Interview 32  

Interview 32

Age at Interview: 45
Sex: Female
Age at Diagnosis: 39
Background: Full time Network Manager for arthritis charity, single, no children.

Brief outline:Diagnosed seronegative RA '97 but symptoms since '77 after flu-like virus. Took Opren but side-effects so chose homeopathy. Mid '90s significant disease progression & began DMARDS, but side-effects. Now 6 weekly Depomedrone injections (120mg), physio & hydrotherapy.


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Things have changed a lot since her symptoms started in the 1970s - doctors are now less formal and more willing to talk.

 



Yeah, I mean, like I say, it was the '70s so we weren't so computer-focused. It was going to research libraries and medical libraries and looking, looking things up and looking up if I had tests, for instance, after I had the muscle test, the EM, Is I think it was, I went out and looked up all the possible potential conditions that there were looking at which was very scary. That was why I was quite glad when it was rheumatoid arthritis but realistically it was just trying to get a handle on why I was being tested for these things. 

I couldn't quite understand it, I didn't understand half of the questions but then again I think we're far more less formal when we go to doctors and consultants now than we were probably when I was  a teenager, you know, I, I don't have any qualms of saying to any of the medics looking after me, whether it be GP or consultant or clinical nurse practitioner, “This aspect has caused me a problem.” It may well be RA related, it may not be RA related but I don't have a problem with broaching that and then saying, “Well how will that impact on my arthritis?” You know, so it's, like you're looking at the bigger picture rather than sort of pinpointing bits of it into one area. Yeah, that's important. 

Rheumatoid arthritis
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