm - 4.00pm
Publishers of the Disability Rights Handbook, is regarded as the leading authority on social security benefits for disabled people.
Disability Pregnancy and Parenthood International
www.dppi.org.uk
info@dppi.org.uk
Tel: 0800 018 4730
Promotes better awareness and support for disabled people considering, during and after pregnancy and as parents.
Disability Rights Commission (DRC)
www.drc-gb.org
Tel: 0845 604 6610
Is an independent body established in April 2000 by Act of Parliament to stop discrimination and promote equality of opportunity for disabled people.
Disabled Living Foundation
www.dlf.org.uk
Tel: 0845 130 9177 10.00am - 4.00pm Monday to Friday
The text phone number is 020 7432 8009.
Helps people find equipment solutions that enable them to lead independent lives.
Gardening for Disabled Trust
www.gardeningfordisabledtrust.org.uk
The Trust gives grants to people all over the United Kingdom in order that they may continue to garden, despite advancing illness, age or disability.
Institute for Complementary Medicine (ICM)
www.icmedicine.co.uk
info@icnm.org.uk
Tel: 0207 922 7980
To provide the public with information on all aspects of the safe and best practise of complementary medicine through its practitioners, courses and research.
Lupus Help! - University of Birmingham Rheumatology Department
rheumb.bham.ac.uk/lupus/intro.html
Provides information about Lupus.
Lupus UK
www.lupusuk.com
headoffice@lupusuk.org.uk
Tel: 01708 731251
National charity helping people with lupus.
Motability
www.motability.co.uk
Tel: 0845 456 4566
Established to provide disabled people with safe, reliable and affordable cars. Cars account for 99% of the scheme's activities, with powered wheelchairs and scooters making up the balance.
National Osteoporosis Society (NOS)
www.nos.org.uk
info@nos.org.uk
Tel: 0845 4500230
A national charity dedicated to improving the diagnosis, prevention and treatment of this fragile bone disease.
Pain Concern
www.painconcern.org.uk
info@painconcern.org.uk
Tel: 0844 499 4676 Mon-Fri 10 a.m. - 4 p.m.
Is a charity that aims to provide information and support for people living with pain and their families. Their website is aimed at the general public and provides information about living with chronic pain and how to manage it. Most of the information available on-line is in the form of FAQ's, though various pamphlets and booklets produced by Pain Concern (some of which have been written by healthcare professionals) can be downloaded.
Primary Care Rheumatology Society (PRC)
www.pcrsociety.org.uk
Tel: 01609 774794
Aims to improve education in rheumatology in general practice, to set up relevant research topics, to increase communication between hospital rheumatologists and other relevant health professionals, with the ultimate aim of improving care for patients with rheumatic disease.
Queen Elizabeth's Foundation Centres
www.qefd.org
Tel: 01372 841100
The Foundation works to equip disabled people with skills to increase their independence, mobility, and help them into employment.
RADAR - Royal Association for Disability and Rehabilitation
www.radar.org.uk
radar@radar.org.uk
Tel: 020 7250 3222
Aims to promote change by empowering disabled people to achieve their rights and expectations; and by influencing the way that disabled people are viewed as members of society.
RASCALS - Rheumatoid Arthritis Social Care and Leisure Society
www.rascalsgroup.co.uk
Tel: 01323 843125
A self-help group which aims to support, share, and understand the disease and its effects. They also have a forum.
The Arthritis and Musculoskeletal Alliance (ARMA)
www.arma.uk.net
arma@rheumatology.org.uk
Tel: 020 7842 0910/11
Raise awareness of the need for high quality services for those with arthritis and other musculoskeletal conditions. Promote the development of treatment, prevention, rehabilitation and relief. It also provides a forum for the exchange of ideas and information between member organisations.
The Pain Society
www.britishpainsociety.org
info@britishpainsociety.org
Tel: 020 7269 7840
Is the representative body for all healthcare professionals and scientists involved in the management and understanding of pain in the UK. The Society aims to promote education, training, research and to increase both professional and public awareness of the prevalence of pain and the facilities that are available for its management. Its website is primarily aimed at healthcare professionals, but does contain a reading list, links section, pamphlets and other publications some of which are available to downloaded free from the website or by post.
Tourism For All
www.tourismforall.org.uk
Tel: 0845 124 9971
Helps disabled and older people lead independent lives by enhancing their ability to travel. Provides information about transport, accommodation, visitor attractions, activity holidays and respite care establishments, both in the UK and overseas enables people with all kinds of disability to holiday where possible in a mainstream environment.
Tripscope
tripscopesw@cableinet.co.uk
Tel: 08457 58 56 41
Travel advice & transport information for people who are disabled or have difficulty getting around.
UK Disabled People's Council
www.ukdpc.net
Tel: 01244 346460
Is the UK's national organisation of the worldwide Disabled People's Movement. Set up by disabled people to promote full equality and participation in UK society.
Vitalise
www.vitalise.org.uk
Tel: 0845 345 1970
A national charity providing essential breaks for disabled and visually impaired people and their carers.
Youreable.com
www.youreable.com
info@youreable.com
Tel: 01902 738376
Information, products and services and forums for disabled people.
National Health Information and Support Sources
Please click on the link below for our list of national health information and support sources.
www.healthtalkonline.org/Page/National_Health_Information
