Interview 19  

Interview 19

Age at Interview: 53
Sex: Female
Age at Diagnosis: 30
Background: Self employed marketing consultant. Married with one adult child born after diagnosis. Founder of National Rheumatoid Arthritis Society (NRAS). Chair of charity and active campaigner to raise awareness and increase standards of care for people with RA.

Brief outline:Diagnosed 1980. Early treatment NSAID, pain killer and steroids. 9 operations e.g. joint replacement, neck fusion. Various DMARDS. Currently on Anti-TNF Infliximab/7 weeks. Methotrexate weekly, Prednisolone, Rofecoxib, hydroxychloriquine daily.


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Staying positive and planning something nice to look forward to, such as a weekend away, helps take her mind off the pain.

 



I always try and have something in the pipeline to look forward to like a trip to the theatre or a weekend away or something every, you know, two or three months because I think that staying as positive as you can and as happy as you can helps. 

So if you've got nice things to look forward to then it's something that is it, it's just a nice thing that you know is, is there waiting in a couple of weeks time or whatever. I'm a very positive person I'm a, I'm a glass half full rather than a half empty person. And I'm also very determined so I work very hard and I find that very absorbing and very fulfilling and so that can actually take my mind off things when I am in a lot of pain. 

I, when I come home when I've been, you know, when I've done 8 or 9, 9 hours on the trot, I will just come home and I'll put my feet up and watch telly or whatever. And say to myself, “Well even although I am supposed to have done this by tomorrow morning, sod it, I've done 9 hours, I can't do any more” and although having said that my husband does sometimes come into the office at midnight and, and say, “Will you turn that computer off?” 

So apart from that I don't know. Just staying positive really. And I feel, I do feel lucky because, I don't feel lucky that I've got the disease but, you know, when I see sometimes, you know, there's always somebody worse than you. When you see other people you think, “Well,' you know, 'there but for the grace of God”. So and I, I enjoy my life in spite of the disease I, I enjoy it.

Rheumatoid arthritis
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