Interview 22  

Interview 22

Age at Interview: 40
Sex: Female
Age at Diagnosis: 2
Background: Unemployed due to redundancy at time of interview but commencing new part time admin assistant job shortly. Single. Shares accommodation with flat mate. Personal assistants paid via direct payment. In receipt of Disability Living Allowance. Member of Arth

Brief outline:Diagnosed 1964 Juvenile Chronic Arthritis. 11 years of steroids limited growth. NSAIDs 'til age 37. Now Methotrexate 10mg/wk + folic acid, daily Prednisolone 5mg, Naproxin 100mg, Niozadadine (anti-ulcer) & iron. 2 hips replaced age 26 & 2 knees, age 30.


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Female
Was pleased to discover books about arthritis including one on physical relationships by Young Arthritis Care called 'Lovemaking and arthritis for younger people'.

 



I do wear a hand splint at night on this hand, which I have done since I was twelve and it's now part of my little, obviously I have had my hand splint replaced, but it's quite attached to me that hand splint now, and I do, I did find that when I was younger, if I had partners that didn't want me to put my hand splint on but now I'm thinking, I don't care now.  

And they've done actually, they've done, it's been quite good cos, Young Arthritis Care did a book on 'Lovemaking and Arthritis for younger people' and that was really good, I found that a really good book, I sent off for that and I really found that a very positive book. I did, where I worked we did research on sexuality and disability and part of my jobs, one of my jobs, which was a great job was I had to ring up all these disabled organisations and ask for all their literature on sex, so I kept getting all this literature in work with my name on it and I bet they all thought what a perv she is you know. 

And I had, I, there was a few of us that had to do it, one of us had to read a book on 'Arthritis and Sex' one of us read a book on 'Spina bifida and Sex' and the Arthritis Care Arthritis book came as the top, it was really good, it was done in a positive, informative way and I thought the book was ace, was really really good, and I've also read lots of books on coping with arthritis how other people have coped with it and written books, I've read a book about, I've read that too.

I did read a book about hip replacements but I decided it was too depressing and told me too much and so I didn't bother with that one, so I've read lots of books as well on arthritis, but all of them I read are really how to cope with it, because I want to know what people have said and done and they feel the same way we do.

(Publication available now is: 'Our relationships, our sexuality').

And when you hear other people saying what you're thinking, it makes you feel better, it does, because otherwise you think you're on your own don't you? So I recommend the Arthritis Care book on I forget what it's called now, but it's a really good book, it's really inter, it's a good book if you're able bodied actually! [laughs].

Rheumatoid arthritis
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