Interview 03  

Interview 03

Age at Interview: 49
Sex: Female
Age at Diagnosis: 33
Background: Lecturer part time, married with three children. Third child born 8 years after RA diagnosis (1994). First interview 9/02 and second interview 11/03.

Brief outline:RA diagnosed '86. For 10 years chose NSAIDs/pain killers and complementary therapies. DMARD treatments started 1996 (various). 2 replacement shoulders 2000. Started Infliximab 9/02. Less pain/tiredness but pre-existing damage means hip replacement '04.


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Female
Learnt she has a 'weak positive' result and decided to look for an alternative cure instead of talking to her doctor.

 



So my husband happened to go for something quite, whatever, to the doctor and I said “well do ask, you know, if the blood test has come back, you know what sort of, you know, what it is or if there's anything?” and I think just in passing, he said well, it's a weak result, a weak, weak positive for rheumatoid arthritis which, which was.

I don't know how I took it really because I don't think I really knew at that point, I very quickly became an expert on rheumatoid arthritis, but at that time I didn't quite know what it was really. So you know I thought, I didn't think I had a lifetime of a disease that I had to you know work, work with. So that's why really it was for me no big deal, it wasn't anything life threatening, I thought it was just something I had picked up that would go, really. So that's why I chose not to, you know go back.  It wasn't of any great importance, I didn't think, it was just an intrusion in my life at that time, one I wanted to get rid of, but I didn't think it would be with me for life.

OK, right. So I think what I was faced with, with was potentially a crippling disease and where do I go from here. I chose not to talk to my doctor, who would've been completely happy to have talked to me, but I think I possibly was going to cure myself at that moment of time. So, I think what I did is I looked at alternative therapies to start with and it possibly was, at that time, it wasn't, it took over my life and it was very intrusive, but it wasn't, I was very strong still, I was still very young, I had two children one of 6 and one of 3 and life had to carry on so it wasn't stopping me. 

Rheumatoid arthritis
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